Lymphoma Coalition
@knowyournodes
Global network of lymphoma patient organisations sharing resources & best practices; acting as a central hub for reliable information.
📊 Supporting Immunocompromised Patients People with #lymphoma and #CLL can be both #immunocompromised and face #immunosuppression—whether from the disease itself or as a result of treatment. When clinically appropriate, telemedicine or virtual care is one of the ways to protect…
Did you know that Lymphoma Canada offers patient guides, factsheets and resources, which are FREE of charge, in both downloadable and hard copy versions. Visit our patient resources page and download/order your copies today: lymphoma.ca/resources/pati… #PatientResources
“We really need to work together to ensure that if there are gaps, we are identifying them on a global scale.” — Prof. Eliza Hawkes, Global Chair of the Lymphoma Registry Alliance (LyRA) and lymphoma specialist at Monash University in Melbourne, Australia. During ICML, at the…
🧠 WLD25: Knowledge Saves Lives Fatigue, bleeding, bruising, bone or joint pain, fever, night sweats, and repeated infections. Recognizing them early can save lives. #WLD2025 #KnowTheSigns #BeLeukemiaAware #ActForLeukemia #EarlyDiagnosisSavesLives
Lymphoma Coalition is pleased to share a new article co-authored by CEO, Lorna Warwick, which outlines global charter for improving care for people living with Chronic Lymphocytic Leukemia (CLL). The charter, developed with input from advocacy organisations, clinical experts,…

📢 WLD25 Awareness Starts With You You don’t need to be a doctor or a scientist to make an impact—your story, your post, your voice can shift someone’s perspective. 🗓️ September 4 is coming. #WLD2025 #ActForLeukemia #BeLeukemiaAware #TogetherForChange
📽️ Lorna Warwick, CEO of Lymphoma Coalition recently sat down with, ONCOLife for an in-depth interview on the role of patient advocacy in improving access to CAR T-cell therapy. In the interview, Lorna highlights key real-world barriers patients face, including delayed…

Pathogens and Lymphoma webinar series starts tomorrow - EBV and lymphomagenesis with Marie Donzel, @jenamengual, Amira Marouf, Florence Broussais-Guillaumot & @SoniSmithMD Register to join live ➡️ us06web.zoom.us/webinar/regist…
At #EHA2025, Lorna Warwick, CEO of the Lymphoma Coalition (@knowyournodes), highlights findings underscoring the vital role of clinician communication in managing adverse effects and supporting patient confidence in #lymphoma and #CLL care. Watch here: bit.ly/4lgL4Lz
During ICML 2025, Lorna Warwick, CEO of Lymphoma Coalition and member of the CAR T Vision Coalition Steering Committee, was invited to speak with VJHemOnc about the newly launched initiative, highlighting the importance of incorporating the patient perspective to improve access…
In the second and final part of her interview with The American Journal of Managed Care at #EHA2025, Lorna Warwick, CEO of Lymphoma Coalition, expands on the findings of the abstract: The Effect of Unaddressed Side Effects on Patient-Reported Confidence in Care Plans Among…

25 Posts Not to Miss from EHA 2025 @EHA_Hematology | @ASH_hematology hemostasistoday.com/insight/eha-20… #Hematology #HemostasisToday #NEJM #Medicine #Health #EHA2025 #EHA25
“We’re not just focused on medical outcomes—we have to listen more and more to the patient voice.” Filmed at #18ICML, Professor Marek Trněný, Chair of the Czech Lymphoma Study Group and Fellow of the Learned Society of the Czech Republic, speaks to the growing importance of…
In this interview, @LornaWarick, CEO of the Lymphoma Coalition / @knowyournodes, discusses the adverse effects experienced by patients with #lymphoma and #chroniclymphocyticleukemia, and how it impacts their well-being if left unaddressed. Watch now! hubs.li/Q03sbGVQ0
25 Posts Not to Miss from EHA 2025 (@EHA_Hematology) @ASH_hematology | @NicoGagelmann | @knowyournodes | @AuclairDan | @TalhaBadarMD | @majorajay | @DrOlaLandgren | @VincentRK | @VivekSubbiah | @AnnaSureda5 | @Dr_AmerZeidan | @sanamloghavi | @SabrinaRanero…
📣 During #EHA25, Lorna Warwick, CEO of Lymphoma Coalition, spoke with The American Journal of Managed Care (AJMC) about the often-overlooked impact of side effects for people living with lymphoma and chronic lymphocytic leukemia (CLL). In the first part of this interview, Lorna…

Save the date! Our next webinar series will run throughout July - stay tuned for updates
@LornaWarwick from @knowyournodes at #EHA2025 on how unaddressed side effects undermine patient confidence in lymphoma and CLL. ajmc.com/view/unaddress…
Lymphoma Coalition is pleased to see this important research on chronic lymphocytic leukemia (#CLL) care featured at #EHA2025. The poster and abstract focus on advancing shared decision-making in CLL, ensuring that care reflects the individual goals, preferences, and values of…

📢 Presentation Highlight – EHA 2025 During EHA 2025, Natacha Bolaños, Head, Membership & Alliances at Lymphoma Coalition, presented during the EHA Lymphoma Group session on “Lymphoma treatment – When to start, when to stop and how to judge outcomes: What is really important for…
