#MEAction Scotland

@meactionscot

MEAction Scotland is an affiliate of #MEAction, an international network of people working towards health equality for #MillionsMissing with ME.

Scotland, United Kingdom

Joined April 2017

696Following

2KFollowers

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#MEAction Scotland@meactionscot · May 14

It was a busy, successful day outside @ScotParl for #MillionsMissing Scotland 👏 Lots of MSPs, including @jenni_minto, came out to speak to us and hear from #pwME. Many MSPs told us they came out because their constituents got in touch, so well done to everyone who emailed. 🧵

meactionscot's tweet image. It was a busy, successful day outside @ScotParl for #MillionsMissing Scotland 👏

Lots of MSPs, including @jenni_minto, came out to speak to us and hear from #pwME. Many MSPs told us they came out because their constituents got in touch, so well done to everyone who emailed. 🧵

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#MEAction Scotland@meactionscot · Jul 22

A press release has been issued by the DHSC about the ME/CFS Delivery Plan due to be published today. We will give our feedback once we have read the published version of the plan. ow.ly/RpIn50Wt8xA #MyalgicEncephalomyelitis #pwME #pwLC #disability

meactionscot's tweet card. Better care for patients living with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, with plans to invest in research and offer closer to home.

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#MEAction Scotland@meactionscot · May 20

We are pleased that our response to the recent opinion piece, 'Patients with severe ME/CFS need hope and expert multidisciplinary care' in the BMJ has been published but disappointed by it's commissioning & publication. ow.ly/vsOE50VVoEx #VerySevereME #MillionsMissing

meactionscot's tweet image. We are pleased that our response to the recent opinion piece, 'Patients with severe ME/CFS need hope and expert multidisciplinary care' in the BMJ has been published but disappointed by it's commissioning &amp; publication.

ow.ly/vsOE50VVoEx

#VerySevereME #MillionsMissing

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#MEAction Scotland@meactionscot · Jul 24

Listen below to Dr Charles Shepherd (@MEAssociation) and Janet Sylvester (@meactionscot) talking about the DHSC Delivery Plan on Radio Scotland this morning #MyalgicE #DeliveryPlan #DepartmentOfHealthAndSocialCare #MyalgicEncephalomyelitis

AAdam@ABrokenBattery · Jul 24

Dr Charles Shepherd (@MEAssociation ) and Janet Sylvester (@meactionscot ) spoke to BBC Radio Scotland about the government’s new ME/CFS delivery plan. youtu.be/FtRQe_EYxvA?si…

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#MEAction Scotland@meactionscot · Jul 23

Sean O'Neill writes in The Times and The Sunday Times of his deep disappointment at the contents of the ME Delivery Plan. Wes Streeting has the power to implement a service for the severe and very severe and stop the needless deaths of people with ME. ow.ly/9Fnh50WtRl7

meactionscot's tweet card. Maeve died at 27 from severe myalgic encephalomyelitis. What’s been published after years of waiting is little more than warm words

#MEAction Scotland@meactionscot · Jul 22

This morning, Sarah Boothby and Dr Binita Kane spoke to BBC Breakfast giving their reaction to the publication of the Department of Health and Social Care (DHSC) Delivery Plan for ME. Listen by clicking on the link below (item starts at 1:13:18) bbc.co.uk/iplayer/episod…

meactionscot's tweet image. This morning, Sarah Boothby and Dr Binita Kane spoke to BBC Breakfast giving their reaction to the publication of the Department of Health and Social Care (DHSC) Delivery Plan for ME. Listen by clicking on the link below (item starts at 1:13:18)
bbc.co.uk/iplayer/episod…

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#MEAction Scotland@meactionscot · Jul 21

Scotland’s ‘invisible’ patients and carers ‘falling between the cracks’ in health service Read the latest report from @NeuroAlScotland here ow.ly/RI9250Wsxmo #NeurologicalConditions #TodaysChallengeTomorrowsHope #MyalgicE #MyalgicEncephalomyelitus

meactionscot's tweet image. Scotland’s ‘invisible’ patients and carers ‘falling between the
cracks’ in health service

Read the latest report from @NeuroAlScotland here ow.ly/RI9250Wsxmo
#NeurologicalConditions #TodaysChallengeTomorrowsHope #MyalgicE #MyalgicEncephalomyelitus

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#MEAction Scotland@meactionscot · Jul 17

We have been asked to share the following update about Karen Gordon. Karen's father asks you all to, 'Please keep sharing this petition and telling people about Karen’s situation.' ow.ly/HBTP50Wr48F #MyalgicEncephalomyelitis #VerySevereME #pwME

meactionscot's tweet image. We have been asked to share the following update about Karen Gordon.

Karen's father asks you all to, 'Please keep sharing this petition and telling people about Karen’s situation.'

ow.ly/HBTP50Wr48F

#MyalgicEncephalomyelitis #VerySevereME #pwME

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#MEAction Scotland@meactionscot · Jul 2

#MEAction Scotland@meactionscot · Jun 30

The DHSC confirmed that, 'the ME/CFS Final Delivery Plan is due to be published shortly, following the publication of the 10-Year Health Plan.' We are deeply disappointed at yet another delay and will continue to push for a firm date. ow.ly/Xfwg50WijVm #MillionsMissing

meactionscot's tweet image. The DHSC confirmed that, 'the ME/CFS Final Delivery Plan is due to be published shortly, following the publication of the 10-Year Health Plan.' We are deeply disappointed at yet another delay and will continue to push for a firm date.
ow.ly/Xfwg50WijVm

#MillionsMissing

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#MEAction Scotland@meactionscot · Jun 20

We have asked BBC News to change the headline of this article and replace Chronic fatigue with ME. ow.ly/ULr950WcVhG #MillionsMissing #pwME

meactionscot's tweet card. The University of Edinburgh says its findings on ME/CFS could pave the way for a "game-changer" diagnostic test.

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#MEAction Scotland@meactionscot · Jun 20

Exciting News!!! A biomarker would be a game changer for ME. Researchers are crying out for more funding to follow up exciting work. We need @wesstreeting & @AshleyDalton_MP to commit money to the ME/CFS Delivery Plan for the #MillionsMissing with ME. ow.ly/iXPo50WcGWr

meactionscot's tweet card. Discovery of signature patterns of molecules in the blood of ME patients may signify a turning point in diagnosis, typically made by ruling out other illnesses

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#MEAction Scotland@meactionscot · Jun 20

Breaking News! Good Morning Scotland interviewed Dr Sjoerd Beentje & #MEAction Scotland volunteer Karima Rahman about University of Edinburgh research that found changes in the blood between people with and without ME. Interview 7.14am. ow.ly/viHc50WcG5g #pwME

meactionscot's tweet card. Listen live to BBC Radio Scotland on BBC Sounds

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#MEAction Scotland@meactionscot · Jun 18

The APPG held its most recent meeting of the Parliament on Wednesday 14 March. This was the first joint-meeting with the APPG on Long Covid, also Chaired by Jo Platt MP. ow.ly/r0FR50WbqZr #MillionsMissing #pwME #pwLC

meactionscot's tweet card. The APPG held its most recent meeting of the Parliament on Wednesday 14 March. This was the first joint-meeting with the APPG on Long Covid, also Chaired by Jo Platt MP. The Rt Hon Stephen Timms was...

#MEAction Scotland@meactionscot · Jun 5

We have a limited amount of #MillionsMissing t-shirts left for sale! They're £15 & come in S (35-37"), M (38-40"), L (41-43") & XL (44-46") Fabric is cotton with Lycra in the collar. To buy, email [email protected] with your name, address & size, & we'll send a payment link.

meactionscot's tweet image. We have a limited amount of #MillionsMissing t-shirts left for sale!
They're £15 &amp; come in S (35-37"), M (38-40"), L (41-43") &amp; XL (44-46")
Fabric is cotton with Lycra in the collar.

To buy, email scotland@meaction.net with your name, address &amp; size, &amp; we'll send a payment link.

#MEAction Scotland@meactionscot · May 30

Success for #MEAction Scotland Campaign!! The @scotgov withdraws outdated guideline and endorses NICE. The Scottish Government has withdrawn the Scottish Good Practice Statement on ME/CFS. Thanks to @jenni_minto for her support. #MillionsMissing #MyalgicEncephalomyelitis

meactionscot's tweet image. Success for #MEAction Scotland Campaign!!

The @scotgov withdraws outdated guideline and endorses NICE. The Scottish Government has withdrawn the Scottish Good Practice Statement on ME/CFS.

Thanks to @jenni_minto for her support.

#MillionsMissing #MyalgicEncephalomyelitis

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#MEAction Scotland@meactionscot · May 30

Exciting news from @DecodeMEstudy. #MillionsMissing #pwME #DisabilitySOS #LongCovid

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#MEAction Scotland@meactionscot · May 21

Our thanks to everyone who took part in Blue Sunday, held a tea party or quietly enjoyed some tea and cake. We send special thanks to everyone who sent us a donation. 🧁🫖💙 #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness #BlueSunday2025 #TeaPartyForME2025

meactionscot's tweet image. Our thanks to everyone who took part in Blue Sunday, held a tea party or quietly enjoyed some tea and cake. We send special thanks to everyone who sent us a donation. 🧁🫖💙

#pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness #BlueSunday2025 #TeaPartyForME2025

#MEAction Scotland@meactionscot · May 17

Tomorrow's a key event in #MEAwarenessWeek - Blue Sunday, the tea party for ME 🫖 Run by Anna Redshaw for 13 years 💙 More info on Anna's website: the-slow-lane.com/blue-sunday-20… We would be so grateful if you choose to support us by selecting #MEAction UK on the donations page. Thanks!

meactionscot's tweet image. Tomorrow's a key event in #MEAwarenessWeek - Blue Sunday, the tea party for ME 🫖 Run by Anna Redshaw for 13 years 💙

More info on Anna's website: the-slow-lane.com/blue-sunday-20…
We would be so grateful if you choose to support us by selecting #MEAction UK on the donations page. Thanks!

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#MEAction Scotland@meactionscot · May 16

Thanks for your continued support @SueJWebber 🙂

SSue Webber MSP 💜💙@SueJWebber · May 16

Earlier this week I spoke at the Millions Missing event outside Parliament in support of @MEActionScot & the fantastic work they do. ME is a debilitating disease which affects c58,000 people across Scotland. It’s vital we continue to raise awareness of ME!

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