Alisontomyradioooo

I‘m incredibly proud of what a small but determined group of people can do. If you’ve ever contributed then you’ve helped fund actual biomedical research into #myalgicE #positiveresearch £900k We did it for ourselves. @LetsDoIt4ME Jo Jan Paul 💙Amazing ldifme.org/2019/07/31/8-y…

My sister is here and found this little fella alone In our garden in daylight. Dropping him at the vets tomorrow where someone who works there takes in hogs 🦔

.@Se_Railway, what is your policy about preventing bicycles in the wheelchair space & aisles? As a wheelchair user I often have to sit in the door area because of this. It introduces unnecessary risk — depriving me of a crash-tested spaces & leads to people climbing over me.

I can’t even watch.

This snapshot of the MRC's "CFS/ME" Research page is fascinating reminder of where we were just over 20 years ago, and how much (or little) has changed with the publication of the current FDP x.com/arisonsned/sta…

Has anyone here with #severeME tried full leg compression devices, like this one? ⬇️ Would appreciate RT/repost if you can so I get eyes on this post. 🙏🏻🙏🏻🙏🏻 #MECFS #LC #MyalgicEncephalomyelitis

#OTD in 1984, George released his first solo single 'Careless Whisper' 🎶 “I like to have a line or two that make your ear cock up when you hear them on radio. Like ‘guilty feet have got no rhythm’, How many put a word like ‘feet’ in a love song? It’s hardly a romantic word!” 😂

Having @magnetoJJ come visit us and take pictures gave Angus so much. Validation of being seen. The images portrayed him as he was through a segment of time that had been his life for the last 9-10 years something rarely seen or understood

Did I mention Pizza Oil is BACK 🌶️🍕 worldfamoushotsauce.co.uk/products/hot-p…

This is one of my mini bouquets I made today, waiting to be collected 🌸💐 Hope you had a good day, I’ll catch up tomorrow. Enjoy your evening ❤️

Right. I‘m going to look at some babies, flowers, dogs, and kittens and calm down a bit. Hopefully. No point in being angry at pointless people. What a mess.

Dr Alexis Gilbert has outlined what the Final Delivery Plan for ME/CFS *should* have looked like (on IG): instagram.com/p/DMa8sjPMzd2/

What is striking in the release of The ME Delivery Plan, is the strategic silence of @wesstreeting - no comment - no mention - no press - not even a tweet or RT Yet, it's under his watch, this echo in the void tells us much about the NHS's priority for ME.

The German association for Neurology just released a statement on ME/CFS, saying there have been no consistent immunological factors identified, and research should focus more on psychosomatic diagnostics and treatment. And not 1 word on dysautonomia. dgn.org/artikel/zum-ak…

Fuck labour, fuck the tories you bunch of neo liberal pricks. How you can continue to let us exist like this!? This isn’t living.