Girl Travelin Alone

Though Linda Ronstadt does not have #ALS, she does have the diagnosis of PSP, Progressive supranuclear palsy, which is another disease that will steal your voice. Last night, in Nashville, @trishayearwood and friends gave us the gift of an evening of the music of Linda Ronstadt.…

If you have a moment today, please consider taking this survey from the Vanderbilt ALS Research Center. Your participation would be greatly appreciated. It is a brief survey that requires only 2 minutes of your time. The responses collected will be instrumental in helping the…

“When you make a world tolerable for yourself, you make a world tolerable for others” -Anais Nin And leaving #ALS better than he found it is how Lou Gehrig lived. Help make the world tolerable for an #ALS patient. Join the dugout. 👇 livelikelou.org.…

There are no party politics involved with ALS. “No two people experience ALS the same way..” That is why research for a treatment, a cure, MUST continue. Because the sad truth of the disease is … you never know when ALS might come your way. @NIH @sfchronicle #SupportALS…

I am not a scientist but I can speak anecdotally that ALS stages aren’t often applicable in Bulbar Onset ALS. Yet I feel it is important to share because until you are diagnosed with #ALS you are baffled by what is happening to your body and often, even after seeing a…

Today is Anthony’s birthday! Let’s celebrate it at Starbucks by ordering a water (or a coffee for those who still drink it) and sharing a toast to him! ps … though pants are optional, gratuities are not! #kisshisals #birthdaywishes @Starbucks @carbajalphoto…

It is strange how life gives you little hints at what will be and what will come. For us, it came first as the tiniest little hint, a hint filtered through the community of journalists Fred traveled with. The story was about Thomas Youk and a doctor named Jack Kevorkian.…

One Team. One Mission. To End ALS. #ComeTogether @iamalsorg

I am sharing the love of @groovesubaru and their commitment to our community! Love seeing @nicolecimbura smiling!

If you would like to swing on a star and be more comfy than you are, make the world your oyster and hang for a moment with Brooke. #ALS #Wednesdayvibe @HerALSStory

Fred had random thoughts about why he was diagnosed with #ALS. Was it because his ears were irradiated at the age of 5? Was it because of his time in the army and the reserves? Was it because he had an accident on his motor bike? Or was he part of an ALS cluster (three men…

"The terrible loneliness is a part of #ALS that often feels as difficult to deal with as the disease itself.” - Shah Minokadeh, MD.

Even for those who are brave and strong and always fight like a girl there are days when life is rough and rocky and it feels as if the mountain is too hard to climb. I am so sorry @SarahNauser that you must carry this weight. I hope that you know that we are here to give you…

Even after all these years, there are still moments in the world of ALS when I feel like I've stumbled in my advocacy, both literally and figuratively. I try to reassure myself that the world isn’t angry with me, yet I still carry that weight. I am not a scientist; I am simply a…

On behalf of your #Tennessee constituents, Thank You @RepCohen for being part of the #ALS Caucus. Now more than ever people in Tennessee fighting ALS need your hope and support. #EndALS @iamalsorg @FOX13Memphis

We always believe losing someone we love to ALS is heartbreaking until we remember ALS is an illness, not a human. #HappyBirthday #AdrienneShelly #BeerLightPie 🍺🥧🍺