Himmat

I miss: - sitting - standing - walking - showering - talking on the phone - reading - thinking - living #severeME

This is probably too niche, but does anyone know if any neurologists in Canada or in the PNW/Seattle are experienced with inflammatory neuropathies that have ganglioside antibodies or IgG4, in context of #NeuroSjogrens + Autoimmune SFN/AAN (autonomic neuropathy)? Or really,…

Photo from our balcony taken by mum. The annual blooming of her brahmakamal plant. Only blooms for a single night once a year.

I haven't found an antihistamine that works for me yet And I'm starting to have allergic reaction to my cat I don't want to have to give her away I cannot tolerate cetirizine and Levocetirizine I hope some other medications will work #MCAS

ok i need actionable advice on how to safely go about regular at-home saline IVs: how to access, who to approach how to do what, just literally how it works in australia - eg. a nurse from ? installs a cannula how often ? then can I plug in saline bags myself at home or? - TIA!💕

Hypermobility without the ability to do physio is pure agony. My left scapula is so unstable and painful and affecting nerves and is making me want to rip my arm off. The floating rib on that side is agony too. My left side is out of alignment and I can just whimper quietly.

This is no longer true for me and i don't know if there are others like this. I actually feel my "best" (lol) in the afternoons.

Feel like i should try ultrasound or red light therapy for my muscles but unsure which would be more effective (it at all). Don't have the brain capacity to research this.

Woah 😧 neat!

From the POTS subreddit. One of my many regrets is not seeing a vascular surgeon for extensive testing when it was still physically possible for me to do it. But also, wild that none of the many neurologists or cardiologists suggested i see one.

Does high thrombin time and normal fibrinogen indicate #microclots have gone? Desperately looking for an answer as I’m being told to stop #nattokinase and I’m unsure of the science 🙏 #TeamClots #LongCovidKids

I got my period for the first time in two years last week, and ever since then I feel horrendous, like I’m going to lose consciousness at any time. I keep passing out/falling asleep against my will. Does anyone have any ideas?

It’s so strange imagining people with fully functioning bodies. It stuns me how much a healthy person can accomplish in a day. Hearing my aunt talk about running errands, working, and traveling exhausts me just to think about. It scares me how foreign the idea seems.

Reddit is so horrifying bc you can go to a sub for people with health problems and see tons of people desperate for help, strategizing on how to be taken seriously, and then you go to a doctor sub and it's full of professionals talking about hysterical women and blue hair.

Five years ago. A different life. Harder and harder to remember.

#pwLC #pwME #NEISVoid has anyone undergone VO₂ Max testing? I see this is an option at a medical center I go to. Trying to figure out if this testing is worth doing.

People who dissolve the contents of LDN capsules to take super low doses, do you also have a fair amount of sediment at the bottom? My understanding is those are fillers that didn't dissolve and the naltrexone itself dissolves, but I'm not sure anymore.

Anyone have a good resource I can read or watch about the basics on low dose Rapamycin?