Andre Strydom
@drandrestrydom
Research #psychiatrist #DownSyndrome #Alzheimers disease #genetics #intellectualdisabilities #mentalhealth @londowns @KingsIoPPN @aliveleder @T21RS
Concerning rumours that annual health checks for people with a learning disability in primary care may be de-prioritised. This is not in keeping with a focus on prevention! @NHSEngland @DHSCgovuk @LdSenate @rcpsych @rcgp
NEW: Learning disabled people die 20+ years earlier than the general population. This is why. Myles was 31. He had a totally treatable blood clot yet a coroner found his medical treatment neglectful, complacent & dismissive. I spoke with his family. itv.com/news/2025-07-1…
Shocking accounts of avoidable deaths. Great reporting by Ruben Reuter @Channel4News @AliveLeder channel4.com/news/is-govern…
The LeDeR dataset is complex and the report requires and benefits from checks. But the process could do with being more streamlined and better defined
What are the data issues, Andre? Can you say as one of the main authors?
About #LeDeR report for 2023: NHSE reportedly said “we are committed to publishing this report soon after Parliament returns”. This means September at its earliest @AliveLeder itv.com/news/2025-07-1…
What the @lengreview doesn’t seem to answer is: What gap or need are PAs filling that is not better filled by a doctor or other allied health professional Why a PA over a qualified doctor?
#Oliverscampaign 🕰️ The continued delay in publishing the #LeDeR report is unacceptable. Every day of silence risks more lives of people with learning disabilities & autistic people. Transparency matters. Accountability matters. Lives matter @AliveLeder
Where is the LeDeR report? People are dying up to 30 years younger, and these deaths could be preventable. Share the report to help create positive change! #LeDeRReport #Inequality #Inequity @NHSEngland @WesStreeting @AliveLeder #SelfAdvocacyWorks
Strongly disagree - surely those with complex needs require specialist support rather than generic cookie-cutter one-size-fits-all care that is actually only suitable for low complexity presentations? This generalist NHS and @rcpsych approach results in poor care to many
We have many specialist services but no generic services. It’s inevitable that those who are the poorest with multiple conditions aren’t seen, whereas those with individual conditions are seen. It sets a precedent for people being rotated around services, without being seen, akin…
Most doctors now have no confidence in the GMC. So today we announce the BMA's NEW register for all doctors. Sign up today to show your support for change. activism.bma.org.uk/page/172664/pe… #BMAARM25
Today I voted in favour of the assisted dying bill. Here’s why.
We are being asked about the 2023 #LeDeR report. We appreciate the concerns about delayed publication (due to election year, NHSE changes etc), but there are also many checks to be done by NHSE and DHSC. NHSE competed their checks and the report is with DHSC.
Not just too pricey, but also risk too high and benefit too small for donanemab and lecanemab bbc.com/news/articles/…
LeDeR data: 15% of learning disability bowel cancer deaths occurred under age 50. Current screening starts at 54. Our research recommends starting at 45 for people with LD. See our international comparison, Bowel cancer in people with LD: tinyurl.com/y83n5fyj @KingsIoPPN
#LearningDisabilityWeek LeDeR research has uncovered critical health inequalities affecting people with a learning disability. This #LearningDisabilityWeek, we're sharing our deep dives which can inform improvements to care. @KingsIoPPN #DoYouSeeMe #LeDeR #LDWeek2025
Pleased to be at the launch of the updated guidance applying latest research findings on #Alzheimer #Downsyndrome #dementia @LonDownS @KingsIoPPN
Launch revised joint guidance 2025 #Dementia in #learningdisability @BPSFacID @rcpsych @DHSCgovuk @NHSEngland @drandrestrydom @InderSawhney1 @alzheimerssoc @mencap_charity images.app.goo.gl/Qr8GFFRAEajdfi…
Disappointing that the #DownSyndromeAct guidance is yet further delayed, but this provides an additional opportunity for the @DHSCgovuk to listen to ongoing concerns about the content & work productively with stakeholders to create robust & meaningful guidance, now long overdue.
Minister @SKinnock explains why the consultation on the Down Syndrome Act 2022 - pioneered in @UKParliament by @LiamFox & @BaronessHollins has been delayed. @APPGDS @DamianHinds @DownSyndrome @DownSyndromeLPL @HumanRightsCtte @LordSpeaker @CommonsSpeaker @HouseofCommons
State of the art - blood based biomarkers for Alzheimer’s dementia in ppl with Down syndrome. Reliable biomarkers could improve detection - important for research and clin practice. PhD student Yajing Zhou’s systematic review - alz-journals.onlinelibrary.wiley.com/doi/10.1002/al… @drandrestrydom @KingsIoPPN
We are hiring! @KingsIoPPN @KingsCollegeLon Post-doc Research Associate (my.corehr.com/pls/kclrecruit…) and Research Assistant (my.corehr.com/pls/kclrecruit…) to work with us on a new data project to improve care for ppl with learning disability and autistic people. Please RT / get in touch!
Visit to the Palace of Westminster on a lovely spring day today for a House of Lords committee meeting on progress with the 2009 UK Autism Act
