Tourettes Action
@tourettesaction
The UK’s leading support and research charity for people with Tourette Syndrome & their families.
Yes, Tourette’s does have a huge impact on the lives of those with Tourette’s & their families & yes it hurts. BUT, the right support can make a huge difference💚 #TourettesHurts #Tourettes youtu.be/_Y8KOC863bs?si…
Grace Cope, the incredible lead singer in our 2025 Awareness Campaign has been in the recording studio! We are so excited to share that her new single ‘Summer Days’ is out on 24 July and is available to pre-save now! buff.ly/1Fy2w0V We can’t wait to hear it!

Support Tourettes Action and win cash prizes! 🎉 Just £1 per ticket enters you into a weekly draw with a £25,000 top prize. Every ticket helps support 300,000+ people with Tourette syndrome in the UK. 💚 Play now: buff.ly/NrCIHwG

Run the Yorkshire Marathon for FREE! Grab your charity place by raising £575 for Tourettes Action and help support those living with Tourette’s. 📍 York | 📅 19 Oct 2025 🔗 buff.ly/07QVc3z Let’s go! 💪

Run the Royal Parks Half Marathon for FREE! 🌳👟 📅 12 Oct 2025 | 📍 London 🆓 Free charity place 🎯 Raise £400 for Tourettes Action Every mile supports people with Tourette syndrome 💙 👉 Sign up: buff.ly/X8nMkcX

Work in education? Want to better support students with Tourette syndrome? Join our webinar for teachers, SENCOs & school staff – full of practical advice & expert guidance. 🎟️ Just £5 📅 Book now: buff.ly/9qAgiT8 👪 Parents, please share!

🚨 Extra spaces now available for our Adult Weekend at Whitemoor Lakes! 📅 8–10 Aug 2025 | 🎯 Canoeing, archery & more! 💷 £65 all in | 🛏️ Shared ensuite rooms 📩 Email [email protected] Diagnosis & payment needed by 29 July, 4:30pm.

Misunderstood Hoodies & T-Shirts now available! T-Shirts: £11 adults | £10 children Hoodies: £25 adults | £22 children Every purchase helps us continue our work supporting the TS community. 👉 Check them out in our online shop: buff.ly/rJr4jnQ

Urgent need for better training, funding & service access for #TouretteSyndrome We need the support of @NICEComms @NHSEngland @DHSCgovuk @wesstreeting if we are ever going to #LevelUp and stop the postcode lottery that currently exists. @MJGroom @CBabbage_ @InstituteMH
🚨 A new study in @BMJMentalHealth highlights major gaps in #tic & #Tourette syndrome services for #children in #England. Only 19% of areas offer full assessment & treatment pathways. Urgent need for better training, funding & service access. @ucl @UniofNottingham…
🚨 A new study in @BMJMentalHealth highlights major gaps in #tic & #Tourette syndrome services for #children in #England. Only 19% of areas offer full assessment & treatment pathways. Urgent need for better training, funding & service access. @ucl @UniofNottingham…
Brandon is a para athlete that runs for Ireland. Brandon has Tourette's and autism. He recently ran in Paris and got second place and last year got a silver medal in the British Champs. He is currently looking for sponsorship, reach out to him at [email protected]


We’ve been campaigning for change for over 30 years: We know what good care looks like. The right care at the right time can transform your life. But too often, people are unable to access the services they need. sign the open letter NOW bit.ly/ActForThe1in6 @NeuroAlliance
Such a powerful trailer - we can’t wait for the film release 💚
Based on a powerful true story, I Swear is a frank, funny & moving account of one man’s experience with Tourette syndrome. Starring Robert Aramayo, Peter Mullan, Shirley Henderson and Maxine Peake - don't miss it in cinemas from October 10th. #ISwearFilm
The first publication from the INTEND study is now available mentalhealth.bmj.com/content/28/1/e… All 42 ICBs in England, covering 295 places, were asked about provisions they had in place for the diagnostic & treatment of #Tourettes Only 12 have a full pathway in place majority in London!
You asked for us to create T Shirts for the misunderstood campaign, we listened and these are now in production. They will be £11 for adults and £10 for children. Comment below and we will let you know when they go on sale :-)

Interviewing someone with Tourette syndrome? 🎯 ✅ They don’t have to declare TS on a form. ✅ Stress can make tics more noticeable — that’s normal. ✅ Ask what adjustments might help. That’s a green flag! Be a conscious employer. More tips 👇 buff.ly/bKpa4y1

Run the Oxford Half with us this October! Tourettes Action will fund your place when you pledge to raise £400 to support people living with Tourette syndrome. 💚 Take on something incredible. Sign up here: buff.ly/tuzVilf

We need action from govt, not words. Too many people affected by neurological conditions are still facing a reality where their needs are not met. Please sign our open letter to the Secretary of State for Health and Social Care and tell him: act now bit.ly/ActForThe1in6
Kicks for @tourettesaction I'm completing a minimum 20,000 martial arts kicks in July. The plan was to have a higher target, but unfortunately, I’ve injured my knee and still recovering, so tackling this one with a handicap 🦵 justgiving.com/page/paul-glos…