European MS Platform

@eumsplatform

Advocacy and expertise for over 1 million people living with #MultipleSclerosis, NMOSD and MOGAD in Europe.

Brussels

Joined June 2012

960Following

5KFollowers

European MS Platform@eumsplatform · Jul 23

Join us at the @ECTRIMS Patient Community Day Sept 26, 2025 | Barcelona + Online Designed for people with MS, related neurological diseases & caregivers. #ECTRIMS4me ✅ Get latest treatment breakthroughs ✅ Connect with community ✅ Expert knowledge from leading researchers

eumsplatform's tweet image. Join us at the @ECTRIMS Patient Community Day
Sept 26, 2025 | Barcelona + Online

Designed for people with MS, related neurological diseases &amp; caregivers. #ECTRIMS4me
✅ Get latest treatment breakthroughs
✅ Connect with community
✅ Expert knowledge from leading researchers

European MS Platform@eumsplatform · Jul 18

Still figuring summer plans? Make it matter! 🏃‍♀️ Join inspiring MS warriors like Eline-Sofie at EMSP's MS Awareness Run - November 2nd. Push your limits while fundraising for MS Register: emsp.org/events/msrun20… #MSRun #RunForACause #MSAwareness #EMSP #FitnessGoals

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European MS Platform@eumsplatform · Jul 10

NMO and MOGAD are rare conditions, often misdiagnosed as MS, leading to wrong treatments and delayed care. Our latest #LetsTalkMS episode dives into: What NMOSD & MOGAD really are Why is it misdiagnosised How patient communities drive change Tune in now: bit.ly/4eI8HtS

eumsplatform's tweet image. NMO and MOGAD are rare conditions, often misdiagnosed as MS, leading to wrong treatments and delayed care.

Our latest #LetsTalkMS episode dives into:
What NMOSD &amp; MOGAD really are
Why is it misdiagnosised
How patient communities drive change

Tune in now: bit.ly/4eI8HtS

European MS Platform@eumsplatform · Jul 3

Invisible ≠ insignificant MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence & quality of life. Brain fog, pain, depression... all real, all unseen We must recognise #InvisibleSymptoms & support ALL aspects of #MS

eumsplatform's tweet image. Invisible ≠ insignificant
MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence &amp; quality of life. Brain fog, pain, depression... all real, all unseen
We must recognise #InvisibleSymptoms &amp; support ALL aspects of #MS

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European MS Platform@eumsplatform · Jul 2

At 17, Luigi Azzarone faced mysterious symptoms & an MS diagnosis. Through it all, one person made all the difference: his nurse Nurses play a key role in a patient's disease journey. Read his story 👇 bit.ly/4ltWNpy

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European MS Platform@eumsplatform · Jun 27

Our JUNE newsletter is HERE! ✨ EMSP 2025 Conference highlights 🎙️New podcast episodes on mental health & stigma 🏃‍♀️MS Awareness Run registration open 🌍 World MS Day celebrations worldwide Plus new courses, research updates Read: bit.ly/46ihro9

European MS Platform@eumsplatform · Jun 26

Newsletter: Innovative MS initiatives from across Europe, RWD training launch, EU Pharma Package hot take & more - mailchi.mp/a3d62e6de77c/a…

European MS Platform@eumsplatform · Jun 23

Family Planning & Pregnancy webinar for MS healthcare professionals! Join us: 🗓️July 4th 🕑 15:00 CEST Learn: Evidence-based strategies Care coordination tips Person-centered approaches Speaker: @Laetitia della Faille, NMSC Melbroek Register: bit.ly/3FZTbwz #MSCare

eumsplatform's tweet image. Family Planning &amp; Pregnancy webinar for MS healthcare professionals!

Join us:
🗓️July 4th 🕑 15:00 CEST
Learn:
Evidence-based strategies
Care coordination tips
Person-centered approaches

Speaker: @Laetitia della Faille, NMSC Melbroek
Register: bit.ly/3FZTbwz
#MSCare

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European MS Platform@eumsplatform · Jun 20

MS Awareness Run is BACK Research shows movement significantly impacts brain health. Put on your running your shoes and join us to raise MS awareness. 🏃‍♂️🏃‍♀️ Not a runner? You can make a difference. Register: bit.ly/45qFmBA RT to spread the word! 💙 #MSRun2025

eumsplatform's tweet image. MS Awareness Run is BACK
Research shows movement significantly impacts brain health.
Put on your running your shoes and join us to raise MS awareness. 🏃‍♂️🏃‍♀️

Not a runner? You can make a difference.
Register: bit.ly/45qFmBA
RT to spread the word! 💙
#MSRun2025

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European MS Platform@eumsplatform · Jun 19

65% of people with #MS experience bladder control issues—ranking among the top 5 most debilitating symptoms. For 23%, these invisible symptoms cause severe daily limitations. Time to break the silence. Invisible ≠ insignificant. #WorldContinenceWeek #MultipleSclerosis @Lili_Bxl

eumsplatform's tweet image. 65% of people with #MS experience bladder control issues—ranking among the top 5 most debilitating symptoms.
For 23%, these invisible symptoms cause severe daily limitations.
Time to break the silence. Invisible ≠ insignificant.
#WorldContinenceWeek #MultipleSclerosis
@Lili_Bxl

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European MS Platform@eumsplatform · Jun 13

Mark your Calendar: 📍@ECTRIMS 2025, Barcelona 📷 24 Sep Join the session on cutting-edge research on EBV & #MS development + therapeutic interventions Register: bit.ly/4kIda1U Visit EMSP booth #11 at #ECTRIMS2025 to learn more about our projects. @UiB @Lili_Bxl

eumsplatform's tweet image. Mark your Calendar:
📍@ECTRIMS 2025, Barcelona 📷 24 Sep

Join the session on cutting-edge research on EBV &amp; #MS development + therapeutic interventions

Register: bit.ly/4kIda1U

Visit EMSP booth #11 at #ECTRIMS2025 to learn more about our projects.
@UiB @Lili_Bxl

European MS Platform@eumsplatform · Jun 13

The 11th Congress of the @EANeurology is coming to Helsinki 📅 June 21-24, 2025 📍 Helsinki, Finland + Online Theme: "Neurology within Society" Latest advances in neurological care & research—including key developments for the #MS community. Register: bit.ly/4mZmSyj

European MS Platform@eumsplatform · Jun 2

🦠 Could a common virus hold the key to understanding Multiple Sclerosis or even prevent it altogether? This is the question the EBV-MS project which EMSP partners on is trying to answer. Watch the video ➡️bit.ly/3FpHwa3 #MultipleSclerosis #MSResearch #EBV

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European MS Platform@eumsplatform · May 30

As per our #IMSS survery the average wait time for #MultipleSclerosis diagnosis is 3 years! Timely diagnosis= Improved outcomes Join @MSIntFederation @WorldMSDay webinar on "Improving MS Diagnosis" Starting: 14:00 CEST Join: bit.ly/3Ss9OU9

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European MS Platform@eumsplatform · May 30

3 years. That's how long people wait on average for a #MultipleSclerosis diagnosis. 3 years of uncertainty without the right treatment. On #WorldMSDay, we're focusing on Navigating Diagnosis. Early diagnosis = better outcomes. @Lili_Bxl #IMSS

eumsplatform's tweet image. 3 years.
That's how long people wait on average for a #MultipleSclerosis diagnosis.
3 years of uncertainty without the right treatment.

On #WorldMSDay, we're focusing on Navigating Diagnosis. Early diagnosis = better outcomes.
@Lili_Bxl #IMSS

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European MS Platform@eumsplatform · May 23

"Let's Talk MS" new episode out now @Lili_Bxl & @annarevillab tackle MS diagnosis impact on young people with expert guests Yolanda Higueras (PhD neuropsychologist) & Janneke Knol @eumsyouth Raw stories ➡️ actionable hope bit.ly/43ciHYj @MentalHealthEur

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European MS Platform Retweeted

European Brain Council@EU_Brain · May 21

📢1 month to go until #EAN2025! Join us in Helsinki for the 11th Annual EAN Congress! Submit your membership applications before 31 May for reduced rates - don't miss out on this opportunity! #EANeurology Learn more about the EBC sessions & register now👉braincouncil.eu/event/ean-cong…

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