The Scoliosis Advocacy Network #BackUs

A gentle reminder - “by the end of this year (2017) no child will wait longer for a scoliosis procedure than 4 months”. Aug 2018 and children continue to languish on lists. Do you still feel ashamed @SimonHarrisTD ?

#WaitingLists #Scoliosis #SpinaBifida @ClarCahill @scolionetwork @SBH_PAG @davidcullinane A ministerial “legal order” & €11.5 million last Dec/Jan for “outsourcing surgical spinal initiatives” - yet here we are again, Children suffering, their Parents feeling abandoned ⬇️…

This is a deliberate policy of starvation, 1000's of trucks are waiting at the border with food to feed the starving but Israel refuses to let it in UN agency says 6,000 lorries' worth of aid ready to enter Gaza bbc.co.uk/news/live/c0k7…

Devastating. 💔 Amelia's family is entitled to transparency respect and accountability

We know parents whose children have died. In our advocacy community, they want the same thing: honesty, answers, respect. We’ve spoken with Suzi, whose daughter Amelia died on 13 June 2024. A letter from CHI saying Amelia was “fine” arrived the day of her funeral. Suzi has asked…

Thinking of Clodagh Hawe, her boys & her incredible sister Jacqueline today. I hope the family of the three murder victims in Fermanagh receive sensitive trauma informed support & vital information, something Jacqueline and her mother did not get from gardai, media or parish.

The inquiry will examine the historical and current context of sodium valproate use through three distinct strands. gov.ie/en/department-…

Bureaucracy and buck- passing on steroids! Here's a template using chatGPT, after a few minutes work adjusting its rudimentary understanding of the Irish public health delivery system in respect of children, prepared while watching an amazing match... Thoughts, HSE?

Misplaced, lost or shredded?

This is not just a matter of GDPR compliance … it also raises serious concerns about patient safety. irishtimes.com/health/2025/07… @CcoHse @BernardGloster @CarrollJennifer @KateOFla @OCO_ireland @IHCA_IE @IMO_IRL @INMO_IRL @chiefnurseIRE

Rain falls ☔️ and a national children’s hospital floods. How? Blocked drains? Poor maintenance? Crumbling infrastructure? No context. No detail. No accountability. What flooded? Who was affected? Why did it happen? @CHI_Ireland @HSELive @roinnslainte @BernardGloster…

Raised grave safeguarding risk for children in @HSELive West North West @HSE_West_NWest - where National Guidelines & Instructions on Mandatory Reporting not fully circulated -Risk of predatory paedophilia compounded when Clinicians who raise concerns are targeted for retaliation

The incident, which took place in May 2023, was carried out by a male healthcare worker who exposed himself and kissed and rubbed up against a male colleague. No children were present at the time. thetimes.com/world/ireland-… Healthcare worker sues CHI over sex assault by colleague…

On it goes,round & round, until people move,resign, promotion,government changes,nothing changes,maybe the words,the sincere promises,the letters that seem to convey concern as they pass it on once again to the appropriate dept to go thro the bureaucratic process of rinse &repeat

And, our government off on their holibops! Unbelievable!! Shame on them!!

This is not an aberration. This is the system operating precisely as designed. Questions of oversight to Department of Transport sent directly to daa and AirNav. Inadequate and misleading answers forwarded by Department officials without question. Zero oversight by design!

A child disability complaint just received disclosed that the wait times for service provision on the CHO DNCC (based in Blakestown) has now reached 6 years. At any level that is just a scandalous dereliction of care.

🔍 The HSE is failing in its oversight of CHI. There is no real accountability. 📣 Families have raised serious concerns directly with HSE leadership, including CEO Gloster. @BernardGloster @CcoHse @KateOFla 📤 Instead of investigating, the HSE sends these concerns back to CHI…

The cost of establishing outsourcing pathways - time, legal processes, hospital travel logistics, cross-border care agreements - must be enormous. And yet, the opportunity has been squandered by the sheer incompetence of @CHI_Ireland. A national disgrace. Since 2024, only 2–3…