More Than a Tremor

Referring to #Parkinsons as a ‘movement disorder’ doesn’t do it justice, it’s so much more. In this clip from part 3 of my story, ‘More than a Tremor’ I talk about the language of Parkinson’s and how it informs (mis)perception. Watch Part 3 in full here youtu.be/nQV7BYoYvQY

From one Parkinson’s podcast to another … petition.parliament.uk/petitions/7137… We’ve just signed and hoping others will too. Keep up the good work! Kuhan & Dave 2 Parkies in a Pod

In this episode of 2 Parkies in a Pod, @morethanatremor shares his experience with deep brain stimulation (DBS) surgery. He walks us through every step, from arriving at the hospital and enduring the intense operation, to the powerful moment when the device was activated.

Staggered into the neurology hospital last month full of fear, walked out with a skip in my step & renewed hope after 2 tiny computers were implanted in my chest, wired to 4 electrodes in my brain.. all controlled from a phone!🎧👉🏼’DBS Diaries’ 2parkiesinapod.com #parkinsons

Go behind the scenes with Kuhan as he undergoes his brain surgery (DBS).. from the nerves beforehand, the emotion of ‘switch on’ day and to how his life has changed since #parkinsons #deepbrainstimulation

It may not seem much but previously my Parkinson’s made this impossible but thanks to those magical brain implants (#DBS) my tremor, dyskinesia & fatigue are all greatly reduced.. and we’re able to enjoy the simple pleasures in life again 🙏🏼

PODCAST ALERT - MEET THE BRAIN SURGEON! This week we chat to one of the team who carried out a life changing operation on @morethanatremor …. @HarithAkram he tells us about his journey from Baghdad to brain surgery… and how DBS can help #Parkinsons x 2parkiesinapod.com

Well this is a 1st! in a new episode of 2 Parkies in a Pod we chat with a member of the neuro surgery team performing DBS on me! @HarithAkram tells us about his personal motivations to help pwp, explains what to expect & tells me why I’m a complex case 👉🏼 2parkiesinapod.com

Great paper from this fab team on the impact a Parkinsons diagnosis can have on mood & motivation

To the amazing team at this place who successfully implanted electrodes in my brain, connected to a computer in my chest and gave me some respite from my Parkinson's ...thank you for giving us our lives back' 🙏🏼🙏🏼🙏🏼💙

What a difference a week and brain surgery makes! Stairs like this used to be my nemesis but thanks to deep brain stimulation I’ve found some freedom for now thanks to the fab team @uclh 🙏🏼 #parkinsons #deepbrainstimulation

Parkinsons DBS The moment of truth 💫 Long road ahead and it’s not a cure but for now I’m eternally grateful to the entire @nhs team at the National Hospital for Neurology & Neurosurgery @uclh for giving me back my life 🙏🏼 #parkinsons #deepbrainstimulation

Humbled that our little Parkinson’s podcast, 2 Parkies in a Pod, has hit 250K listens! 💙 We’re beyond grateful to this amazing community that continues to reminds us we’re never alone on this journey 🙏 2parkiesinapod.com

Proud to support @CureParkinsonsT

Balance is a complicated thing 🫣especially when you have Parkinson’s! 2 Parkies in a Pod have a fascinating chat with expert neuro physio Laura Douglas from @theneuroheroes who offers some words of wisdom @parkinsonsuk 2parkiesinapod.com

2 Parkies in a Pod are back with a brand new episode (44)! We hear from listeners 📩 Dave takes a tumble 😩 & Kuhan reveals his Parkinson’s trick for winning tennis 🎾😁 2parkiesinapod.com

Free therapeutic mime videos for people with Parkinson’s. @ParkinsonsEU parkinsonseurope.org/2025/05/14/mim… @ParkinsonCanada @ParkinsonsUK @ParkinsonsEU @ParkinsonDotOrg @womenspdproject @ajlees @ParkinsonSWO @jonny_acheson @morethanatremor @DaveClarkTV @PdAvengers @purposeful_pd

‘57% cancel or avoid social situations due to embarrassment about their Parkinson's’ … i know that feeling 🙃 Let’s lose the stigma 🙏🏼 parkinsons.org.uk/news/world-par…

Ep 43 of 2 Parkies in a Pod we talk to Prof @janealty1 about hallucinations & sleep issues in #parkinsons Plus Kuhan almost gets run over & Dave does a rap! 👉🏼2parkiesinapod.com Learn more about Parkinson’s 👉🏼enrol in the free course develop by Jane mooc.utas.edu.au/course/20278

‘If I have a really really good night’s sleep, I can still now wake up - 12 years into this - and I can forget I have Parkinson’s… it’s that powerful’ watch the full video from @abbvieuk about sleep disturbances in Parkinson’s 👉 youtu.be/1S6GauUXVec?si…