#MEAction Network UK
@MEActNetUK
UK charity empowering patients to fight for the #MillionsMissing with ME. Health equality & biomedical research now!
A press release has been issued by the DHSC about the ME/CFS Delivery Plan due to be published today. We will give our feedback once we have read the published version of the plan. ow.ly/RpIn50Wt8xA #MyalgicEncephalomyelitis #pwME #pwLC #disability
Listen below to Dr Charles Shepherd (@MEAssociation) and Janet Sylvester (@meactionscot) talking about the DHSC Delivery Plan on Radio Scotland this morning #MyalgicE #DeliveryPlan #DepartmentOfHealthAndSocialCare #MyalgicEncephalomyelitis
Dr Charles Shepherd (@MEAssociation ) and Janet Sylvester (@meactionscot ) spoke to BBC Radio Scotland about the government’s new ME/CFS delivery plan. youtu.be/FtRQe_EYxvA?si…
Sean O'Neill writes in The Times and The Sunday Times of his deep disappointment at the contents of the ME Delivery Plan. Wes Streeting has the power to implement a service for the severe and very severe and stop the needless deaths of people with ME. ow.ly/9Fnh50WtRl7
The Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): the final delivery plan has been published. We are still working through the publication & our response as we were not given an advance copy of the plan or publication. ow.ly/s6Wc50WtvZB
This morning, Sarah Boothby and Dr Binita Kane spoke to BBC Breakfast giving their reaction to the publication of the Department of Health and Social Care (DHSC) Delivery Plan for ME. Listen by clicking on the link below (item starts at 1:13:18) bbc.co.uk/iplayer/episod…
We have been asked to share the following update about Karen Gordon. Karen's father asks you all to, 'Please keep sharing this petition and telling people about Karen’s situation.' ow.ly/HBTP50Wr48F #MyalgicEncephalomyelitis #VerySevereME #pwME
Wonderful @tessamunt is still fighting for #pwME & for DHSC to publish the ME/CFS Delivery Plan. We need @Keir_Starmer @AshleyDalton_MP @wesstreeting to step up now & add funding to the plan so we get the millions of pounds missing from ME research. #MyalgicEncephalomyelitis
June 30 + 10… and with still no sign of the ME Delivery Plan, last Thursday I again asked the Leader of the House, @LucyMPowell, if she could help bring an end to the delay which is so disrespectful for #pwME. I’m grateful for her acknowledgement and commitment to follow up. 👍🏾
The BBC responded to our complaint about the headline of this article using 'chronic fatigue'. They 'are happy that it fairly reflects the story'. We disagree and have replied supplying evidence that 'chronic fatigue' is a symptom, not a disease. #MillionsMissing #pwME
The NHS 10 Year Health Plan has been published. Links to the full plan and the executive summary below: ow.ly/Xe4f50WkxF1
The Universal Credit and PIP bill was passed yesterday evening amid chaotic scenes but cuts to PIP will be removed. The bill still includes measures that will take away support from disabled people. #MillionsMissing #MyalgicEncephalomyelitis
The government is still making devastating cuts to Universal Credit (UC)✂️ UC is a lifeline for disabled people who face huge extra costs but aren't able to work. 📢 The government must withdraw the bill. And co-produce all disability benefit reforms with disabled people.
The DHSC confirmed that, 'the ME/CFS Final Delivery Plan is due to be published shortly, following the publication of the 10-Year Health Plan.' We are deeply disappointed at yet another delay and will continue to push for a firm date. ow.ly/Xfwg50WijVm #MillionsMissing
We have asked BBC News to change the headline of this article and replace Chronic fatigue with ME. ow.ly/ULr950WcVhG #MillionsMissing #pwME
Exciting News!!! A biomarker would be a game changer for ME. Researchers are crying out for more funding to follow up exciting work. We need @wesstreeting & @AshleyDalton_MP to commit money to the ME/CFS Delivery Plan for the #MillionsMissing with ME. ow.ly/iXPo50WcGWr
Breaking News! Good Morning Scotland interviewed Dr Sjoerd Beentje & #MEAction Scotland volunteer Karima Rahman about University of Edinburgh research that found changes in the blood between people with and without ME. Interview 7.14am. ow.ly/viHc50WcG5g #pwME
We support @scope Cost of Cuts campaign. Scope are now asking you to contact your MP and ask them to vote against devastating benefit cuts in Parliament, before it's too late. ow.ly/aajT50WcbMR
Today, we handed in over 100,000 petition signatures to 10 Downing Street 📋 It’s a clear message to the government: the cost of cuts is catastrophic ✂️
The APPG held its most recent meeting of the Parliament on Wednesday 14 March. This was the first joint-meeting with the APPG on Long Covid, also Chaired by Jo Platt MP. ow.ly/r0FR50WbqZr #MillionsMissing #pwME #pwLC
Amazing work from #MEAction Scotland. They have campaigned, lobbied and never given up on getting the updated NICE guideline on ME/CFS accepted in Scotland. Can we send #MEAction Scotland some ❤️ for this outstanding achievement?
Success for #MEAction Scotland Campaign!! The @scotgov withdraws outdated guideline and endorses NICE. The Scottish Government has withdrawn the Scottish Good Practice Statement on ME/CFS. Thanks to @jenni_minto for her support. #MillionsMissing #MyalgicEncephalomyelitis
Exciting news from @DecodeMEstudy. #MillionsMissing #pwME #DisabilitySOS #LongCovid
Our thanks to @TimesONeill @Fhamiltontimes and @thetimes for their M.E. Awareness and Reform campaign. What more do you need @The_MRC, @wesstreeting @AshleyDalton_MP @CMO_England, @DHSCgovuk to convince you to fund ME research for the #MillionsMissing?
Congratulations to "M.E. Awareness and Reform" from @thetimes for being awarded winner of Campaign of the Year at The Press Awards 2025!
Our thanks to everyone who took part in Blue Sunday, held a tea party or quietly enjoyed some tea and cake. We send special thanks to everyone who sent us a donation. 🧁🫖💙 #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness #BlueSunday2025 #TeaPartyForME2025
