Global MPN Scientific Foundation

The MPN Journal helps patients track symptoms, fatigue, and medications, all in one place. 📲 👉🏻 Prof. Ruben Mesa (@mpdrc) has reviewed the tool and recommends it to patients: “I encourage MPN patients to look at this resource.” Share it! → gmpnsf.org/post/what-does… #MPNsm

😓 MPN fatigue is real. It goes far beyond just feeling tired. 💡 Learn what helps: exercise, nutrition, rest, and support. 🔗 New blog at gmpnsf.org/post/are-you-f… #MPNsm

🔓 A new way to join @MPNWorld! Faster, multilingual & more secure than ever. Connect with other MPN patients worldwide — in just a few steps.  No cost. Just support. 👉 gmpnsf.org/post/a-new-way… #MPNWorld #MPNsm

🧠🩸 Emotional wellbeing and medical care must go hand in hand. That’s why we’re launching The Wellbeing Project — a new support space for MPN patients. Tools for calm, strength and self-care — along with physical treatment. 📩 gmpnsf.org/post/join-our-… #MPNHope #MPNsm

We’re currently enrolling participants in our Phase 2 clinical trial for people living with polycythemia vera (PV), a rare blood cancer. Watch the video to learn more about the investigational treatment and study details. bit.ly/3TKBnsm

JAK2 mutation: 97% ➡️ almost zero. Francesc explains how Besremi + clinical trial changed his PV journey. His story brings new hope to MPN patients. 🎥 Full video: gmpnsf.org/post/mpn-hope-… #MPNHope #MPNsm @mpdrc

I’ve been living with #PV for 40+ years — and the MPN Journal helps me track symptoms, meds & fatigue. Now I show my hematologist clear info at each visit. 💡Created by patients, for patients. @gmpnsf Try it 👉 gmpnsf.org/post/mpn-journ… #MPNsm

Looking for better patient-reported outcomes in MPN? ✅ The MPN Journal is a new tracking tool developed by patients, in collaboration with @gmpnsf. 🧠 Track symptoms, treatment, lifestyle 🌍 11 languages 🔒 100% anonymous 🔗 gmpnsf.org/post/mpn-journ… #MPNsm @mpdrc

🔴 New video: “Nutrition for MPN” is now live! 👉🏻 Expert dietitian Carla Not explores anti-inflammatory diets, key supplements (like magnesium & turmeric), and food strategies to boost energy in MPN patients. 🎥 Watch: gmpnsf.org/post/video-i-n… #Nutrition #NutritionMPN #MPNsm

🩸 Women + MPNs = a conversation long overdue with Dr. Natalia Curto. 🩺 🎥 Part 1 of our webinar on pregnancy, menstruation & menopause is now live: 🔗 gmpnsf.org/post/video-i-w… #MPNsm

🧠 Exercise & MPNs: Safe Movement for Better Outcomes Physical activity can ease fatigue, improve mood, and support cardiovascular health in MPN patients—but it must be done cautiously. ✔️ Warning signs to stop ✔️ Hydration guidance 🔗 gmpnsf.org/post/exercise-… #MPNsm

🧠 Emotional wellbeing matters in #MPNs too. Join our upcoming workshop on Emotional Freedom Techniques (EFT) for patients & caregivers. 🗓 July 8 · 6PM CEST 💬 Spanish w/ English interpretation 🎓 Led by certified EFT facilitator Elena Mendoza 🔗 us06web.zoom.us/webinar/regist… #MPNsm

🥗 Just published! Inspired by our nutrition webinar with Carla Not, here’s a Weekly Meal Plan for MPN patients 🧬 ✅ Anti-inflammatory ✅ Omega-3 rich ✅ Simple & effective 📲 See now: gmpnsf.org/post/weekly-me… #MPNsm

🎥 NEW VIDEO: Roundtable on #ClinicalTrials for #ET patients (USA) now available! Prof. Hugh Rienhoff + powerful patient stories. 🖥️ Watch now: gmpnsf.org/post/video-rou… #MPNsm

🎥 Could divesiran be a new treatment for PV? 👉🏻 We talked to @SilenceTheraPlc about their RNA-based therapy in our latest webinar. ▶️ Watch now: gmpnsf.org/post/video-a-n… #MPNsm

How can anti-inflammatory diets and supplements help people living with MPNs? Join our next webinar with oncology dietitian Carla Not. 🗓 July 1st | 🕕 6PM CEST | 🌍 With English interpretation 🔗 Register now: gmpnsf.org/post/webinar-n… #MPNsm

👉🏻 Could Navtemadlin change how we treat #Myelofibrosis? 🧐 In our recent webinar, Dr. Verstovsek shared key insights on this promising oral therapy from @KartosThera. 📺 Full replay here: gmpnsf.org/post/videos-fr… #MPNsm

📢 New treatment options for Essential Thrombocythemia are coming. 🧬 Join our roundtable June 25 with expert Prof. Hugh Rienhoff and patient stories from across the 🇺🇸 USA. 🗓️ Clinical trials matter — your voice matters. 🔗 Register now: gmpnsf.org/post/roundtabl… #MPNsm

🧬 Clinical trials in MPNs. Explore why patient insight is key to real progress. 🔗 gmpnsf.org/post/would-you… #MPNsm

📹 Just one week after #EHA2025 👉🏻 Prof. Haifa Kathrin Al-Ali shares exclusive insights on MPN research, new combination therapies and CALR-targeted treatments. A must-watch from one of the top KOLs in hematology. 📲 gmpnsf.org/post/prof-haif… @mpdrc #MPNsm