Immune Deficiency Foundation

Want to learn more about your immune system? If you or someone you know gets sick more often than others, our free self-assessment tool helps you understand your symptoms and gives you insights to discuss with your healthcare provider. bit.ly/40yDy6l

Well, this was unexpected.

If you treat patients with recurrent infections or unexplained immune symptoms, the 2025 Medical Summit is for healthcare professionals like you! This two-day event (October 8-9) focuses on strengthening diagnostic skills for primary immunodeficiencies! bit.ly/44AhgC9

For those living with PI, cleaning isn't just about tidiness—it's about health protection. @CleanInstitute created a new "levels of clean" guide to help. Learn more about the Levels of Clean: cleaninginstitute.org/cleaning-levels #immunedeficiency #primarimmunodeficiency #healthyhome

For our X followers also on Facebook, #WalkForPI has its own Facebook group! Whether you're looking to learn more or are already registered to walk, the group offers a convenient space to receive updates, connect with walkers, and more. Join now: bit.ly/4nA9AIR

Genetic testing may fast-track (or rule out) a primary immunodeficiency diagnosis.

Read the full statement here: bit.ly/40adhei

#WalkForPI highlight: St. Louis! We're thrilled to return to STL again this year, and as the second walk of the season, we will see our Midwest #PICommunity Saturday, August 16 at Six Flags St. Louis. Register today or view more events: bit.ly/4ethYFR

If you're undergoing a hematopoietic stem cell transplant or have had a transplant within the last year, this card will help you communicate your condition/specialized needs during an emergency visit! bit.ly/4l0Pwhd

Our office will be closed today for the Fourth of July! We will return to the office Monday, July 7.

Your workplace may double or even triple your gift to immunocompromised individuals through matching gift programs! Check if your employer participates on our website or ask HR directly. Support the #PICommunity and maximize your impact today: bit.ly/4nxfmuY

Could AI help shorten the time to diagnosis for people with primary immunodeficiency?

The U.S. House of Representatives passed a budget bill in May that cuts $863.4 billion from Medicaid and threatens health coverage for those with primary immunodeficiency (PI), including a family affected by severe combined immunodeficiency (SCID). bit.ly/3ZCMbMG

Today, Takeda announced that the FDA has approved GAMMAGARD LIQUID ERC with less than or equal to 2 µg/mL IgA in a 10% solution, the only ready-to-use liquid immunoglobulin (IG) therapy with low immunoglobulin A (IgA) content. Click here to read more: takeda.com/newsroom/newsr…

Charitable financial assistance programs provide funds to patients with rare, chronic, or life-threatening conditions that offset expenses like prescription copays, monthly health insurance premiums, and costs related to travel for treatment. bit.ly/46bdx0i

To protect the primary immunodeficiency community, urge your members of Congress to oppose the 2025 budget reconciliation bill until Medicaid working requirements and other provisions that reduce federal program funding are withdrawn. bit.ly/3FqtCV8

We are excited to introduce you to our #WalkForPI manager, Jessica! She is dedicated to ensuring the success of every walker and serves as a valuable #PICommunity resource for questions, tailored fundraising ideas, and more. Register for Walk for PI today: bit.ly/3ZZUsu4

Gene therapy is in clinical trials for several types of primary immunodeficiencies (PI) and offers an alternative to hematopoietic stem cell transplantation when a suitable donor is not available. Many severe types of PI will likely be treated by gene therapy in the future!

Attention PI researchers! We're offering grants of $25K-$50K for groundbreaking studies. Don't miss this opportunity. Apply by June 30, 2025: bit.ly/3ZtRLAW #MedicalInnovation #ResearchGrants