Lewy Body Society

The Lewy Body Society is no longer active on this platform. We will not be posting or monitoring messages and comments. Stay up-to-date with us on LinkedIn, Bluesky, Facebook and Instagram or our website lewybody.org. Links to our other social sites are in the thread…

50th birthday today. Good day off. Done loads. But - I made sure I went to see a Main man in John Mills to show him we made the local paper @rotherhamtiser about @MainMaltby’s awareness and fundraising for @lbsorg. maltbymainfc.co.uk/news/1002/plea…

More connections at the International Lewy Body Dementia Conference #Amsterdam. Thank you to Rachel Thompson, Alison Killen and Allison Bentley - our Community of Practice. And Sylvia White and Maggie - who both have lived experience of Lewy Body Dementia. #ILBDC2025

Want to join our research group? If you are a carer for someone with #dementia or live with #dementia, and live in the North West of England, join our #Equadem network as 1 of 2 Public Advisor Researchers for 4 years! my.corehr.com/pls/ulivrecrui…

Our Lewy List is calling on the Government to recognise our four priorities: ➡️The right for all people living with dementia to be treated with dignity and respect ➡️The right to early and accurate diagnosis ➡️The right for Lewy body dementia to be recognised as a distinct…

Lovely to see our colleague Dr Maria Cecilia Fernandez from @LewyBodyArg at the International Lewy Body Dementia Conference in Amsterdam today. We are exhibiting posters today on the 18 years of Lewy Body Society impact by our CEO Jacqui Cannon and our founder Ashley Bayston's…

Prof Ian McKeith, LBD superstar legend and great friend to LBS, on the progress of knowledge in the field over the past 30 years. His Lifetime Achievement Award is well deserved. #ILBDC2025 #LewyBodyDementia #dementia

Prof Evelien Lemstra of VUMC opens the International Lewy Body Dementia Conference. #ILDMC2025 #lewybodydementia

Good morning from the International Lewy Body Dementia Conference 2025 in Amsterdam. Our founder Ashley Bayston and CEO Jacqui Cannon are raring to go. Great to see so many of our friends here. #ilbdc2025 #lewybodydementia #dementia

What do you know about Lewy Body Dementia? This #WorldLewyBodyDay find out more about a common - but under-discussed - disease youtube.com/watch?v=zKRGBK…

As the second World Lewy Body Day draws to a close for us in the UK, we are handing over to our sister organisations around the world. Thank you to everyone who has supported us and amplified our message. Together we will work to improve lives for people living with Lewy body…

Lewy body dementia consultant Admiral Nurse Rachel Thompson, funded by LBS, explains the key symptoms of #Lewybodydementia. They can be quite different from other dementias. Contact the Admiral Nurses on 0800 888 6678 or [email protected] #WorldLewyBodyDay #WLBD2025…

Today is National Lewy Body Dementia Day—and unlike many "National Days," this is not one anyone wants to celebrate. Lewy Body Dementia is a little-understood yet common form of dementia. It often affects younger people but can strike at any age. Tragically, its symptoms…