A Chronic Voice

"My aim with this site is to raise #awareness about lifelong #illnesses from various #perspectives" - I've updated my #AboutPage to provide more information and resources. Check it out here! buff.ly/2EPRmiZ #MondayBlogs

“It isn’t hard to see why slipping into a sense of #normalcy was so easy. That taste of #freedom felt good, felt great! Until it didn’t. Was it worth it? Yes! Until it wasn’t.” (The Fine Lines of #ChronicIllness): buff.ly/48fA9Jb by @illandwell #ChronicPain #NEisVoid

“getting absorbed in challenging activities, setting & meeting #goals, maintaining close #social ties & finding #purpose..increase life satisfaction. It isn't #happiness per se that promotes #wellbeing, it’s the actual pursuit that’s key.”: buff.ly/VJQqlmj via @psychtoday

“Once you take a #pill, liquid, or drop, it’s in your body doing its thing. Before putting anything into your body, STOP: FOCUS on what you’re doing, and READ THE #LABEL before using any #medication.”: buff.ly/iBerLnm by @illandwell #ChronicIllness #spoonies

“Why r these conditions not systematically addressed in #MedicalSchool, residency, fellowship or continuing #medical #education progs? This omission is striking, particularly given their relevance across every specialty.”: buff.ly/zU5jOyN via @gohealio #InfectiousDiseases

“These #doctors and lab tests are here to guide me, but the final decision lies with me. No one else will bear the #consequences or inhabit my body thereafter, and I need to be sure that I can live with that”: buff.ly/5y38yZC #ChronicIllness #surgery #MondayBlogs

“But then comes Chapter 5. U walk down a different street..that..surprised me. Because it never occurred to me that u could just..not do the same thing at all. This feels esp relevant in the land of #toxic #relationships. Or soul-sucking #jobs.”: buff.ly/5zNoRJ6 #SelfCare

“People tend to think of #neurodivergence as something that lives in the #brain..But for many #neurodivergent women — myself included — the experience doesn’t stop at the mind. It lives in the body. It flares up in #ChronicIllness.": buff.ly/sloiNvW #spoonie

“#Advocacy #support is abt having some1 in yr corner — when you’ve run out of strength, options, or patience..another #human being, not a chatbot or a checklist, standing beside u & saying, ‘..I see u. I’m not letting this get buried’”: buff.ly/5tS2ieE by @HouseboundFrnds

"An approach to ensuring your safety in these instances is to pre-plan with loved ones how u would like them to #support u if they notice early signs or symptoms. In their book #BipolarDisorder (2010)..liken this to a ‘fire drill’.": buff.ly/abrvGux from @psyche_the_mag

CW: #death . “A non-#disabled, #healthy person might have the #privilege of thinking that they’ll do all the things they like & travel the World once they #retire, but I don’t have this privilege." (I Found Out 1 Of My Subscribers Died): buff.ly/1WnxTk5 by @maja_urukalo

“Unfortunately, the initial enthusiasm of these posts is often squashed by someone rightly noting that the #animal’s #reaction is not joy or pleasure, but fear, anger or pain.”: buff.ly/lDscaC9 from @aeonmag #anthropomorphism #animals #emotions

“Spending time #outdoors is deeply embedded in #Finnish #culture..#Finland’s 'Everyman’s Rights' (jokaisenoikeudet) allows everyone to roam freely in #nature, which means we can form a deeper connection.”: buff.ly/LTQ42ru via @womanandhome

“I know that to the ave person, it’s hard to believe–how someone could walk a mile or 2 but not stand still for 5 mins. Esp someone like me in their mid-30s who appears totally “normal.”” (The Truth #DisabledPeople Are Tired of Hiding): buff.ly/QlRNsjV by @itsmevox #POTS

"Fun fact: the #brain weight of #newborns is approximately 10% of their body weight, as compared to 2% in adults..poor #nutrition can have lifelong impact on “#cognitive, motor, and socioemotional skills”.": buff.ly/41GRPw3 @SpectraSpray #MondayBlogs

“The current model treats #family #caregivers as convenient gap-fillers..This isn't just morally bankrupt—it's strategically foolish. Research..shows that when family caregivers are properly..trained & supported, #patient outcomes improve dramatically": buff.ly/F1QtlWh

“If I earned enuf at my..#jobs to pay rent & buy groceries, I made too much money to be eligible for #Medicaid. If I wasnt #homeless & hungry, I was too rich for assistance” (Realities of Trying to Maintain #Employment w a #Disability): buff.ly/spMoDZg by @2heartcore4u