A 😎

Hey guys, I've created a GoFundMe for UK billboards. I've just chosen an arbitary target of £5,000 but as stated on the GFM, ALL decisions will be made with Twitter polls and the target can be amended at any time and I won't make any profits from this. gofundme.com/f/billboards-f…

Has anyone here with #severeME tried full leg compression devices, like this one? ⬇️ Would appreciate RT/repost if you can so I get eyes on this post. 🙏🏻🙏🏻🙏🏻 #MECFS #LC #MyalgicEncephalomyelitis

Heartbroken to hear about @Bridget_OShea. I spoke to her on Spaces many times and she was a truly lovely woman. (This was her flyer we handed out on LC Awareness Day) #LongCovid and #MECFS kill!!!

I’m so sorry you’re feeling this way. You matter, and I’m here—whether you want to talk, vent, or just not feel alone for a bit. Hope of getting well isn’t linear—it ebbs and flows with mood. There are days of improvement. I had one myself today—it lasted 90 minutes, but it…

Guys are there any long term risks of trialling a single dose 2mg Diazepam? I've finally got my hands on benzos and willing to try one to see if it helps me out but I'm anxious about akathasia, dependency, withdrawal etc i know it's only 1 dose but i'm in a bad way as it is

#LongCovid #MECFS #pwME #MutualAid #MutualAidRequest

For 15 yrs I tried to explain my symptoms, failing to even understand them myself. One day I just copied a list of 100+ and gave it to MDs. I don’t even know what’s on it, but I’m sure I have all of it and more than most can begin to comprehend. #MECFS #chronicillness #LongCovid

Dillon is almost finished his marathon swim. Yes, he's swimming 42km today for @MEResearchUK! That's 18hrs of swimming. This isn't getting the coverage it deserves. Does anyone in the ME community have any contacts in the MSM who could help us get more coverage?? #ME #MECFS

What I’ve learned from opening up beyond my anonymous acc. is that strangers often care the most. People I thought forgot about me never did. And those I thought were closest… weren’t. So many are silently suffering, waiting for someone to ask. #MECFS #chronicillness #LongCovid

youtube.com/watch?v=cDeu_O… Thanks to Simon Wesseley this poor guy with M.E at 12 years old (paralyzed and mute) was taken from his parents and then dropped into a deep swimming pool to 'test' if he was faking his illness. This was filmed 30 years ago! And it's still happening!

Did you get access to the Trio-Smart (Lactulose) test? Or has anyone else here in the community in Europe? I haven’t had the energy to contact support yet.