APS Support UK
@APSsupportUK
APS Support UK is dedicated to raising awareness of antiphospholipid syndrome (APS), supporting anyone affected by the condition and furthering research.
📢 Our 2025 Research Fund is now open — and has doubled to £20,000. We fund high-quality APS research as an NIHR non-commercial partner. Pilot studies, BSc studentships & travel awards supported. Apply by 5 Sept 2025 🔗 cutt.ly/research-grants #APS #MedicalResearch #Grants
🏃♀️ Huge congrats to Maggie Honey for smashing the London 10k in the heat with her son + his girlfriend — all repping APS Support UK vests! They’ve raised £1,040 – over 3x her target! 💜 🔗 justgiving.com/page/maggie-ho… #TeamAPS #London10k #APSsupport #CharityRun
Anti-CitH3 IgG indirectly enhances #PlateletActivation and exacerbates thrombosis by inhibiting NETs degradation, making it a valuable predictor of thrombosis and potentially serving as a new #biomarker for assessing #thrombosis risk: cutt.ly/crABuLtp
🩸👀 We wrote a paper for @BloodAdvances about antiphospholipid syndrome (APS), platelets, and purinergic signaling, with an eye toward potential therapeutic targets. See the Replies for a link to the article...
**Rheumatology doctors/nurses/physios in the UK** This is a short survey to map current reproductive health support/advice available across rheum services in the UK. Please fill it in & share within your networks to help guide next steps/guidelines 📑 qualtrics.ucl.ac.uk/jfe/form/SV_2l…
👏 Big shout-out to Andy, who ran @TheLondon10K in 1:10 #InMemory of his sister Annie, raising £670 for APS Support UK! “Hearing the announcer call out ‘Andy running for APS’ carried me in with a sprint finish.” 🔗 justgiving.com/page/andytang #TeamAPS #London10k #Fundraising
We are supporting the Algorithms + Miscarriage research project at the University of York looking at people's experiences of using social media or pregnancy apps following a miscarriage. If you are interested in taking part, please email Paul Ord: [email protected]
📣Help shape the future of clinical guidelines in thrombosis and hemostasis! The ISTH is inviting members and the broader community to submit topic proposals for future clinical guidelines. 🗓️ Deadline to submit: Monday, September 8, 2025 Submit today: bit.ly/4mbhsPp
Register now for the 🆕@ern_reconnet #webinar “Microvascular Involvement in Antiphospholipid Syndrome (APS)” with Prof. Savino Sciascia, moderated by Prof. Ricard Cervera. 🎯Audience: healthcare professionals 🗓️Sept 3rd - 16 CEST ✍️Registration is🆓 rb.gy/zeammx
"I had so many questions when I was first #diagnosed w #APS..#Questions that probably wouldn’t even cross your mind at all. But when you’re living with #AntiphospholipidSyndrome, every small action..becomes a puzzle to solve": buff.ly/z63rons #InvisibleIllness
🆕 We’ve added a new APS haematology specialist covering Rhyl & Bangor to our UK directory! Huge thanks to the patient who let us know 💙 Your tips help others find expert care. 📍 See the list: cutt.ly/specialists-in… #AntiphospholipidSyndrome #Haematology #APS #NorthWales
“You have the easy autoimmune disease.” Janet Church heard this after a month in hospital with Sjögren’s. On #WorldSjögrensDay, we’re highlighting why awareness matters: cutt.ly/qrPSO6IU Sjögren’s & APS: cutt.ly/related_condit… #APS #Autoimmune #APSawareness @SjogrensOrg
Today is #WorldSjögrensDay 💜 Many with #APS also live with Sjögren’s – an autoimmune condition causing dry eyes, dry mouth, fatigue & joint pain. We stand with everyone navigating both. 🔗 nhs.uk/conditions/sjo… 🔗 sjogrensuk.org #Sjögrens #APSawareness #Autoimmune
Today is #WorldSjögrensDay A message from our Chair: "Let’s make a difference however we can. Tell someone how it really feels, share what this disease means to you." What are you proud of today? Share your moment with #ProudWithSjögrens & tag us so we can celebrate with you!
📢 It´s World Sjögren's Day! Let’s bring attention to Sjögren's syndrome, an autoimmune condition that causes dry mouth, dry eyes, fatigue. Raising awareness can help improve diagnosis, management, support for those living with this challenging condition. #eularADVOCACY #EULAR
Their absence is always felt. Through every milestone, family occasion and every family photo. We understand that the pain of #PregnancyLoss and #BabyLoss doesn’t just go away. Please know we are here for as long as you need us 💜🧡 ➡️ sands.org.uk/support
📢 Calling #arthritis #researchers! We’re thrilled to announce the Versus Arthritis Translational Call 2026. We’ll be offering up to £250k for projects that demonstrate a clear commercial solution to a musculoskeletal clinical need.
Support charities with your old treasures! From coins and foreign currency to electronics and jewellery—your donations help raise funds while reducing waste. Ready to make a difference? recyclingforgoodcauses.org #CharityRecycle #ReuseForGood #SustainableFuture
Our August issue is live! Including research on patient-reported outcomes in #PMR, maternal autoantibodes and fetal congenital heart block, and occupational therapist-led care for hand #OA, plus much more! thelancet.com/journals/lanrh… Cover by Sara Gironi Carnevale
The Black Pearl Media Award celebrates impactful rare disease storytelling. 🏆 Last year, @uniamofimronlus’s #RareDiseaseDay campaign reached 7M+ people across Italy! 🇮🇹 Know a campaign that made waves? Nominate it now for the #EURORDISAwards2026 ⬇️ ✨ go.eurordis.org/Nominate