ME/CFS Research Network

@TheMECFSNet

@NIH-funded network that fosters collaborative research in partnership with individuals and advocacy groups to improve the diagnosis and treatment of #MECFS.

Joined April 2022

27Following

758Followers

ME/CFS Research Network@TheMECFSNet · Jul 21

🔎Looking for accurate summaries of published #MECFS research? Check out the ME/CFS Research Chatbot! It relies solely on PubMed abstracts. Also access data table with abstracts. S/O to Tracy Duvall for creating this new tool!

TheMECFSNet's tweet image. 🔎Looking for accurate summaries of published #MECFS research? Check out the ME/CFS Research Chatbot! It relies solely on PubMed abstracts. Also access data table with abstracts. S/O to Tracy Duvall for creating this new tool!

118

ME/CFS Research Network@TheMECFSNet · Jul 18

📢Research news! New study from #MECFSnet partners @CornellMECFS. Post-exercise changes in extracellular vesicles reveal biological disruptions in men with #MECFS. Read full study! ow.ly/WK6150Ws3Ex

TheMECFSNet's tweet card. EVs were isolated from plasma of ME/CFS patients and healthy controls at baseline, and 15 min and 24 h postexercise. Untargeted proteomics revealed dysregulation in energy metabolism, the complemen...

182

ME/CFS Research Network@TheMECFSNet · Jul 4

ME/CFS Research Network@TheMECFSNet · May 26

🇺🇲Today we honor and remember the brave men and women who made the ultimate sacrifice for our country.

ME/CFS Research Network Retweeted

Solve ME/CFS Initiative@PlzSolveCFS · Apr 30

🎥 The recording of "Investigating Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in #MECFS & #LongCOVID," w/panelists from @Selin Lab, @HiFiBio, & patient reps @Rivkatweets & Dr. Megan L. Fitzgerald, is online now. Watch here: youtu.be/2DQZp48fyek

2.0K

ME/CFS Research Network Retweeted

Open Medicine Foundation@OpenMedF · Apr 18

🤝 Accelerate Research: OMF StudyME is a free global participant registry bridging the gap between individuals living with #MECFS, #LongCOVID and related diseases, and the researchers working tirelessly to uncover effective treatments. 👉Sign up today: omf.ngo/studyme/.

707

ME/CFS Research Network@TheMECFSNet · Apr 17

🗓️Mark your calendars for these important #MECFS events!

ME/CFS Research Network@TheMECFSNet · Apr 11

✨Friday Fact for Researchers! Data matters. Biospecimens matter. Explore both, thanks to the MCAM dataset on searchMECFS.org. Explore the data: plasma, serum, DNA, RNA, and saliva on over 800 participants. #MCAM #MECFS Apply for access: ow.ly/JQ5I50UmvBJ

TheMECFSNet's tweet image. ✨Friday Fact for Researchers! Data matters. Biospecimens matter. Explore both, thanks to the MCAM dataset on searchMECFS.org. Explore the data: plasma, serum, DNA, RNA, and saliva on over 800 participants. #MCAM #MECFS

Apply for access: ow.ly/JQ5I50UmvBJ

ME/CFS Research Network@TheMECFSNet · Apr 7

✨Data drives discovery! CDEs are making #MECFS research stronger by improving data consistency & sharing. Learn how CDEs are transforming ME/CFS research. openaccessgovernment.org/article/common…

TheMECFSNet's tweet image. ✨Data drives discovery! CDEs are making #MECFS research stronger by improving data consistency &amp; sharing. Learn how CDEs are transforming ME/CFS research.

openaccessgovernment.org/article/common…

267

ME/CFS Research Network@TheMECFSNet · Apr 4

📢Attention researchers! Data from @CornellMECFS's study on autoantibody immune profiling in #MECFS is available now on #mapMECFS. #MECFSnet Apply for access today! ow.ly/aYha50VuV4v

TheMECFSNet's tweet image. 📢Attention researchers! Data from @CornellMECFS's study on autoantibody immune profiling in #MECFS is available now on #mapMECFS. #MECFSnet

Apply for access today! ow.ly/aYha50VuV4v

403

ME/CFS Research Network@TheMECFSNet · Mar 27

📢Research news! New study from #MECFSnet partners @CornellMECFS explores the role of autoantibodies in #MECFS. Learn what they found. mdpi.com/1422-0067/26/6…

ME/CFS Research Network@TheMECFSNet · Mar 21

✨New article! Better data means better treatments. DYK CDEs help researchers work together? More collaboration = more progress. Learn how! #MECFS #DataForDiscovery #MECFSnet openaccessgovernment.org/article/common…

TheMECFSNet's tweet card. Standardizing data collection in ME/CFS research through Common Data Elements is a crucial step toward improving diagnosis, advancing treatments, and fostering collaboration across studies to...

ME/CFS Research Network@TheMECFSNet · Mar 15

Today we raise awareness, but every day we work toward a future with better treatments, understanding, and hope. Together, we can make a difference. 💙 #LongCOVID #MECFS #MECFSnet

TheMECFSNet's tweet image. Today we raise awareness, but every day we work toward a future with better treatments, understanding, and hope. Together, we can make a difference. 💙 #LongCOVID #MECFS #MECFSnet

ME/CFS Research Network@TheMECFSNet · Mar 14

✨🌙Sleep disturbances like insomnia, hypersomnia, and fragmented sleep are common in #MECFS. This #WorldSleepDay, let’s do our part to support better research and understanding.

TheMECFSNet's tweet image. ✨🌙Sleep disturbances like insomnia, hypersomnia, and fragmented sleep are common in #MECFS. This #WorldSleepDay, let’s do our part to support better research and understanding.

111

ME/CFS Research Network@TheMECFSNet · Feb 28

🌍✨ Today is #RareDiseaseDay! DYK #MECFS affects up to 3.3 million Americans? It’s time to shine a light on ME/CFS and advocate for more research, support, and care. 💙 #RaisingAwareness

TheMECFSNet's tweet image. 🌍✨ Today is #RareDiseaseDay! DYK #MECFS affects up to 3.3 million Americans? It’s time to shine a light on ME/CFS and advocate for more research, support, and care. 💙 #RaisingAwareness

ME/CFS Research Network Retweeted

Bateman Horne Center@BatemanHorne · Feb 28

ME/CFS may be one of the most common diseases you've never heard of. Raise awareness, spread knowledge, and support those living with it. Tag us to expand your reach! Watch Mito video: loom.ly/POsbmOc

1.0K

ME/CFS Research Network@TheMECFSNet · Feb 21

✨This National Caregivers Day we recognize the incredible dedication of caregivers supporting loved ones with ME/CFS. You are an inspiration!✨

TheMECFSNet's tweet image. ✨This National Caregivers Day we recognize the incredible dedication of caregivers supporting loved ones with ME/CFS. You are an inspiration!✨

ME/CFS Research Network@TheMECFSNet · Jan 31

✨ICYMI: The Multi-Site Clinical Assessment of #MECFS (MCAM) dataset is live on #searchMECFS! 📊 Over 800 participants 🔬 Includes biospecimens & clinical data Researchers! Apply for access: ow.ly/JQ5I50UmvBJ

TheMECFSNet's tweet image. ✨ICYMI: The Multi-Site Clinical Assessment of #MECFS (MCAM) dataset is live on #searchMECFS!

📊 Over 800 participants
🔬 Includes biospecimens &amp; clinical data

Researchers! Apply for access: ow.ly/JQ5I50UmvBJ

382

ME/CFS Research Network Retweeted

Solve ME/CFS Initiative@PlzSolveCFS · Jan 29

Solve & @BatemanHorne collaborated on a webinar series dedicated to #severeME. Recordings of the first 3 webinars are available at the link below. Webinar #4 coming soon! ow.ly/OAVI50UPRfo #MEAwarenessHour

495

ME/CFS Research Network@TheMECFSNet · Jan 17

Exciting news! #searchMECFS is officially on #MEpedia. We're proud to contribute to this collaborative and trusted tool to advance ME/CFS research. ✨Explore today: ow.ly/zfCV50UILNJ

TheMECFSNet's tweet image. Exciting news! #searchMECFS is officially on #MEpedia. We're proud to contribute to this collaborative and trusted tool to advance ME/CFS research.

✨Explore today: ow.ly/zfCV50UILNJ

115