Children's Cardiomyopathy Foundation
@CCFheartkids
The Children's Cardiomyopathy Foundation (CCF) is a non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle.
Meet Bennett! Bennett is a makeup enthusiast and, of course, all things pink. Bennett was diagnosed w/ both hypertrophic cardiomyopathy and dilated cardiomyopathy caused by myocarditis. Help us continue supporting kids like Bennett. loom.ly/FYnnTac #HeartKidsWhoInspire
Thank you to our Golf for a Cure sponsors for helping drive change for kids with pediatric cardiomyopathy! Your support gives families hope and brings us closer to better futures for heart kids. #MissionDriven #CCFGolfForACure #HeartHeroes
What’s new in hypertrophic cardiomyopathy? Join Dr. Paul F. Kantor and Dr. Jon Detterich—renowned leaders in pediatric cardiology—for a live session on August 1 at noon (ET). Reserve your spot: loom.ly/ifXs9DM #Cardiomyopathy #HCM #CHLA
Golf for A Cure is tomorrow! We're teeing off to support heart kids, and we can't wait to see everyone on the course. #MissionDriven #CCFGolfForACure #HeartHeroes
While our sign up for the golfing portion of our Golf for a Cure has passed, you can still join us for cocktails and dinner at the lovely Ridgewood Country Club. Register today! loom.ly/cYW5Hb8 #GolfForACure #RidgewoodNJ #RidgewoodCountryClub
Don't miss this expert-led discussion on hypertrophic cardiomyopathy with Drs. Paul F. Kantor and Jon Detterich of @ChildrensLA. Register today: loom.ly/ifXs9DM #Cardiomyopathy #HCM #CHLA
Join us August 1 at noon for an expert-led discussion on hypertrophic cardiomyopathy with Drs. Paul F. Kantor and Jon Detterich of @ChildrensLA. Register today: loom.ly/ifXs9DM #Cardiomyopathy #HCM #CHLA
Saoirse has a new heart. A brave girl facing severe hypertrophic cardiomyopathy and in heart failure, she received a life-saving heart transplant at @MayoClinic. Now the family is embracing each day of recovery and counting down the days until they can return home to New Jersey.
The deadline for sponsorship at our Golf for a Cure is July 5 to play at the prestigious Ridgewood Country Club. Sign up to be a sponsor while there's still time! loom.ly/cYW5Hb8 #GolfForACure #RidgewoodNJ #RidgewoodCountryClub
Deadline for sponsors to register for Golf for a Cure is almost here! Foursome spots are filling up. Sign up before the July 5 deadline. loom.ly/cYW5Hb8 #GolfForACure #RidgewoodNJ #RidgewoodCountryClub
Cardiomyopathy isn’t always visible, but it often runs in families and can lead to serious outcomes like heart failure or sudden cardiac death if not detected early. Together, patients and healthcare professionals can spot the signs of cardiomyopathy earlier; even when symptoms…
Gabe loves playing Fortnite and making new friends. Diagnosed with hypertrophic cardiomyopathy (HCM) Gabe received his new heart on May 19, 2024 after a two year wait. Help us continue supporting kids like Gabe. Make a gift today: loom.ly/FYnnTac #CCFHeartKids
Ruth Biller’s daughter Judith died of sudden cardiac death at the age of 14. A year later, she learned it was a cardiomyopathy. #ThinkCardiomyopathy For more information, visit: loom.ly/Hi-1zNU
CCF mom, Melissa, shares how advice for parents whose child is recommended for a transplant. #Cardiomyopathy #HeartMoms
We’re partnering with @GlobalHeartHub, an alliance of heart patient organizations, on the global awareness campaign, “Think Cardiomyopathy!” Watch this power video on the subtle signs of cardiomyopathy. #ThinkCardiomyopathy #CardiomyopathyAwareness #ThinkCM
I thought it was...... 🔺Diabetes fatigue 🔺Myocarditis 🔺Panic attacks 🔺Stress or anxiety But it was cardiomyopathy‼️ These voices remind us that not every case looks the same and symptoms can be subtle. Cardiomyopathy is often hidden, often misunderstood. Understand the…
Tee off for a great cause! CCF's popular golf event. We have a top-notch all-day event planned with digital scoring, great food, golf contests, and a lively evening program. Register today: loom.ly/cYW5Hb8 #GolfForACure #RidgewoodNJ #RidgewoodCountryClub
🚨 Be alert! Could it be more than you think? Cardiomyopathy can mimic other conditions. Sometimes, it doesn’t look like anything until it’s too late. If you or someone in your family has experienced: ⚠️ Heart failure ⚠️ Irregular heartbeat (arrhythmia) ⚠️ Chest pain ⚠️…
The Valor Study is testing an investigational study medicine to see if it may help improve heart failure in people under the age of 18. For more information please visit: loom.ly/PPOr3Oo #Ad
Ruth Biller’s daughter Judith died of sudden cardiac death at the age of 14. A year later, she learned it was a cardiomyopathy. When her niece survived the cardiac arrest six years before the death of her daughter, Judith, she believes they should have thought about…
CCF mom, Ranae, shares how she spoke with her son's physicians about sports participation. #Cardiomyopathy #HeartMoms