Fragile X Society, UK
@fragilexuk
Fragile X Syndrome is the most common inherited cause of learning disability. We support & empower individuals, families & professionals.
If you, or your loved one, are feeling anxious about shopping or using public transport, our new design #FragileX Assistance Cards may help - avail from our online shop in 2 pack sizes: 15 cards in a case for £1, or 100 cards in a box for £3 (plus P&P): fragilex.org.uk/product-page/a…
Be sure to check out the FX Shop for all your FX merchandise needs at ow.ly/gzQl50VxgEA
The FXS resources can be found on our website at fragilex.org.uk/resources
Interested in taking part? The team have produced a video to introduce themselves:- vimeo.com/1001119097 There is an info sheet with more details at:- oxfordxpsy.az1.qualtrics.com/jfe/form/SV_0e….
We are joining Sibs on Thursday 10th April to recognise and celebrate the siblings. NationalSiblingsDay2025, they play a valuable role in their unique relationships. Share your stories, pictures, drawings & poems sibs.org.uk/nsd
We are delighted to share that the Patrick Wild Centre are launching their 1st webinar series for this year on Gene Therapy with Dr Ralph Hector, Senior Research Fellow, at SIDB on 29/04/25 at 8:00 PM - 9:30 PM. Please sign up using the following link events.teams.microsoft.com/event/47c6965d…
Just 2 days left until the Edinburgh conference! Can't wait to see and meet you all! 😊
Come join us on 22nd March 2025 for a day filled with support & information for families affected by Fragile X Syndrome. Connect with other families facing similar challenges & share experiences. We have exciting speakers planned. Register Here for FREE! ow.ly/4k5U50VhcfU
We're excited to see some great candidates applying for our contract position in Scotland! If you're interested in joining us, we'd love to hear from you. Please send your CV to [email protected] Check out more details here: ow.ly/tVj250VaWmy
Register now for the FX Conference. We have exciting speakers planned so don't miss this opportunity to bond with other families & learn more about Fragile X Syndrome. Register Here for FREE! ow.ly/oJnj50Vgkb5
Join us for a day filled with support & information for families affected by Fragile X Syndrome. We have exciting speakers planned so don't miss this opportunity to bond with other families & learn more about Fragile X Syndrome. Register for FREE Here! eventbrite.co.uk/e/fragile-x-sy…
Patrick Wild Centre are looking for FX volunteers(aged 3-45) Their study is sensitivity to touch. This brief video provides a clear overview of what takes place during the meeting. Want to find out more? Contact [email protected] or sign up here: outlook.office365.com/book/TouchFXS@…
MathMIND is a study on Mathematical Inclusion for children with Fragile X aged between 4 – 9. Interested in taking part? The team have produced a video to introduce themselves:- vimeo.com/1001119097 Please contact [email protected] with any questions or to take part.
Come join us on 22nd March 2025 for a day filled with support & information for families affected by Fragile X Syndrome. We have exciting speakers planned so don't miss this opportunity. Register Here for your FREE TICKET! eventbrite.co.uk/e/fragile-x-sy…
Children with FXS can find it difficult to manage & react appropriately to information coming via their senses. Do you have any questions or experiences to share? Contact Alison at [email protected] or check out more information here: fragilex.org.uk/single-post/se…
We're excited to see some great candidates applying for our contract position in Scotland! If you're interested in joining us, we'd love to hear from you. Please send your CV to [email protected] Check out more details here: ow.ly/jEoQ50VaWmC
Please register to save your space at the FX Conference:- ow.ly/XH0P50ULLGM
Nathasha is presently working on her master's dissertation, which is a project titled 'What do you think about hearing aids?' Please see her story and research project on the link below and share any thoughts you may have to help! Thank you ow.ly/jmBb50V66hr
Over 300 million people globally living with a rare disease, we join hands across borders & amidst the 6000+ rare diseases to advocate for access to diagnosis, treatment, care, & social opportunities. The key message for Rare Disease Day 2025 is "More than you can imagine!"
