DCMFoundation

Did you know that you can get genetically tested or re-tested for free? We're collaborating with a testing company to provide FREE testing to cardiomyopathy patients. Genetic testing can improve care and may help save your or your loved ones' lives: geneticcardiomyopathy.org/get-tested/

Two parents noticed their newborn making noises, but they were told it was "normal". New symptoms arose, and their daughter Sloane was eventually diagnosed with dilated cardiomyopathy. Now they're helping inform other parents about symptoms to look for. Read more:

Our next webinar is Wednesday, August 20th, at 6 PM Eastern. Join us to hear Scot Polard's story, from 11 years in the NBA to cardiomyopathy and a heart transplant. Register for free to attend live or receive a recording: dcmfoundation.org/upcoming-webin…

You can now get genetically RETESTED for free! Our partners at GCAC are collaborating with a genetic testing company to provide FREE testing. Retesting ensures you have the most accurate info, which can be crucial for your care and your family's health: geneticcardiomyopathy.org/testing/get-te…

Terry Archbold thought his daughter, Bea, had COVID before he was told she had DCM and was experiencing heart failure. After 14 months in the hospital and an artificial organ, she received a heart transplant. Read their story: yahoo.com/news/dad-recal…

"Gene Therapy for Cardiomyopathy: Practical Considerations for Patients" is tomorrow! Hear the latest on genetic cardiomyopathy therapies from an expert. Registration is free, and all registrants receive a recording. Sign up even if you can't join live: dcmfoundation.org/upcoming-webin…

Hear from a genetic heart disease expert! Dr. Quan M. Bui is an Assistant Professor of Medicine at UC San Diego. During our webinar on July 16, he will discuss gene therapies for heart failure and their potential implications for you. Register for free: dcmfoundation.org/webinars-news/…

Happy Independence Day to our community in the US! Have fun and play it safe this weekend. Stay cool and monitor any symptoms if you're active. Learn more about living with DCM: dcmfoundation.org/living-with-dc…

🖥️Gene Therapy for Cardiomyopathy: Practical Considerations for Patients 📅 July 16 🕕 6 PM ET Hear a leading cardiologist & genetic heart disease expert from UC San Diego break down the future of gene therapy—and what it means for you. 🔗 Register: dcmfoundation.org/upcoming-webin…

Cardiomyopathy isn’t always visible, but it often runs in families and can lead to serious outcomes like heart failure or sudden cardiac death if not detected early. Together, patients and healthcare professionals can spot the signs of cardiomyopathy earlier; even when symptoms…

We empower families with #GeneticCardiomyopathy to help move research forward. Discover how you can help by learning about the Genetic Cardiomyopathy Registry: geneticcardiomyopathy.org/registry

WomenHeart is holding a HeartTalk on heart failure, a growing health concern that often looks different in women. This July 9 webinar will feature Dr. JoAnn Lindenfeld, who will explain what every woman should know about heart failure. Register today womenheart-org.zoom.us/webinar/regist…

Our next webinar is "Gene Therapy for Cardiomyopathy: Practical Considerations for Patients". Join us on July 16 for an overview of genetic cardiomyopathy therapies and to hear an expert explain gene therapy for cardiomyopathy patients. Register for free: dcmfoundation.org/webinars-news/…

The family of a 6-year-old DCM patient is reflecting 4 years after a heart transplant. In the years after the transplant, the young patient has grown and her health has improved. Read the story: thegeorgiagazette.com/featured/6-yea…

This past weekend, Jerry wrote a letter to the family of the organ donor who saved his son's life. It's his Father's Day tradition since his son received a heart transplant after being diagnosed with DCM. Read the full story: walb.com/2025/06/15/sou…

Knowing if you have an inherited type of cardiomyopathy is important because it can impact the risk for other family members. Genetic testing can help other family members to know if they also have a genetic predisposition and help protect them. #ThinkCardiomyopathy

Happy Father's Day! DCM can run in families. If you're with family today, spend a few minutes talking about health history. Being proactive in understanding your genetics helps everyone in your family. Learn more: dcmfoundation.org/dilated-cardio…

Cardiomyopathy is a primary disease of the heart muscle that is not caused by heart valve disease or other conditions that increase pressure on the heart. #ThinkCardiomyopathy

Inherited cardiomyopathy is the most common form of genetic heart disease. #ThinkCardiomyopathy

It’s important to talk to your doctor if you notice any symptoms or if you have a family member family history of heart disease or a close relative (parent, sibling, child) who died suddenly and unexpectedly at a young age. #ThinkCardiomyopathy