Epilepsy Action
@epilepsyaction
Epilepsy says stop. We say go.
If I told you I have epilepsy… how would you react? 💜 Watch, reflect, and help normalise the conversation. 👉 Please share this video and help us change the narrative. #EpilepsyAwareness #ChangeTheNarrative #EndTheStigma
🗣️ I've called for an update on epilepsy services following @epilepsyaction's Seizing Change report. Patients in the @HywelDdaHB area are waiting up to 36 weeks to be seen – the longest waiting time on record. ⚠️ The Welsh Gov must address waiting times and workforce shortages.
5 years since the Cumberlege Report. No redress. No justice. Becci, Susan & Anna have a message for the government. Watch now: youtu.be/iPS5gxmPLbw Write to @wesstreeting and demand action.
“We need redress with respect.” Susan trusted the system. She was never warned about valproate’s risks. 5 years since the Cumberlege Report, still no redress. Watch Susan’s story & write to @wesstreeting. youtu.be/iPS5gxmPLbw
“That medication has caused him so much harm.” Becci’s child was harmed by valproate – and 5 years later, they’re still waiting for justice. Watch Becci’s story on YouTube & write to @wesstreeting to demand action. youtu.be/gA79fkwrKpg
“We need to heal.” Susan and her daughter Anna are living with the effects of valproate. 5 years after Cumberlege, still no redress scheme. Watch their story. Write to @wesstreeting. youtu.be/qr69sZctvds Write to @wesstreeting and ask him to act.
Parliament has passed the government’s welfare bill after another big U-turn on PIP, meaning no changes will be made to this benefit at this time. Read more on our website: epilepsy.org.uk/news/pip-u-tur…
We stand with our ambassador Paula McGowan as she and Tom mark a major milestone in their campaign for safer, more personalised care. Find out more with our resource for people with epilepsy and learning disabilities: epilepsy.org.uk/professional/b… bbc.co.uk/news/articles/…
Doodlers Digest is a puzzle book from @epilepsyaction & @doodleday created to support wellbeing through mindful activities. The 12-page book is full of puzzles, drawing prompts & more delivered to you for a £10 monthly donation. Register your interest: epilepsy.org.uk/doodlersdigest
🚨 Urgent PIP Update! 🚨 Thanks to YOU, we’ve reached 40% of MPs with our #DontTakeThePIP form! 🙌 But the vote’s next week – we need one final push: ✅ Fill in the form if you haven’t ✅ Ask your MP to vote NO Let’s protect PIP – together epilepsy.org.uk/DontTakeThePIP
Our 'If I Told You' campaign shows epilepsy is more than seizures for many like Isabella it affects love, friendships, and daily life in ways many don’t see. Our new video explores this, watch now: youtu.be/DMoYoH9Civs?fe… Read Isabella's story here: getsurrey.co.uk/news/health/i-…
New data from the #MyNeuroSurvey by @NeuroAlliance reveals people with epilepsy continue to face serious challenges in getting the support they need. We need action, please sign the open letter now. epilepsy.org.uk/news/neuro-sur…
80% of people wouldn’t know what to do if someone was to have a seizure. Don’t be one of them. Remember CARE: Comfort, Action, Reassure, Emergency. If you have epilepsy download our free Seizure First Aid Guide for your phone lock screen. epilepsy.org.uk/news/festivals…
Thank you to Helen Maguire MP for raising awareness of epilepsy in Parliament. Your voice helps bring much-needed attention to the challenges faced by those living with epilepsy, and we’re grateful for your support. #DontTakeThePIP
What happens when you tell your friends you have epilepsy? Some step up. Some walk away. This is real life - and it needs to change. Watch this story and help break the stigma. For more information visit: epilepsy.org.uk/if-i-told-you #EpilepsyAwareness #EndTheStigma
Thank you - it was greet to meet you and to have your support.
It was good to meet with @epilepsyaction to talk about their Seizing Change report. The report highlights the need to recruit epilepsy nurses and neurologists in Wales, particularly in the Hywel Dda area. We discussed the report and the need for investment in the workforce.
Would you still love me if I had epilepsy? For some, this question is real - and heartbreaking. Epilepsy is part of someone’s life, not their whole identity. Watch this story and help break the stigma. #LoveAndEpilepsy #EndTheStigma #EpilepsyAwareness
What would your boss do if you told them you have epilepsy? 👔 Workplaces must be safe for everyone—with or without epilepsy. 👉 Watch, share, and challenge stigma where you see it. #EpilepsyAtWork #ChangeTheNarrative #EpilepsyAwareness
You can live with epilepsy - and still be a hero to your children. This Father’s Day, we honour dads like Mounir Nasraoui, father of Lamine Yamal. Earlier this week he shared his journey with epilepsy. Read more below: #FathersDay2025 #UKFathersDay pulsesports.ng/football/story…
It’s your LAST CHANCE take part in the Epilepsy Insight Survey! 🗣️ This is your chance to influence how we support people with epilepsy. It’s quick, powerful & could change lives. 🔗 research.net/r/EA25x
