Learning from Lives and Deaths - LeDeR researchers

@AliveLeder

Our team aims to help improve healthcare for people with a learning disability and/or autism. We're from KCL and share work with researchers from UCLan + KU.

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Joined January 2022

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Learning from Lives and Deaths - LeDeR researchers@AliveLeder · Nov 30, 2023

The #LeDeR2022 report which investigates deaths of people with a #LearningDisability is published today. The report finds people with a learning disability are still dying decades earlier than the general population and 42% of deaths were “avoidable”. 👇 kcl.ac.uk/research/leder

AliveLeder's tweet card. The latest annual LeDeR report in collaboration with our academic partners on behalf of NHS England.

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Learning from Lives and Deaths - LeDeR researchers Retweeted

Andre Strydom@drandrestrydom · Jul 16

About #LeDeR report for 2023: NHSE reportedly said “we are committed to publishing this report soon after Parliament returns”. This means September at its earliest @AliveLeder itv.com/news/2025-07-1…

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Learning from Lives and Deaths - LeDeR researchers@AliveLeder · Jun 20

Deaths from pneumonia in people with LD are unnecessarily high. Key risk factors: poor mobility, swallowing difficulties & heart conditions. Our research shows these vulnerable groups need proactive monitoring, not reactive care tinyurl.com/5n8pv6yh @KingsIoPPN #DoYouSeeMe

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Learning from Lives and Deaths - LeDeR researchers@AliveLeder · Jun 19

Our open-access research examines medication-induced constipation in people with learning disabilities, a preventable risk affecting healthcare outcomes. Read the full paper: journals.sagepub.com/doi/10.1177/17… #LeDeR #DoYouSeeMe #LDWeek2025 @KingsIoPPN

AliveLeder's tweet card. Constipation is common in people with intellectual disability, with case reports of associated deaths. Risk factors include lifestyle factors, health conditions...

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Learning from Lives and Deaths - LeDeR researchers@AliveLeder · Jun 18

LeDeR research reveals 50+% of people with a learning disability were prescribed multiple constipation-causing medications. This serious issue often goes unrecognised and untreated. Full findings in our deep dive on constipation: tinyurl.com/hkrn522d @KingsIoPPN #DoYouSeeMe

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Learning from Lives and Deaths - LeDeR researchers@AliveLeder · Jun 17

LeDeR data: 15% of learning disability bowel cancer deaths occurred under age 50. Current screening starts at 54. Our research recommends starting at 45 for people with LD. See our international comparison, Bowel cancer in people with LD: tinyurl.com/y83n5fyj @KingsIoPPN

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Learning from Lives and Deaths - LeDeR researchers@AliveLeder · Sep 16

Remember to submit abstracts to Seattle Club conference - deadline this Friday 20th Sept! See link in tweet below. You must be named on an abstract to attend - especially good for PhD students and ECRs!

RRory Sheehan@dr_rorysheehan · Aug 21

We’re hosting the 21st Seattle Club Conference for Research in Intellectual & Developmental Disabilities @KingsCollegeLon on 12-13 December. Great opportunity to share your work & meet other researchers - submit abstracts by 20 Sept, bookings open Oct 📝🎟️ estore.kcl.ac.uk/conferences-an…

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Learning from Lives and Deaths - LeDeR researchers Retweeted

The Victoria & Stuart Project@VictStuProject · Aug 29

After 2 year of hard work, we said goodbye and thank you to Leon today. Here are his amazing reflections youtu.be/8P-6Z6rRlm8?si… Leon, you’ve been wonderful!!!

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Learning from Lives and Deaths - LeDeR researchers@AliveLeder · Aug 29

Endings are hard. So pleased Leon will be part of the Advisory Board of our next study. Thank you to a fabulous colleague!

TThe Victoria & Stuart Project@VictStuProject · Aug 29

After 2 year of hard work, we said goodbye and thank you to Leon today. Here are his amazing reflections youtu.be/8P-6Z6rRlm8?si… Leon, you’ve been wonderful!!!

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Learning from Lives and Deaths - LeDeR researchers@AliveLeder · Aug 29

Excited to be facilitating this workshop about our toolkit tomorrow!

TThe Victoria & Stuart Project@VictStuProject · Aug 29

Look what just came in the post? Our Let's Talk About Funerals @uk_beyondwords resource, beautifully printed by @weareimpress, all ready for a workshop with @MarieCurieEOLC tomorrow. We are excited to share our toolkit with and learn from Marie Curie staff!

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Learning from Lives and Deaths - LeDeR researchers@AliveLeder · Aug 30

Fascinating and important paper. How “not doing” more medical interventions is part of “doing” in end of life care - and how palliative care staff intervene for the patient’s benefit, different from conventional medical interventionism @drkathrynmannix

EErica Borgstrom@EricaBorgstrom · Aug 28

*New article out* Not intervening as a form of care: Negotiating medical practices at the end-of-life. From the @formsofcare with @SimonCohn & @Annelie3ssen in Medical Anthropology Quarterly. Open Access! anthrosource.onlinelibrary.wiley.com/doi/10.1111/ma…

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Learning from Lives and Deaths - LeDeR researchers Retweeted

Deborah Chinn@deborah_chinn · Aug 21

Please contact organising team for more information @deborah_chinn @dr_rorysheehan @AndreaBruun

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Learning from Lives and Deaths - LeDeR researchers Retweeted

Deborah Chinn@deborah_chinn · Aug 21

Call for proposals for the UK 2024 Seattle Club Conference for intellectual and developmental disability research is now open! Go to tinyurl.com/326wkv6m to submit a proposal. Two themes this year - health inequalities and inclusive research.

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Learning from Lives and Deaths - LeDeR researchers Retweeted

Rory Sheehan@dr_rorysheehan · Aug 21

Keynotes by @drandrestrydom and @WalmsleyJan - not to be missed! Please share details with students and research teams - everyone welcome. Contact us for more details: @deborah_chinn @AndreaBruun @dr_rorysheehan

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