I AM ALS

@iamalsorg

I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.

Joined November 2018

735Following

26KFollowers

I AM ALS@iamalsorg · 8 h

The Tim Lowrey ALS Panel Series brings ALS education to any setting, and they tailor their presentation to their audiences. Check out this recording of a panel for PT & OT students, & request a panel for your classroom or workplace: bit.ly/45xdhst bit.ly/4lyfyIZ

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I AM ALS@iamalsorg · 20 h

⭐️ YOU can help secure the future of ALS research. Feel the joy of moving the needle toward unlocking resources for care, research, and treatments. It's easy! Contact your elected officials about what ALS research means to you: bit.ly/3F1TS8c

iamalsorg's tweet image. ⭐️ YOU can help secure the future of ALS research. Feel the joy of moving the needle toward unlocking resources for care, research, and treatments. It's easy! Contact your elected officials about what ALS research means to you: bit.ly/3F1TS8c

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I AM ALS@iamalsorg · Jul 27

As we begin working to reauthorize ACT for ALS in 2026, we're reminiscing about all the amazing elected officials who voted for this critical piece of legislation. Help us thank them, and remind them how much this bill means to you: bit.ly/4mPg1aJ

iamalsorg's tweet image. As we begin working to reauthorize ACT for ALS in 2026, we're reminiscing about all the amazing elected officials who voted for this critical piece of legislation. Help us thank them, and remind them how much this bill means to you: bit.ly/4mPg1aJ

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I AM ALS@iamalsorg · Jul 27

You know him as an all-star volunteer, a writer, and an I AM ALS Board member. Now, "the Juan and Only" Juan Reyes is adding "published author" to his lengthy resume! Check out Juan's new book, The ALS Express: amzn.to/4nZoXef

iamalsorg's tweet image. You know him as an all-star volunteer, a writer, and an I AM ALS Board member. Now, "the Juan and Only" Juan Reyes is adding "published author" to his lengthy resume! Check out Juan's new book, The ALS Express: amzn.to/4nZoXef

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I AM ALS@iamalsorg · Jul 26

I AM ALS is delighted to welcome Chuck Smith to our Board of Directors! Learn more about Chuck and his motivation to end ALS in our update: bit.ly/4l0GZtU

iamalsorg's tweet image. I AM ALS is delighted to welcome Chuck Smith to our Board of Directors! Learn more about Chuck and his motivation to end ALS in our update: bit.ly/4l0GZtU

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I AM ALS@iamalsorg · Jul 26

We've set a date for the 2025 Artistry of ALS Gallery Opening! Join us on September 10 at 7pm ET for an unforgettable evening, co-hosted by the one and only Dr. Rick Bedlack. We hope you'll join us! bit.ly/3GHzzgW

iamalsorg's tweet image. We've set a date for the 2025 Artistry of ALS Gallery Opening! Join us on September 10 at 7pm ET for an unforgettable evening, co-hosted by the one and only Dr. Rick Bedlack. We hope you'll join us! bit.ly/3GHzzgW

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I AM ALS@iamalsorg · Jul 25

Thank you @RepDavidValadao for standing with us as part of the ALS Caucus! The ALS community is so grateful for your commitment to prioritize the urgency of ALS, funding for research, support for people living with ALS, and more.

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I AM ALS@iamalsorg · Jul 25

We learned so much about brain and tissue donation at last week's webinar, and we hope you did, too! Thank you so much to our panelists. If you missed the live event, don't worry—you can watch the full recording on our YouTube channel! youtu.be/xlUHg2ktEzM

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I AM ALS@iamalsorg · Jul 24

Sometimes the best support comes from someone who knows exactly what you're going through. Whether you're living with ALS, a caregiver, a loved one, or grieving, we have a support group for you! iamals.org/action/join-a-…

iamalsorg's tweet card. I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with oth ...

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I AM ALS@iamalsorg · Jul 24

It's finally here! Join the Many Shades of ALS Team TONIGHT at 7pm ET for this critical discussion of ALS care in long-term settings. This webinar will have valuable information for everyone, so make sure you sign up! bit.ly/3HzteV2

iamalsorg's tweet card. Join us on July 24, 2025 at 7pm ET for a 75 minute informational session where we will explore the unique needs of people living with ALS in long-term care ...

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I AM ALS@iamalsorg · Jul 24

"[In my time at the FDA] I'd like to see a cure for... neurodegenerative diseases like ALS." We couldn't agree more, @DrMakaryFDA. Glad to have you as part of the movement to #EndALS! bit.ly/4kRsqZq

iamalsorg's tweet image. "[In my time at the FDA] I'd like to see a cure for... neurodegenerative diseases like ALS." We couldn't agree more, @DrMakaryFDA. Glad to have you as part of the movement to #EndALS! bit.ly/4kRsqZq

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I AM ALS@iamalsorg · Jul 23

There's still time to sign up for the next session of the ALS Comedy Crew! Starting August 7, this group will meet on Thursdays for six weeks to do comedic exercises and connect with one another over a healthy dose of laughter. Sign up today: bit.ly/4nDKaKq

iamalsorg's tweet card. I AM ALS is excited to announce the return of the ALS Comedy Crew! The ALS Comedy Crew brings together individuals living with ALS, fostering meaningful con ...

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I AM ALS@iamalsorg · Jul 23

Last week's Ask Me Anything ALS all about writing was a smash hit! Huge thank you to the Scribes of Strength team and all of our panelists. In case you missed it, you can watch the full recording of the session on our YouTube channel: youtu.be/zl3pRP2IXAM

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I AM ALS@iamalsorg · Jul 23

Thank you for everything, Phil. Thank you Lori Andre (second from right) for sharing this photo.

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I AM ALS@iamalsorg · Jul 22

Imagine giving back to those who give their all: caregivers. Well, you can! Your support of the Credit for Caring Act will help provide caregivers with the support they deserve. Ask your elected officials to support this bill: bit.ly/4mw7klu

iamalsorg's tweet image. Imagine giving back to those who give their all: caregivers. Well, you can! Your support of the Credit for Caring Act will help provide caregivers with the support they deserve. Ask your elected officials to support this bill: bit.ly/4mw7klu

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I AM ALS@iamalsorg · Jul 22

Mike and Linda are partners in love and in life—and they advocate to end ALS together! These two are just the best. 🌟 Listen to Linda's powerful testimony to her Congressman from this year's ALS Community Summit: bit.ly/3UhQdGZ

iamalsorg's tweet image. Mike and Linda are partners in love and in life—and they advocate to end ALS together! These two are just the best. 🌟 Listen to Linda's powerful testimony to her Congressman from this year's ALS Community Summit: bit.ly/3UhQdGZ

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I AM ALS Retweeted

MGH Neurology@MGHNeurology · Jul 21

Please join us on Thursday, 7/24, at 5:00 pm ET for a research access discussion and Q&A session with Catherine Small and Judi Carey, RN from the Healey & AMG Center for ALS. #ALSResearch Register: mgb-org.zoom.us/webinar/regist…

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I AM ALS@iamalsorg · Jul 21

As we seek to reauthorize the ACT for ALS next year, we're collecting stories that highlight the immense value of this bill and the programs it supports. If you're involved in an Expanded Access Program funded by ACT for ALS, tell us your story! bit.ly/441wYHo

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I AM ALS@iamalsorg · Jul 21

One of the most powerful ways to make meaning out of a difficult situation is to share your experiences to help others. The Peer Support Initiative can match you with someone who needs someone just like you to support them. Learn more about the PSI: bit.ly/40iIk7X

iamalsorg's tweet image. One of the most powerful ways to make meaning out of a difficult situation is to share your experiences to help others. The Peer Support Initiative can match you with someone who needs someone just like you to support them. Learn more about the PSI: bit.ly/40iIk7X

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I AM ALS@iamalsorg · Jul 20

If you've ever wished you could help with I AM ALS' legislative efforts but just haven't had the time, we have good news. By signing up to become a constituent, you can help with specific legislation without lifting a finger! Learn more: bit.ly/4kuH7Cw

iamalsorg's tweet card. I AM ALS' Legislative Team needs your advocacy and your voice. Join us and take action by contacting your representatives to increase ALS funding!

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