Fibroid New Research
@FibroidNetwork
#Fibroids #PatientFeedback #EVBM 💜UK @Fibroidsupport #PatientExperience #Fibroid 🌎 Research #Mesh #Events #UroGyn #PatientSafety #QOLY Outcomes #NHS
#Mesh Complications in UK🇬🇧🇦🇺🇸🇪🇧🇪🇺🇸🇳🇱🇪🇸🇮🇱🇿🇦🇰🇼🇨🇭🇪🇸🇮🇪🏴🇳🇿🇫🇷🇮🇳🇯🇵🇨🇦Poor Healthcare Regulations/Reporting 🌏@10DowningStreet #IWasntWarned #PatientsOverProfit #Chronicpain #Patientsafety @OwenSmith_MP @EmmaHardyMP @IMMDSReview @MeshCampaign @sharonhodgsonMP
"It's ruined my life": This woman says a vaginal mesh implant has left her with no sex life and in chronic pain. She wants them banned
USA attorney Mike Papantonio speaks to a lawyer who called for a criminal investigation into J&J Johnson after thousands of documents were destroyed and hard drives wiped clean with information on #mesh complications youtube.com/watch?v=UE5zKg…
Study finds "retractions due to data problems have increased significantly" since 2000. tandfonline.com/doi/full/10.10…
In this UK Trial of #Mesh tape 90% failed. Many other trials had similar results. Some women went from a minor inconvenience of stress incontinence to Permanent Disability due to Tape Mesh hooks damaging their pudendal nerves leaving them in wheelchairs @MeshCampaign @APPGFDNH
UK Experimental #Mesh Trials have resulted in serious complications for women. 90% #Mesh Tape failed at St Marys Manchester & Royal Victoria Hosp Newcastle. Only 10% Cured. 38% had ReOps. There are not enough Drs with skills to remove @MeshCampaign onlinelibrary.wiley.com/doi/10.1111/j.…
@Dr_R_Geoffrion Research confirms that #hysterectomy (womb removal) treatment, itself, increases the risk of incontinence (& prolapse) iatrogenic trauma. But just removing fibroids alone (ie large fibroids putting pressure on bladder) has better results ncbi.nlm.nih.gov/pmc/articles/P…
#AUGSIUGA19 Urinary tract dysfunction is associated with Anterior #Fibroids, increasing in association with fibroid size & significantly affects Quality of Life Removal of fibroids often resolves issues. Hormone suppressants don’t cure Fibroids longterm link.springer.com/article/10.100…
They should Review outcomes of not allowing Maternal Request Caesarians. This hospital hadnt submitted all outcomes to National Maternity Audit 2017 maternityaudit.org.uk/downloads/RCOG… Also⬆️High #Mesh rates CQC noted Maternity staff shortages, affecting Care & Safety cqc.org.uk/location/RTH08…
Fistula/SUI often occurs after Birth Trauma following prolonged labour/CSec & Hysterectomy. #Sling #Mesh complications after these issues are often worse. Would improved gynaecological training assist to prevent, treat & detect earlier? #SoMe4Error @me4_so bsdwebstorage.blob.core.windows.net/ejournals-2218…
Sadly many women went onto have #Mesh repairs for fecal & urinary Incontinence after surgical treatments/physical birth trauma & previous mesh surgery 30% of Prospect Prolapse Trial Patients had a previous Vaginal Hysterectomy @MeshCampaign @APPGFDNH #AvoidableHarm #Iatrogenic
Yes @MothersWith4DTs Obstetric #Fistulas seem to be UnderReported or UnderDetected in Developed Countries. In UK 🇬🇧 2013,they were going to address this Also 50% came from #Hysterectomy #iatrogenic @me4_so #SoMe4Surgery #SoMe4Error england.nhs.uk/wp-content/upl…
There are different Patient Pathways to #Mesh including Botched Previous Surgery: Physical Birth Trauma➡️Fistula➡️Mesh Botched Hysterectomy➡️Mesh Botched Endometrial Ablation/IUDs Womb Damage➡️Mesh Fibroids #Endometriosis Surgery ➡️SUI diagnosis➡️Mesh Avoidable @IMMDSReview
Most Gynaecologists Fail to Comply with Audits. In 2015-17 over 18,000 SUI Treatments,had no longterm outcomes. ie>80% Missing, Outcome Data. Patients Protest: #Mesh Pain/ReOps/Erosion/Nerve/Organ Damage @MeshCampaign @jamesosh @EmmaHardyMP @LordPhilofBrum baus.org.uk/patients/surgi…
Endometriosis patients at National combined Endometriosis/Mesh centres received some of the highest rates of mesh implantation & fibroid patients. Neither condition was Nationally audited for treatment outcomes, with or without Mesh. Treatments offered are the issue @APPGFDNH
78% of🇬🇧Drs surveyed, for #Mesh Sling Tape Complications, Dont Remove Old Mesh when it fails. They just put another On Top Which is why UK🇬🇧Removal Rates are Low, But #Mesh Implant Rates are High,as many Drs cant remove it @MattHancock @MeshCampaign @HQIP doi.org/10.1007/s00192…
Who received #Mesh repairs? The 4 main female Categories were those with Prolapse/Incontinence after Treatment damage from: Vaginal Hysterectomy Physical Birth Trauma Previous Failed Mesh Repair HRT use Plus Botched Surgery @IMMDSReview @MeshCampaign @APPGFDNH @FTWW_Wales #urogyn
Study:38% of women became incontinent after hysterectomy whichever technique Prospect Trial had >30% of participants with previous hysterectomy But Drs say incontinence is just natural aging Other Risk factor physical Birth Trauma #Iatrogenic @MeshCampaign ncbi.nlm.nih.gov/pubmed/27306284
Sadly, Birth Trauma was one of the highest Risks for later Incontinence or Prolapse issues that led to the use of synthetic or biological mesh, which then also caused life long harms for some. Prevention of Birth Trauma is better than cure x.com/fibroidnetwork… @MeshCampaign
24 patients had #Mesh Erosion,most by 12 weeks after Gynecare TVT surgery at John Radcliffe Hospital from 2005-10. Repairs failed for 35% & excision needed Were they reported to the MHRA? +painful sex, discharge, Bleeding. MHRA had 15 reports @MeshCampaign ics.org/Abstracts/Publ…
Is there a link for that paper? Found this one: Laparoscopic complete sacrocolpopexy mesh removal for right-sided gluteal pain & recurrent #mesh erosion John Radcliffe Hospital Oxford Are all Failed Mesh Patients referred to other Hospitals? #AUGSIUGA19 ncbi.nlm.nih.gov/pubmed/31478076
Stoke Mandeville & John Radcliffe Hospital, Oxford recommended #Mesh Tape Stretching or Division instead of Removal for Complications ie Voiding Dysfunction after JnJ #Ethicon TVT If failed, Tape was “divided” or TVTO inserted No COIs declared @IMMDSReview researchgate.net/publication/26…
The latest Families Failed by #OxfordUniversityHospitals Instagram post focuses on the on-going denial of access to #caesarean birth. 🚨 A mother with a big baby told a caesarean would stop her bonding with her baby…she experienced a 3b tear🧵 @CareQualityComm @NHSEngland
A mother who made it clear she did not want a forceps birth dismissed by an #OxfordUniversityHospitals midwife & told a caesarean wasn’t an option. This breaches #InformedConsent guidance & #HumanRights. Why is this allowed to continue?
Women begging for caesareans… Being put through horrific psychological harm trying to access a safe mode of birth that they could access on the NHS in other parts of the U.K… All because of anti-#caesarean maternity leadership at #OxfordUniversityHospitals.
Babies’ & mothers’ lives put at risk because of a drive to increase vaginal birth rates & lower caesarean rates. Horrors of Morecambe Bay allowed to be repeated by the Chair of OUH who was also the Ethics Expert at Morecambe Bay… HOW? WHY?
Time & again women’s knowledge about their bodies, & clinical expertise from beyond OUH is dismissed leading to preventable harm. This is not historic harm- this is happening now…we have families joining our group daily.