Cure HHT

📅 Mark your calendars and get ready to join us for the 2025 HHT Patient & Physician National Conference hosted in Dallas, Texas (Nov. 8-9)! This event will bring together HHT experts, patients, & healthcare professionals to share the latest while forging important relationships

Imagine 1 MRI instead of 3 to detect AVMs! The AVIATOR Study is testing a breakthrough MRI for brain, lung, & liver AVMs in one visit – a potential new HHT screening gold standard. Adults with HHT, help us! Contact: [email protected] or 708-275-2798

If there’s one thing the HHT community knows how to do, it’s confront a challenge head-on. Advocacy is one of those challenges — and one of the most critical tools we have for improving HHT outcomes. It takes all of us. Learn more: curehht.org/get-involved/s…

Cure HHT Leads Global Breakthrough in Bleeding Standards. Read the press release: curehht.org/cure-hht-leads…

Early diagnosis of HHT means finding symptoms of the disease even when they aren’t visible. @slusom Chair of Pediatrics Dr. Andrew White explains how this process works and why it’s so important. youtu.be/y-UOPU2kgvk  ❤️ curehht.org/donate #SeeBeyond #HHTAwareness

This is it. We're so close to our goal, and yet so far away. We're calling for final donations before the end of June to help us get to our goal of $100,000 so we can utilize all of our match dollars. Give today: curehht.org/donate #SeeBeyond #HHTAwareness

Go behind the scenes with the Diagonal Therapeutics team to learn more about how their partnership with Cure HHT supports groundbreaking research and innovative treatments. youtu.be/0fWlwX4q30I #SeeBeyond #HHTAwareness

It's Tuesday, Qs-day! Today's question is... what percentage of people with HHT have brain AVMs? #SeeBeyond #HHTAwareness

Today we're watching how Hollywood portrayals hereditary hemorrhagic telangiectasia (HHT) by watching Chicago Med, season 1 episode 10 (Clarity). Watch along and tell us what you think they got right and wrong. #SeeBeyond #HHTAwareness

This month is about lives, ending suffering, & sparking hope. ✨ Your donation before 6/30 is DOUBLED. That's 2x the impact for research, education, & patient support, and individuals like Tobias! curehht.org/beyond-the-vis… #SeeBeyond #HHTAwareness

It's HHT Awareness Month! 🎉 Go #BeyondTheVisible with our NEW downloadable resources: 🗓️ Engagement Idea Calendar 🖍️ HHT Coloring Pages 📷 Customizable graphics Easy ways to raise awareness & get involved! Get yours free: curehht.org/hht-awareness-…

Want to help raise HHT awareness this June? Our "Beyond the Visible" campaign highlights unseen challenges. We've made it EASY! Grab free social media resources – posts, graphics & more – here: curehht.org/hht-awareness-… #SeeBeyond #HHTAwareness

Global HHT Awareness Day is almost here! 🗓️ On June 23, we celebrate 1.4M+ worldwide impacted by HHT. Your support fuels research & hope. Ready to make a HUGE difference? Mark your calendar! Give now: curehht.org/donate #SeeBeyond #HHTAwareness

It's Tuesday, Qs-day! Today's question is... what percentage of people with HHT have at least mildly elevated pulmonary artery pressures? BONUS: What does this mean? #SeeBeyond #HHTAwareness

During HHT Awareness Month our "Beyond the Visible" campaign tackles unseen challenges. Watch Dr. Al-Samkari, from @massgenbrigham explain the science behind unseen bleeding and iron deficiency anemia in HHT: youtu.be/4xPMtvo_y-U #SeeBeyond #HHTAwareness

Much of HHT is invisible. So is much of the work to cure it. This #HHTAwarenessMonth, go Beyond the Visible and see how Cure HHT is doing more than you may realize—bringing us closer to real treatments, not just symptom management. 🎥 ow.ly/BKaA50W7SbR

New items have been added to the Cure HHT online store! Place your order soon to gear up to raise HHT awareness! store.curehht.org/collections/all

HHT Awareness Month in June: "Beyond the Visible"! Help us support those with unseen HHT challenges. Get your FREE DIY Fundraising toolkit & kickstart your event! curehht.org/hht-awareness-… #HHTAwareness #SeeBeyond Donate directly: curehht.org/donate

One of the hardest parts of HHT can be the feeling that other people don’t understand it. Events are a great way to connect with other people in the community while also supporting awareness & education. Learn more: curehht.org/get-involved/u… #SeeBeyond #HHTAwareness

It's Tuesday, Qs-day! Today's question is... Those with iron deficiency may not be able to correct anemia with diet alone. What can be helpful? #SeeBeyond #HHTAwareness