NF2 BioSolutions UK & Europe

We have been keeping a little secret from you! BUT .... we can now share this news!!! We are more than delighted to let you know that our Dr Grace is back in the research team, researching NF2. #endNF2

ICYMI New funding for NF2 research from the research team at the @GJBrainResearch Title: Understanding CD8+ T cell responses in NF2-Schwannomatosis-related vestibular schwannoma tumours Funder: UKRI / Medical Research Council Value: £710k Read more here: gjbrainresearch.org/2025/07/18/new…

The latest news from the lab!

Interested in Patient involvement using YOUR lived experience of NF2? Great Opportunity to get involved with the Manchester Rare Conditions Centre nterested? Find out how to apply and learn more here mrcc.org.uk/engagement-adv… ⏳ Deadline Monday 25th August

It’s hard to explain… unless you’ve lived it. It’s exhausting. It’s invisible. And yet—you keep going. #VeDA #VestibularAwareness #YouAreNotAlone #DizzyNotLazy #InvisibleIllness #ChronicIllnessCommunity #VestibularDisorders #RelatableChronicIllness

Another infographic to start the knowledge this week. Thats NF2, all those tumour types #endNF2 #NF2awareness #neurofibromatosistype2 #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

We are delighted to congratulate @GraceGregory_ and @AdamPJones98 on receiving their PhDs at the official graduation ceremony on Thursday 10th July - officially Drs! We extend congratulations from everyone xxxx #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

So as the eminent Prof DG Evans finally retires all we can do is wish him well in his much reserved retirement and say thank you - You Made a Difference .. 👏

Small Molecule Inhibitors of TEAD Auto-palmitoylation Selectively Inhibit Proliferation and Tumor Growth of NF2-deficient Mesothelioma aacrjournals.org/mct/article-ab…

Midweek knowledge!!1 Did you know tinnitus affects MANY of those with NF2 The Four Different Types of Tinnitus: Subjective tinnitus Somatic tinnitus Objective tinnitus #endNF2 #NF2awareness

Midweek knowledge!! Did you know it was that many? Eye problems really are very common in NF2 and yet are probably one of the most overlooked areas both pre and post treatment (no pun intended!) . Look after your eyes! They are the windows to your soul! #endNF2 #NF2awareness

🚨 Our 3rd Annual Report is out! From the new epilepsy research theme to cutting-edge clinical trials and significant project funding, we’ve had a year of growth and impact. 📄 Read the report here: shorturl.at/OP618 Accessible version (Word): shorturl.at/7TRym

We are starting midweek knowledge about NF2 today, and, how it can affect us. Did you know there were so many mutations in fact there are probably many more? There is so much variability with NF2, we are all different and we are all affected differently. #endNF2 #NF2awareness

#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey #StrongerTogetherAgainstNF2

#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey #StrongerTogetherAgainstNF2

Proud to be part of these networks and collaborative movements. .#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2prognosis #nf2research #nf2awarenessday #StrongerTogetherAgainstNF2

braintumourresearch.org/blogs/latest-n…

Phase II study of axitinib in patients with NF2-related schwannomatosis and progressive vestibular schwannomas pubmed.ncbi.nlm.nih.gov/40575410/

sciencedirect.com/science/articl… Integrated proteomic and targeted Next Generation Sequencing reveal relevant heterogeneity in lower-grade meningioma and ANXA3 as a new target in NF2 mutated meningiomas

The summer newsletter is out. mailchi.mp/nf2biosolution…