Global Heart Hub
@GlobalHeartHub
The Global Heart Hub is an alliance of Heart Patient Organisations uniting the patient voice across the spectrum of Cardiovascular Diseases. Join us!
In collaboration with the SDA Bocconi School of Management, Global Heart Hub will host a three-day masterclass starting this Tuesday in Milan. 🇮🇹 Presenting a hands-on course in advocacy and communications, equipping patient organisations and advocates with the skills they need…
High Quality CPR Saves Lives 🫀 This week, Global Heart Hub team members took part in the American Heart Association CPR training session in Galway, expertly facilitated by Croí Heart & Stroke Charity As a global alliance of cardiovascular patient organisations, we have seen…
Global Heart Hub, in collaboration with the SDA Bocconi School of Management, have just wrapped up a tailored master class for patient organisations and advocates. The course saw three incredible days of learning, collaboration and hands-on advocacy work with patient community…
❤️ The Whole Story of Heart Failure – affects more than just the heart! This year, we are spotlighting the crucial link between heart failure and connected conditions such as: 🔺 Diabetes 🔺 Kidney disease 🔺 Obesity 🔺 High blood pressure Interconnected conditions play a…
Global Heart Hub is delighted to be in Milan, Italy this week, bringing together our Heart Valve Disease community for our members to connect, share experiences and map out our course for the future. Thank you to our Affiliates, coming together from across 17 countries:…
Global Heart Hub is a proud partner to the OnHOME Alliance, a growing coalition with one clear goal: To ensure all patients in the EU can safely receive their prescription medicines at home. Today, 8 EU countries offer this essential service. 19 do not. That means millions…
This week, Global Heart Hub’s EU Project Manager, Marta Bragagnolo, represented cardiovascular patient voices at two crucial meetings in Brussels. On July 1st, Marta joined the HTA Stakeholder Network Meeting, engaging with experts and policymakers on the future of health…
Cardiomyopathy isn’t always visible, but it often runs in families and can lead to serious outcomes like heart failure or sudden cardiac death if not detected early. Together, patients and healthcare professionals can spot the signs of cardiomyopathy earlier; even when symptoms…
📣 Are you a patient looking to successfully advocate on Antimicrobial Resistance (AMR) and better health care among patients? @eupatientsforum (EPF) has a new opportunity for you! A 4-module online course (September - December 2025) that will cover the main aspects of AMR,…
Know the symptoms and #ThinkCardiomyopathy
毎年6月は ／ 心筋症啓発月間 ＼ として、心筋症に関するさまざまな取り組みが世界中で行われています。 日本循環器協会は、国際的な啓発団体であるGlobal Heart Hubとともに、心筋症について一般市民の皆さまにわかりやすく伝えるインフォグラフィクスを作成しました😀 j-circ-assoc.or.jp/approach_posts…
June is Cardiomyopathy Awareness Month Worldwide #ThinkCardiomyopathy
世界の患者会を繋ぐGlobal Heart Hub(GHH)とのコラボレーションが実現。6月の心筋症啓発月間に合わせてインフォグラフィクスの日本語版を作成していただきました。心筋症の治療環境を改善するため、JCAでは、心筋症の「患者会」の設立をGHHと共にサポートします💕
Diagnosed with heart failure, arrhythmia, or unexplained asthma, but something still doesn’t feel right? Sometimes, a diagnosis is just the beginning of the story. For some, symptoms like: • Irregular heartbeat • Myocarditis • Unexplained fainting • Breathlessness •…
I thought it was...... 🔺Diabetes fatigue 🔺Myocarditis 🔺Panic attacks 🔺Stress or anxiety But it was cardiomyopathy‼️ These voices remind us that not every case looks the same and symptoms can be subtle. Cardiomyopathy is often hidden, often misunderstood. Understand the…
🩺 How the Medical Community Can #ThinkCardiomyopathy? When symptoms are vague, or diagnoses are inconclusive. Don’t forget the heart. #ThinkCardiomyopathy 🧠💓 Cardiomyopathy is often silent until it leads to heart failure, stroke, or sudden cardiac death. But it doesn’t have…
🚨 Be alert! Could it be more than you think? Cardiomyopathy can mimic other conditions. Sometimes, it doesn’t look like anything until it’s too late. If you or someone in your family has experienced: ⚠️ Heart failure ⚠️ Irregular heartbeat (arrhythmia) ⚠️ Chest pain ⚠️…
Global Heart Hub was at the European Orthopaedic Research Society (EORS) conference in Davos today, where our EU Projects Manager, Marta Bragagnolo, presented at the event. Joined by Yasemin Zeisl from the European Patients’ Forum, the two discussed the importance of patient…
🫀 Understanding Heart Failure and Its Connected Conditions Heart failure rarely exists in isolation. It is often linked to other medical conditions, known as connected conditions, which can worsen heart function and complicate treatment. Conditions like diabetes, kidney…