Home Mechanical Ventilation in Partnership
@HMViPGroup
The HMVIP Group is made up of a multi-disciplinary team HMV with a wealth of knowledge and practical experience in this field from HMV centres across the UK.
At @HMViPGroup, we regularly talk to HMV users about their experiences. Here Didi who has a tracheostomy after a spinal cord injury shares some inspiration on what to consider if you planning to travel by plane. To find out more go to hmvip.co.uk/travelling-wit… #addinglifetoyears
Such an important read 👇🏾
'The cost of breathing is something that most never need to think about, but for those who rely on ventilators, many face an uncertain financial future without radical change to recognise that assisted breathing is an essential cost...' sheffield.ac.uk/cripping-breat… #WorldHMVDay
#WordHMVDay
Our blog today unpacks care, state care & responsibility, and breathing: 'This is compounded by the fact that there is no section within the PIP assessment process that specifically assesses breathing as a daily living activity.' sheffield.ac.uk/cripping-breat… @HMViPGroup #CareIsKey
'For people who live with ventilation, breathing is not something that comes naturally and not something that comes for free.' sheffield.ac.uk/cripping-breat… #WorldHMVDay #CareIsKey @hmvip @MDUK_News @SMA_UK_ @PathfindersNMA @EducationSheff @DisMatters
Still time to sign up for the @asthmalunguk Ventilation Support meeting on 4 August when @AlisonArmstron will be talking HMV and travel. To register go to asthmaandlung.org.uk/groups-support… #addinglifetoyears
Our podcast hosts spoke to Professor Caitlin Notley and Dr Hilary Tedd at this year’s Summer Meeting to discuss harm reduction in tobacco dependency and the role of a Training Programme Director. Learn more 👉 brit-thoracic.uk/RFSMPart125
Two weeks until the A&LUK ventilation support meeting on travelling with HMV on 4th August. If you haven't already booked your place go to the @HMViPGroup website to register hmvip.co.uk #addinglifetoyears #repiratoryhealth
The next A&LUK Ventilation Support meeting is on 4th August. If you're planning to travel now, or in the future, this topic will be one not to miss! @AlisonArmstron will be talking HMV travel checklists and planning. To sign up go to hmvip.co.uk #addinglifetoyears
HMViP is at St Thomas' today speaking to the @LFRUPA members at their Summer Event about the resources available on hmvip.co.uk.
Don't forget. join us on Monday for the Asthma & Lung UK Home Ventilation Support Group where we'll be talking HMV care. To register go to asthmaandlung.org.uk/groups-support… #HMVcareiskey #HMVaddinglifetoyears @asthmalunguk @HASCSLtd
If you haven't already signed up to the @asthmalunguk HMV Support Group meeting next Monday, follow this link asthmaandlung.org.uk/groups-support…. We'll be talking to carer Kathryn Shackleton and Kate Steel, Paediatric Clinical Director for @HASCSLtd. Join us 2nd June @ 3pm. #HMVcareiskey
Following #WorldHMVDay, if you would like to find out more about #HMVcareiskey this will be the topic of the June @asthmalunguk HMV Support Group meeting. To sign up go to asthmaandlung.org.uk/groups-support…. #addinglifetoyears
A huge thank you to all who celebrated #WorldHMVDay with #HMViP yesterday! If you haven't already had a chance to view our podcast discussions on the role of carers, you can go to hmvip.co.uk/world-hmv-day. The last word on key tools for carers goes to Sue, PA to @evilgiraffe20.
@HMViPGroup member Kathryn shares her care story and tells us what life would be like for her husband Iain without support at home. Iain has MND and has a tracheostomy so needs full time care. To learn more, go to hmvip.co.uk/world-hmv-day. #HMVcareiskey #addinglifetoyears #HMViP
Today is World Home Ventilation Day! We have been working alongside @HMViPGroup to help set up a special online group for people who need support with a breathing machine (ventilator) due to their lung condition. Find more information here: orlo.uk/5nF9r #HMVcareiskey
Today we support #WorldHMVDay which this year is highlighting the role of carers in supporting people who use home mechanical ventilation. Covering care & support from family, PAs & agency care. #careiskey #addinglifetoyears hmvip.co.uk/world-hmv-day
Having PAs understand why I use home mechanical ventilation, remaining calm when supporting me with it and listening to my directions are things I value most of all and are essential to my health and wellbeing #careiskkey #addinglifetoyears
Sarah & PA Sue took part in a podcast and wanted to help show how supporting an hmv user need not be daunting, is just a part of the daily routine. “Knowing why it’s used, being calm when supporting me & listening to directions are things I value most” hmvip.co.uk/world-hmv-day
As we celebrate #WorldHMVDay, we hear from the lovely team at @MartinHouseCH who share with us their amazing programme of respite care activities for HMV users under 25. #addinglifetoyears #HMVcareiskey #HMViP Full recording can be found hmvip.co.uk/world-hmv-day
On #WorldHMVDay, we're looking at the essential role played by carers, both paid and unpaid, in the lives of HMV users. We hear from Kate Steel at HASCS about the difference between domiciliary and complex care. #HMVcareiskey #addinglifetoyears #HMViP hmvip.co.uk/world-hmv-day
On #WorldHMVDay, we are sharing podcast conversations with those involved in receiving and providing care. To watch and learn more about the vital role of carers in HMV go to hmvip.co.uk/world-hmv-day. #HMVcareiskey #addinglifetoyears #HMViP
