Jonathan Boote π³οΈβππͺπΊ #FBPE
@jonathanboote
Health & social care researcher. Associate member of @ICPHR. Ex #PPI lead of @ARC_EoE #Cat owner #Leukaemia survivor #Cricket lover #Rejoiner #Progressive.
A quick #leukaemia-related post: I started my final cycle of maintenance treatment on Monday, with my last iv chemo infusion. So, it's just one more intrathecal to go, along with daily & weekly chemo pills π til mid November, followed by 5 years of regular check-ups #Cancer
'Pharmaceutical industry professionals' perceptions of the value of patient engagement: a qualitative study'. New paper in Current Medical Research & Opinion tandfonline.com/doi/full/10.10β¦ open access!!
'How are patient partners involved in health service research? A scoping review of reviews.' New paper in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'Impact of involving young people & family caregivers in developing reporting guidelines for paediatric randomised trials'. New commentary in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'Creating the conditions for effective patient & public involvement & engagement in community-based public health research'. New commentary in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'Incorporating patient & public involvement in statistical methodology research: summary of workshop proceedings'. New commentary in Statistics in Medicine doi.org/10.1002/sim.70β¦ open access!!
'Distinguishing participants, patients & the public: implications of different institutional settings on engagement approaches'. New paper in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'Reflections on co-designing inclusive community involvement in research with people experiencing homelessness'. New commentary in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
In the words of the great Ken Loach, let's privatise his funeral, put it out to competitive tender, and accept the cheapest bid. It's what he would have wanted. independent.co.uk/news/uk/politiβ¦
'Students' perspectives on embedding patient & public involvement & engagement into a doctoral training centre'. New commentary in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'Measuring impacts of patient & public involvement & engagement: a narrative review synthesis'. New paper in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'Seven actions towards advancing patient authorship & collaboration in peer-reviewed publications'. New commentary in 'The Patient'. link.springer.com/article/10.100β¦ open access!!
'Patient & public involvement in the design & implementation of a randomised controlled trial: a process evaluation'. New paper in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'Evaluation of the impact of patient & public involvement on doctoral students in palliative dementia care research'. New paper in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'Reporting public involvement in a systematic review project using the ACTIVE framework'. New paper in Health Expectations onlinelibrary.wiley.com/doi/10.1111/he⦠open access!!
'Lessons learned from building a randomised trial with an online children's & parents' research advisory group'. New paper in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'Patient & public involvement in a methodology study investigating electronic patient-reported outcomes in oncology clinical trials'. New commentary in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
Made me chuckle π #jdvancememe
This may be my favorite so far.
'Research note: patient & public involvement in research'. New paper in Journal of Physiotherapy sciencedirect.com/science/articl⦠open access!!
'Peer researchers in NHS research - approved in principle, undermined in practice?' New commentary in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!
'The ultimate power play in research - partnering with patients, partnering with power'. New commentary in BMC Research Involvement & Engagement researchinvolvement.biomedcentral.com/articles/10.11β¦ open access!!