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@charlottehvrn
life on pause because of very severe illness (ME/CFS, PSSD, long covid, pots, MCAS…) -24 pls help me access treatment abroad 😞France is abandoning its children
My very lovely friend @992tobias put a voice on my suffering and started a new GFM campaign for me. A bit more than a month after PLEX I crashed hard (probably overdid it + my aabs have grown back fast). I need a bit of love and magic now. Please share😔❣️ gofund.me/e9083b63
I was given trastuzumab for metastatic cancer, along with chemo. After five years of Long Covid, a cancer diagnosis felt like a death knell. However, one year since starting treatment, I have few signs of Long Covid. (And no cancer too!) It’s like waking up from a nightmare!
SSRI Withdrawal Is Mitochondrial Dysfunction Installment seven in our series on understanding the truth about SSRIs. 🧵
RIP Ozzy Osbourne (1948 – 2025). As a global rock icon, Ozzy inspired millions with his music, but even more profoundly, he moved the Parkinson’s community by bravely sharing his diagnosis and becoming a pioneer in the conversation around advanced therapies, including stem cell…
In these dark times, #MutualAid is more important than ever. Add your needs by commenting on *this* post. ❤️Like, 🔄share, and if able - 💲donate! #Crowdfunding #ClearTheList #ChronicLoaf #MutualAidBoost #MutualAidThread #LongCovidAid ALL ARE WELCOME HERE! Please, no…
I'm not asking for rent, or to buy me an a/c. I'm just asking for necessities to survive the heat wave in a tent in Texas as a queer disabled person with long covid immune deficiency receiving no government assistance. 💸gofundme.com/froglet80-gfm ☕ko-fi.com/froglet80…
RIP to the one and only Ozzy Osbourne. There will never be another like him.
I’ve spent 3 years photographing people with #MECFS, a condition I’ve lived with since 1987. 50 people. Invisible & incurable illness. The work shows at Oxo Tower in September. Updates & book info here: tinyurl.com/58khuv8z #InvisibleIllness #PhotographyForChange
I feel I’m facing a wall lately. I tried so hard within my energy limits to spread awareness and asked for help to share my GFM to so many medias in my country who didn’t care. I just received my last no. Most of the time they just ignore the messages. I asked my family to sell…
Quelle bonne idée d’avoir enlevé les maladies auto-immunes et les troubles de la coagulation du spectre du Covid long sur sante.fr, ce qui va à l’encontre de toute la science dispo sur le sujet, n’est-ce pas ? #CovidLong
Chronic inflammation in Long COVID relationship to autoimmune diseases 🔥Reminder: Long COVID drives autoimmune diseases through chronic inflammation and immune dysregulation. ➡️Many studies have suggested that systemic chronic inflammation caused by residual viral components…
For anyone who doesn't know what ME/CFS is, it's a disease that literally drains the life out of you, robbing your body of necessary energy. If you try to do too much (thinking, reading, moving, etc), your body reacts like it's been poisoned. ME/CFS can kill you. #CureMECFS
Now Bridget is gone. This is why you need to take people seriously when they’re struggling. Heartbreaking
I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS
I hate every minute of my life. This is torture. #MECFS
Thinking of my fellow #SevereME sufferers, for whom summer doesn’t mean beach trips/beer gardens/ice cream in the park/joy & feeling good. Instead it’s just another day of being bed-locked in a dark room whilst enduring unbearable suffering. You are not alone ❤️ #MECFS #LC
‼️ Han sido necesarios 5️⃣ años de lucha para ser visibles, para existir ante las administraciones. El Ministerio de Sanidad @sanidadgob ha reconocido hoy por primera vez la #covidpersistente como una enfermedad crónica que requiere un abordaje prioritario. rtve.es/noticias/20250…
In tiefster Trauer und Betroffenheit teile ich, Kai (@kai_hrmth), diese Nachricht
I always tell myself I’m forever 21. Can’t realize I’m already 24 and half, spent a year in the dark, unable to do anything and thought I would die anytime. Finally went to Germany, spent all my money, improved a bit, getting worse again, and now what. So absurd.