Royal London & Mile End IBD Patient Panel

Join us for our next #IBDPatientPanel Meeting. This will be in hybrid format for the first time Open to all #IBD patients, Family and carers and staff at the #RoyalLondonHospital and Mile End Hospital. Email for more information

Our next #IBDpatientpanel meeting will be in September. We will be reviewing the results of our recent survey and setting actions. A great opportunity for discussion and collaboration between Patients/ family/ carers and the #IBD team Sign up today to find out more #PatientVoice

The IBD Patient Panel at Royal London and Mile End Hospital needs you! come and join us! #IBD #CrohnsDisease #UlcerativeColitis #RoyalLondonHospital @NHSBartsHealth @IBDRoyalLondon

There is still time to submit your research questions about endoscopy! If you've got lived experience of endoscopy or supporting a family member who has had one we want to hear from you. @GutsCharityUK @BritSocGastro surveymonkey.com/r/endoscopy-psp

Help scrap prescription charges for #IBD - contact your MP now! A Chronic Cost has been initiated and is fully funded by @tillottspharma UK. Visit their website to find out more shorturl.at/EvatD

Final chance to complete our survey of the #IBD services at the Royal London and Mile End Hospitals. Have your voice heard and shape the future of your care shorturl.at/wV07k @NHSBartsHealth @IBDRoyalLondon @CICRAcharity @CrohnsColitisEL @CrohnsColitisUK #crohnsdisease

Calling #IBD Patients, families & carers at #RoyalLondonHospital. Complete our survey, have your voices heard and help us implement improvements to your care. forms.office.com/r/Wd0MUFGCen #Patientengagement #PatientVoice #UlcerativeColitis #CrohnsDisease #PatientExperience

Are you an #IBD patient with experience of intestinal ultrasound (IUS)? This one's for you! ⤵️ The International Bowel Ultrasound Group (IBUS) is looking for patient representatives to join its Collaboration Committee. Details here: ibus-group.org/news/patient-r… Please pass it on!

Happy International Nurses’ Day! Thank you to all our amazing nurses for the care and support you provide to patients every day. 💙 With more than 50 different nursing roles in the NHS, no two nursing careers are the same. Learn more: healthcareers.nhs.uk/we-are-the-nhs… #IND2025

World IBD Day is one week away! 💜🌍 On 19th May, we stand together for the 500,000 people in the UK living with Crohn’s or Colitis. This year, we’re talking about courage. Share what courage means to you! For resources and ideas visit: crohnsandcolitis.org.uk/get-involved/w… #WorldIBDDay

Coming soon to My IBD Care! New content with Gastro Dietitian Dr Bridgette Wilson on the diets people with IBD often hear about. What do you want to know about navigating IBD and diet? Your questions could shape what we cover. #IBD #Crohns #UlcerativeColitis #IBDDiet #MyIBDCare

If you are living with Colitis and have been for at least 6 months, researchers at King's College London would like to hear from you! They're working on a new study looking at managing stress. Find out more 👉crohnsandcolitis.org.uk/get-involved/w… @JacquelineB_IBD

Informative presentation on the PIANO registry data from @AKohli_MD on Infant outcomes after Exposure to biologics/ immunomodulator. 👶🏻N=438 4-17 yrs follow-up ➡️44% c section (higher than National average due to active disease/Perianal disease). ➡️71% breast fed- no linked…

Join us on Monday for our next meeting. Discussing digital platforms in #IBD and #healthcare. @NHSBartsHealth @IBDRoyalLondon @guy_worley

Calling all IBD Healthcare Professionals! Researchers at Sheffield Teaching Hospitals would like you to complete a survey looking at treatment options for terminal ileal Crohn's. @EBRIC_Study Find out more 👉crohnsandcolitis.org.uk/get-involved/w…

Happy Easter/ Holy Week to all our Christian patients and families. Please note the #IBD helplines will be closed over the bank holiday weekend and reopen on Tuesday. If you need urgent help please call 111 or the on call gastroenterologist via the hospital switchboard.

Fatigue is a common symptom of Crohn’s and Colitis. For many people, it’s the symptom that has the biggest impact on their quality of life. Find out more: crohnsandcolitis.org.uk/fatigue

Researchers at King's College London are looking to talk to people from a South Asian background who live with IBD to help shape a new research study. Find out more 👉crohnsandcolitis.org.uk/get-involved/w…

Come and join us for our next #IBD #patientpanel meeting on Monday 28th April at 6pm on MS Teams. This event is for #RoyalLondonHospital & Mile End Hospital IBD Patients, Family Members and staff. #Patientengagement #Patientvoice #patientexperience @nhsbartshealth