Pathfinders Neuromuscular Alliance
@PathfindersNMA
User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info
Check out our Research Team's latest publication on Social Care and Young Adults with Neuromuscular Conditions Diagnosed in Childhood: A Co-Produced Scoping Review! You can read it here: journal.ilpnetwork.org/articles/10.31…
Join Cripping Breath, in partnership with Pathfinders Neuromuscular Alliance and the University of Sheffield, for an important online event all around ventilation! 🗓️ Monday 22nd September 🕡 6:30pm–8pm 🔗 Sign up: ow.ly/v9SS50Wmml5 ℹ️ More info: ow.ly/LRrr50Wmml4

𝑫𝒊𝒅 𝒚𝒐𝒖 𝒌𝒏𝒐𝒘 … There is a TV drama about the founders of a disability activism group? 📺 It’s called 𝗧𝗵𝗲𝗻 𝗕𝗮𝗿𝗯𝗮𝗿𝗮 𝗠𝗲𝘁 𝗔𝗹𝗮𝗻 🎞️ Watch our 𝗜𝗡𝗙𝗢𝗥𝗠 𝗖𝗮𝗺𝗽𝗮𝗶𝗴𝗻𝗶𝗻𝗴 🗣️💬video to find out how you can make change. 🔗 youtu.be/Tq3Q8ltVyrg

UpLift 𝗖𝗢𝗡𝗡𝗘𝗖𝗧 𝗖𝗮𝗹𝘃𝗲𝗿𝘁 𝗗𝗲𝘃𝗼𝗻 🏞️ 📆 Fri 29th - Sun 31st August 📍 Calvert Devon 💶 No cost Sign up ➡️ tinyurl.com/CONNECTDevon 📝 Sign up: For more information please visit: calvertdevon.org.uk

𝐓𝐎𝐃𝐀𝐘’𝐒 𝐓𝐇𝐄 𝐃𝐀𝐘! The start of UpLift's 𝒇𝙞𝒏𝙖𝒍 𝗪𝗘𝗘𝗞𝗘𝗡𝗗𝗘𝗥💥This year we’re in Liverpool. See you shortly!

Weekender 2025 is here! Follow along with us on all our social channels. #Weekender2025 #PathfindersAlliance #UpliftEvent #Weekender #PathfindersNMA

UpLift 𝗪𝗘𝗘𝗞𝗘𝗡𝗗𝗘𝗥 𝗟𝗶𝘃𝗲𝗿𝗽𝗼𝗼𝗹💥 It’s tomorrow! The staff team are making their way to Liverpool today to make sure everything is ready for the UpLift project’s highlight of the year! Looking forward to welcoming you all at noon tomorrow.

UpLift 𝗖𝗢𝗡𝗡𝗘𝗖𝗧 𝗖𝗮𝗹𝘃𝗲𝗿𝘁 𝗗𝗲𝘃𝗼𝗻 🏞️ 📆 Fri 29th - Sun 31st August 📍 Calvert Devon 💶 No cost Sign up ➡️ tinyurl.com/CONNECTDevon 📝 Sign up: For more information please visit: calvertdevon.org.uk

𝑴𝑬𝑬𝑻 𝑻𝑯𝑬 𝑻𝑬𝑨𝑴 - UpLift 𝗪𝗘𝗘𝗞𝗘𝗡𝗗𝗘𝗥 𝗟𝗶𝘃𝗲𝗿𝗽𝗼𝗼𝗹💥 Jacqui, Connor & Cath - Team UpLift!

Liverpool. We are coming. Pathfinders Uplift brings 2025 edition of The Weekender to Liverpool this weekend. 25-27 May. Keep your eyes posted on what we get up to. #weekender #pathfindersnma #uplift
UpLift 𝗖𝗢𝗡𝗡𝗘𝗖𝗧 𝗖𝗮𝗹𝘃𝗲𝗿𝘁 𝗗𝗲𝘃𝗼𝗻 🏞️ 📆 Fri 29th - Sun 31st August 📍 Calvert Devon 💶 No cost Sign up ➡️ tinyurl.com/CONNECTDevon 📝 Sign up: For more information please visit: calvertdevon.org.uk

𝗪𝗔𝗧𝗖𝗛 𝗡𝗢𝗪 𝗢𝗡 𝗬𝗢𝗨𝗧𝗨𝗕𝗘 Uplift’s 𝗜𝗡𝗙𝗢𝗥𝗠 𝗖𝗮𝗺𝗽𝗮𝗶𝗴𝗻𝗶𝗻𝗴 🗣️💬 is now available to watch at your leisure. Hosted by Jamie Hale, a great introduction to making change. 🎞️➡️ youtu.be/I9ZublplvHY Get your top tips for creating a winning campaign!

UpLift 𝗖𝗢𝗡𝗡𝗘𝗖𝗧 𝗖𝗮𝗹𝘃𝗲𝗿𝘁 𝗗𝗲𝘃𝗼𝗻 🏞️ 📆 Fri 29th - Sun 31st August 📍 Calvert Devon 💰 FREE If you are aged 18 - 30 living with a muscle-weakening condition then sign up today! ➡️ ow.ly/GBep50Wp2nf
𝑫𝒊𝒅 𝒚𝒐𝒖 𝒌𝒏𝒐𝒘 … There’s an app to book assistance for your train journey? 📲 It’s called the 𝗣𝗮𝘀𝘀𝗲𝗻𝗴𝗲𝗿 𝗔𝘀𝘀𝗶𝘀𝘁𝗮𝗻𝗰𝗲 𝗮𝗽𝗽 - @PassAssistance 🎞️ Watch our 𝗜𝗡𝗙𝗢𝗥𝗠 𝗧𝗿𝗮𝗻𝘀𝗽𝗼𝗿𝘁 🔗 youtu.be/Tq3Q8ltVyrg #AccessibleTransport #UpLift

The Weekender! It's here! Follow along this weekend and see what we get up to! #theweekender #pathfindersnma #uplift
UpLift 𝗖𝗢𝗡𝗡𝗘𝗖𝗧 𝗖𝗮𝗹𝘃𝗲𝗿𝘁 𝗗𝗲𝘃𝗼𝗻 🏞️ 📆 Fri 29th - Sun 31st August 📍 Calvert Devon 💰 FREE If you are aged 18 - 30 living with a muscle-weakening condition then sign up today! ➡️ ow.ly/GBep50Wp2nf
UpLift 𝗖𝗢𝗡𝗡𝗘𝗖𝗧 𝗖𝗮𝗹𝘃𝗲𝗿𝘁 𝗗𝗲𝘃𝗼𝗻 🏞️ 📆 Fri 29th - Sun 31st August 📍 Calvert Devon 💰 FREE If you are aged 18 - 30 living with a muscle-weakening condition then sign up today! ➡️ ow.ly/GBep50Wp2nf
𝗪𝗔𝗧𝗖𝗛 𝗡𝗢𝗪 𝗢𝗡 𝗬𝗢𝗨𝗧𝗨𝗕𝗘 Uplift’s 𝗜𝗡𝗙𝗢𝗥𝗠 𝗧𝗿𝗮𝗻𝘀𝗽𝗼𝗿𝘁 🚍🚆hosted by Jon Hastie, is now available to watch at your leisure. 🎞️➡️ youtu.be/Tq3Q8ltVyrg Build your transport confidence! #AccessibleTransport #TransportAccessibility

Adventure Awaits! Join UpLift at 𝗖𝗢𝗡𝗡𝗘𝗖𝗧 𝗖𝗮𝗹𝘃𝗲𝗿𝘁 𝗗𝗲𝘃𝗼𝗻 🏞️ from Aug 29 to 31! Are you a young adult with a muscle-weakening condition? Don’t miss this FREE 📷 weekend of accessible adventures for those aged 18-30! Sign up now 📷tinyurl.com/CONNECTDevon

𝑫𝒊𝒅 𝒚𝒐𝒖 𝒌𝒏𝒐𝒘 … There are some charities who you can apply to, as an adult, for a #wheelchair grant. The Joseph Patrick Trust - @MDUK_News SMArt Moves - @SMA_UK_ Watch UpLift’s 𝗜𝗡𝗙𝗢𝗥𝗠 𝗪𝗵𝗲𝗲𝗹𝗰𝗵𝗮𝗶𝗿𝘀 ♿ here 🔗 youtu.be/vLsRDMeOhVc #DisabilityTwitter
