The Bottom Line IBD
@bottomlineibd
Promoting patient education in #IBD (Crohn's & UC). I help patients tell their stories. In the real world I'm Rachel, an IBD patient advocate. Also at @IBDwomen
We had a lot of fun making this #IBD patient podcast! If you have a spare 25 mins, we hope you'll tune in... Nigel talks about his 20 yrs on steroids 😲 and how he feels about #vedolizumab; I talk about #infliximab and how HCPs can approach the subject of meds with patients. 🎧
My good friend and fellow #IBD patient (@bottomlineibd) suggested we should make a podcast, so we did. The first episode is about diagnosis, medications and when to start/stop them. It ‘s now available on Spotify. Just search “Wrestling The Octopus - The IBD Podcast” #crohns #UC
Thanks to everyone who's completed this! Sadly, we don't have a single respondent from Northern Ireland - would be nice to have views of clinicians from across the UK. If you know any NI-based IBD physician/surgeon/CNS, please share. Will close study on 31.7.25
Need another 15-20 response. Please complete & share if you have any experience in treating IBD as a surgeon/gastroenterologist/IBD CNS or post CCT Fellow: shorturl.at/s82Wj @ShahidaDin1 @BritSocGastro @ACPGBI @CrohnsColitisR @CrohnsColitisUK @Dukes_Club @EBRIC_Study
A bombshell metaanalysis just landed in @AGA_CGH : Advanced therpies work better in colonic #Crohn vs. Ileal dis 😱 aTNFs/aIL23-aIL12/23 were all more effective in the colon, aIntegrin same efficacy in both(?), and JAKi were ONLY EFFECTIVE IN COLON.... cghjournal.org/article/S1542-…
Meet Rob. Rob is a UK lawyer, now living in the US, who developed Crohn's three years ago. He joined Nigel & me this week on our podcast to discuss why he actively pursued early surgery - and what family support has meant to him. @RobertDavid282 #IBD open.spotify.com/episode/69OYtq…
Registration is now open for the 2025 IBD & Women's Health conference on Sept 13. Registration is free for patients/caregivers. cedars.cloud-cme.com/course/courseo… @IBDCedarsSinai @PujaKhannaMD @ibddocmaria #Womenshealth #Ibdpatients
And it's a (virtual) transatlantic voyage for our next podcast episode. We'll be speaking with a US #IBD specialist about getting older with Crohn's and UC. Fair to say that Nigel and I definitely have skin in the game here! 😁 Any questions on the topic? Let us know... 🥂
* NEW PODCAST EPISODE * 🎧 Top tips for travelling with Crohn's or ulcerative colitis - we speak with @IBDPassport founder, Kay. If you haven't already checked it out, Kay's #IBD travel website, ibdpassport.com is a trove of useful information! open.spotify.com/episode/3b6pNs…
I’m frustrated there’s no proper app for IBD & gut health—so I’m building one. Track flares, meals, mood. Find personal triggers. Feel seen in a real community. It’s called GutBuddy 💚 I’d love to build this with you — based on all our shared struggles and what we really need.…
So proud of @jensemineriomd for bringing this vision to life! A conference just for patients living with IBD! Empowering, educational & led by true experts. If you or a loved one has IBD, don’t miss this chance to learn, connect, and feel seen. Come on down! #IBD…
Excited to to participate in first @AdventHealthCFL #IBD patient education Saturday Oct 11 715-530PM Sea World Renaissance 🐋 Orlando, FL Register here tinyurl.com/488as5k8 Agenda below! Don’t miss out with leading experts from Fl and beyond
I'm not quite sure where all our energy is coming from as we pop out all these podcasts! 😂 But yes, it's true... the utterly fabulous and knowledgeable Kay (@IBDPassport) is our next special guest, talking about travel with #IBD. Episode will be ready in the next few days! ⭐
Fun times recording a Podcast episode with @bottomlineibd & @Crohnoid . #crohns #colitis #podcast #wrestingtheoctopus
* NEW PODCAST EPISODE * From Birkenhead to Philadelphia: an #IBD patient's story. Powerful patient testimonies paint a picture of life with Crohn's and UC that is unlike any other medium. 🎧 Prepare to be blown away by @RobertDavid282 on our podcast! open.spotify.com/episode/69OYtq…
We've just published our 8th episode of Wrestling the Octopus: The #IBD Patient Podcast. You can see the full list here: wrestlingtheoctopusibd.buzzsprout.com #Crohns #CrohnsDisease #UlcerativeColitis @Crohnoid
* COMING SOON * "From Birkenhead to Philadelphia" #IBD patient, Rob joins our podcast to share his story of being diagnosed with Crohn's as a Brit living in the States. A fantastic guest with a very moving story. ⭐️ @RobertDavid282 @Crohnoid #WrestlingtheOctopus
Diet matters in #IBD - don't let anyone tell you otherwise! Yes, it's highly nuanced, but doesn't mean it's to be discarded as irrelevant - either by HCPs or patients. That's old-fashioned talk! Pleased to see these new ECCO diet guidelines strutting their stuff! 🥂
Proud to share the first #ECCO Consensus on Dietary Management of #IBD! 30+ experts & patient voices united to turn diet into therapy. academic.oup.com/ecco-jcc/artic… Huge thanks to the incredible multidisciplinary team 🌍🙏 #Crohns #Colitis #DietMatters
Four #IBD patients have already asked if they can share their stories on our podcast. And the answer is a definite "yes please!". Why not join our merry throng? If you're an IBD patient who'd like to share your story with Nigel & me on our podcast, please get in touch via DM. 🥂
There really is nothing so powerful as personal testimony when it comes to conveying what it means to live with #IBD. Coming soon... the first IBD patient guest on Wrestling the Octopus, our podcast that shares patient and expert perspectives on Crohn's and ulcerative colitis.
There really is nothing so powerful as personal testimony when it comes to conveying what it means to live with #IBD. Coming soon... the first IBD patient guest on Wrestling the Octopus, our podcast that shares patient and expert perspectives on Crohn's and ulcerative colitis.
📬 Coming Tomorrow to your inbox: Our July Newsletter! 📝 Research highlights: The latest BSG guidelines now consider nutrition as a key part of IBD management 🌱 Tasty & Healthy Diet: a new resource for the IBD community The Tasty & Healthy Diet, an evidence-based,…
Calling surgeons, gastroenterologists, nurse specialists and post-CCT doctors (in gastroenterology or colorectal surgery) with an IBD practice or experience in IBD across the UK. Could you please spare 10-15 min to complete this questionnaire please? shef.qualtrics.com/jfe/form/SV_6R…
Next week, Nigel and I are recording a new podcast episode on... travel with IBD. ✈️ Any questions you'd like us to put to our expert guest?
📣UK 🇬🇧IBD teams please complete this global survey on Inflammatory bowel disease ➡️influence IBD care @BritSocGastro @BSGTrainees @BSGNurses @ScotSocGastro @WAGE_media @ulstergastro @IBDUKTEAM @CrohnsColitisUK @LancetGastroHep @Rob__Brierley
Calling BSG members! 📢 Please complete the Lancet Global IBD Preparedness Survey here: bit.ly/3DgM9SP