Amanda Coughlan
@mandacoughlan
Co-Lead of paediatric advocacy group for children with spina bifida and/or hydrocephalus @sbh_pag Proud mam, healthcare, special needs and disability advocate
@SimonHarrisTD is it just words & rhetoric that my boys spine is so twisted drs can't see what's happening in his chest via xray so he had to have a CT last week in hospital, I spoke to @MaryLouMcDonald I am the mother of a failed child his name is TJ. Stop failing his friends.
#orphanreport
3yrs today I made my way to Dublin to plead with this committee. In 13 years our son has never had access to a multi disciplinary clinic for Spina Bifida. Nothing has changed. The neglect of our children continues. @SBHIreland @HSELive @bwhelan100 @OCO_ireland @CHIatCrumlin
We stand with the Spina Bifida & Hydrocephalus Paediatric Advocacy Group. @SBH_PAG #BackUs As parents, we had hoped Lucy Nugent’s appointment as CEO of @CHI_Ireland would mark a turning point. Instead of acknowledging harm and committing to transparency, CHI doubled down ……
Grateful for the support. IASW supports the calls of families/family representative groups for transparency & reform in @CHI_Ireland iasw.ie/Statement_Chil… There absolutely needs to be an inquiry, ourselves & @scolionetwork ready to draft terms @CarrollJennifer
My son is one of an undisclosed number of children referred to as a "Crumlin Orphan " he deserved better and still does , we deserve an inquiry into why this was allowed to transpire. @CarrollJennifer @MichealMartinTD @BernardGloster @HSELive
Children with Spina Bifida now labelled as the ‘Crumlin Orphans’ with an unknown number who will be left infertile from lack of treatment. Are they really still refusing that public inquiry??
"👀 TikTok @CHI_Ireland, we won't sit back and watch this charade unfold ! The issue of 'medical orphans' deserves serious attention, not just theatrical apologies. No more sweeping it under the rug! We will be present at the health commitee with families you have failed .
It’s simple: either @CHI_Ireland @CarrollJennifer publish the report or it will be done for you This must happen before CHI’s Public Relations–prepped performance at the Oireachtas Committee on Thursday Underestimate Irish mammies at your peril #backus @SBH_PAG @scolionetwork
CHI have purposefully concealed information about the suboptimal care children received and denied them access to medical care until they aged out of a dysfunctional system. We have been saying it for years CHI cannot be trusted they do not value accountability or transparency
Children’s Health Ireland cannot be trusted when they hide information imt.ie/opinion/commen…
It is our understanding that @CHI_Ireland terms of conditions of employment prevent staff from commenting on the scandals We’ve seen how CHI treat vulnerable children wonder how they treat staff?
OUR NEW EDITORIAL: Mounting concerns for Children’s Health Ireland medicalindependent.ie/comment/editor… @CHI_Ireland @scolionetwork @SBH_PAG
"The state has focused on misappropriation of funds but it has forgotten the misappropriation of childrens lives".@CarrollJennifer your concern must now be matched with action. A system that refers to children as medical orphans & continues to neglect them is not fit for purpose
🚨 “Failure to provide procedures went against best practice procedures & could result in infertility or cancer, the inquiry found” We call on @CarrollJennifer to instruct the CHI Board to publish a redacted report in the public interest @scolionetwork #MedicalOrphans #backus
Relentlessly , consistently with one goal getting things done
How do you eat an elephant? One bite at a time. And I’d say this elephant’s is down to a few toes, we will keep chomping 🐘🍴🦷🏥💪♿
Notice @MichealMartinTD you failed to answer. “Why are these surgeons still operating today? “ How can any parents consent to a hip osteotomy with confidence? We are not reassured. We are terrified.
Leaders' Questions - Wednesday, 28th May 2025 A Chilling example of what the Hip Surgeries Scandal is about- @paulmurphy_TD Calls for the inquiry into the Hip Surgery Scandal to be extended to 2002 #Dáil #LQs #HipScandal
Sending love & support to Maeve and her family. I can't begin to imagine the stress, worry & strain they are under . Maeve should of had access to timely care at home , they should not of had to travel half way around the world to help their beloved daughter. Please support ❤️
gofundme.com/f/maeve-throug… Fundraiser for Patricia O'Mahony by Cathriona Jones : Help Maeve's rehabilitation costs after a stroke in New York 12-year-old Maeve travelled to NYC for #scoliosis surgery after being failed by Ireland’s waiting lists. She suffered a rare stroke post-op…
Thanks to @wereontheditch for the opportunity to comment on their recent publication of the elusive CHI report. We've shared our full statement in the article. Here’s a brief summary of our thoughts. We'll continue as always to advocate for and support these families.
The lies won't wash , why is @CHI_Ireland refusing to make the dixon report available even to the @HSELive , I predict more issues highlighted in dixon report and CHI are again found wanting @BernardGloster @CarrollJennifer @MichealMartinTD
Oireachtas Health Committee 19/6/25 The treatment of children with dysplasia and scoliosis related matters. Abject failure of Leadership at Children's Health Ireland #CHI @marie_sherlock #DicksonReport #CHI #HIPScandal
This statement "an identified cohort of patients now having access to specialist care" is a blatant lie. @CHI_Ireland had no knowledge of this cohort were under their care in 2021 & they expect us to believe they are now aware, they are totally deluded rte.ie/news/politics/…
As predicted, the sanitized 2021 report from @CHI_Ireland overlooks the harm to children labeled as "medical orphans." This whitewash fails to prioritize their needs, and no families have been contacted. @CarrollJennifer, are you going to allow this to stand? We won't.
A confidential, internal report into a children's hospital in Dublin uncovered "bullying", "significant risk" and "serious issues of concern" rte.ie/news/politics/…
Another CEO who'd rather bury what has happened to children , than actually try help them .
The new @CHI_Ireland boss told staff it's “dispiriting” when leaks happen—like the 2021 report. This week, the Dáil Health Committee will ask what CHI did about that now-infamous report, which it still hasn’t answered. thetimes.com/world/ireland-…
If @CHI_Ireland think they will drop their santized version of this unpublished report on Friday after the Health commitee they can absolutely think again. We will not allow them to minimise the harm documented to children in this report. #MedicalOrphans
"I am a parent of a child in CHI". I must now ask @CarrollJennifer: Would you accept the care given to children labeled as 'medical orphans' in this unpublished report for your own child? It's time for accountability to take center stage @CHI_Ireland thejournal.ie/redacted-versi…
Also worth noting how CHI is still refusing to answer questions weeks after the Sunday Times revealed a suppressed 2021 report showing a consultant exploited the waiting list system and delayed operations for sick children by up to three years. thetimes.com/world/ireland-…