n-Lorem Foundation

@n_lorem

Non-profit discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life

Carlsbad, CA

Joined July 2020

562Following

1KFollowers

Pinned

n-Lorem Foundation@n_lorem · Jul 1

📬 Our 2025 Annual Letter is here! Read ➡️ nlorem.org/our-approach/c…

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n-Lorem Foundation@n_lorem · 20 h

Extracting RNA like it’s liquid gold—because in this lab, it is 🪙

n-Lorem Foundation@n_lorem · Jul 25

Great to be at the inaugural ReNU Hope Conference and Scientific Symposium! n-Lorem featured two presentations and a scientific poster highlighting our ReNU research efforts.

n_lorem's tweet image. Great to be at the inaugural ReNU Hope Conference and Scientific Symposium!

n-Lorem featured two presentations and a scientific poster highlighting our ReNU research efforts.

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n-Lorem Foundation@n_lorem · Jul 25

Art by Emmery, who lives with KIF1A-Associated Neurological Disorder. Like a wave, she rises again and again. 💙💜

n-Lorem Foundation@n_lorem · Jul 25

Meet Emmery 💜 An n-Lorem patient from Alabama living with KIF1A Associated Neurological Disorder (KAND). Her mom, Valerie, recently shared their story on @whnt whnt.com/news/madison/o…

n_lorem's tweet card. As a parent, you only want what’s best for your child, but when things don’t go as planned, it can be defeating. That’s the case for a family from Madison and their daughter, who&…

n-Lorem Foundation@n_lorem · Jul 23

Why are we making custom drugs for free? Because no one else will.

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n-Lorem Foundation Retweeted

Squawk Box@SquawkCNBC · Jul 23

@ionispharma and @n_lorem Founder Stanley Crooke joins to discuss the fight against rare diseases with his new foundation, that treats patients for free, for life. cnb.cx/46k8OJZ

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n-Lorem Foundation@n_lorem · Jul 21

The 2025 Nano-rare Patient Colloquium Agenda is here! 🧬 Get ready to be informed, inspired, and connected. The nano-rare community is coming together—don’t miss it! ✅ Register to join us in-person or virtually 🎤 Explore the speaker lineup and bios nlorem.org/nano-rare-pati…

n_lorem's tweet image. The 2025 Nano-rare Patient Colloquium Agenda is here! 🧬

Get ready to be informed, inspired, and connected. The nano-rare community is coming together—don’t miss it!
✅ Register to join us in-person or virtually
🎤 Explore the speaker lineup and bios

nlorem.org/nano-rare-pati…

n-Lorem Foundation@n_lorem · Jul 17

No @MLB games today? We've got you covered. While your favorite team rests, check out this incredible painting by Mostyn—a young fan living with a nano-rare KCNB1 mutation—who finds comfort in baseball on even the hardest days ⚾🧬

n_lorem's tweet image. No @MLB games today? We've got you covered.

While your favorite team rests, check out this incredible painting by Mostyn—a young fan living with a nano-rare KCNB1 mutation—who finds comfort in baseball on even the hardest days ⚾🧬

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n-Lorem Foundation@n_lorem · Jul 15

We’re proud to welcome ChemGenes as a gold sponsor of the 2025 Nano-rare Patient Colloquium! As a trusted partner, ChemGenes supports n-Lorem by manufacturing ASO drug substances in a range of batch sizes, from non-GMP to GMP standards. Register: nlorem.org/nano-rare-pati…

n_lorem's tweet image. We’re proud to welcome ChemGenes as a gold sponsor of the 2025 Nano-rare Patient Colloquium! As a trusted partner, ChemGenes supports n-Lorem by manufacturing ASO drug substances in a range of batch sizes, from non-GMP to GMP standards.

Register: nlorem.org/nano-rare-pati…

n-Lorem Foundation@n_lorem · Jul 14

Retweet if you believe every life—no matter how rare the mutation—is worth fighting for.

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