brainstrust
@brainstrust
brainstrust - the brain cancer people. Here to help people with any type of #braintumour & their loved ones to live the life they want after diagnosis
A brain tumour diagnosis can be terrifying, but you don't have to face the road ahead alone. In the face of an isolating disease brainstrust helps ensure you are connected and supported so that you can live your best possible life. Visit brainstrust.org.uk to find out more.

We had an enquiry from a patient this week who was about to undergo Gamma Knife Therapy. If you or a loved one is about to receive radiotherapy, we have a guide to help you understand the treatment. Download available here; buff.ly/4SIWd8v

BRAINSTRUST SUPER MOVIE MARATHON This August 2nd - 3rd community members Pete & Jo are hosting a two-day Superman movie marathon and online watch party to raise funds for people living with brain cancer. Let’s fly high together for a great cause! buff.ly/9mWZCRx

This week is Glioblastoma Awareness Week. There are around 3200 people diagnosed each year in the UK with a Glioblastoma. brainstrust is here to support you if one of those people. To access our Glioblastoma dedicated resources please click here; buff.ly/NAEtlW1

Today is the day for second ballot results for entry into the London Landmarks Half Marathon in April 2026. If you've not been successful, brainstrust has places. If you'd like to participate in this iconic event for a great cause, click here ; buff.ly/t9C4H2l

Overwhelming fatigue is a condition universal to almost all brain tumour diagnoses. That's why brainstrust has created resources designed to help. Check out our webpage on how to manage fatigue and download our "my fatigue book". buff.ly/Xs5xke0


brainstrust know that brain tumour patients need emotional and practical support too. That's why we offer resources on finances and benefits. With PIP payments in the news, it may be good to know that we also have an advisor who can help. learn more; buff.ly/AiVaHIG

If you'd like to run and raise money for brainstrust, the York 10k might be for you. However, the closing date for this event, described as one of the country’s most beautiful city runs, is 11th July. To enter Yorkshire's biggest 10k, please click here; buff.ly/YtOmv0q

brainstrust supports The#RareCancers Bill. This is a vital step toward improving diagnosis, treatment, and support for people with rare and less survivable cancers. The bill aims to incentivise research and investment into rare cancer treatments. products. #RareCancersBill

We’d love to see you at one of our many upcoming events. Scroll on to see what we have in store for you this July. This month we have a range of support groups, workshops, and focus groups. You can also find full details of all our events at: buff.ly/LhDYTlX




This week, Tracey is joined by Chris Kamara! Chris joined Tracey for a leg of her 5000 mile trek in Saltburn-by-the-Sea, where they joined BBC Radio for about Tracey's fundraising efforts. BBC appearance: buff.ly/1x7gDYZ Support TraceysTrek: buff.ly/UkMoXzz




We know that for brain tumour patients and carers, returning to work is tough. It can be a big step in recovery but it can also be daunting. brainstrust has produced a Returning to Work sheet outlining your rights and also advice. Download the guide here; buff.ly/onvzkxE

If you have a Colloid Cyst diagnosis and would like to talk to others in a similar position, come along to our virtual meet up on Friday 27th June at 1.00pm. There's no agenda - just come and say hello. Carers/families welcome too. To register click here; buff.ly/k9Sm00E

Whether you're living with a brain tumour or supporting someone who is, you're invited to join our meetup in Glasgow. Open to patients, carers, family members, and anyone affected by a brain tumour. We’d love to see you there. To register click here; buff.ly/oQiY3s3

The fabulous Cardiff Half Marathon will be selling out soon. The route is flat, fast and passes all the city’s iconic landmarks and stunning Cardiff Bay. If you'd like a place to run for brainstrust. please click here; buff.ly/rbgA82F

The ballot for the iconic London Landmarks run 2026 has now closed. If you didn't enter but would like to - great news! brainstrust has 15 charity places. These will be snapped up, so if you'd like to enter and run for brainstrust, please click here, buff.ly/tW4xKgm

A huge brainstrust shout out to Gabriel Barinstein. After Gabriel's recovery from a brain tumour, Gabriel became a Bright Minds Volunteer Ambassador and went on to raise over £4000 for brainstrust in a Tough Mudder event. Read his amazing story here. buff.ly/T2gSWS7

Our fantastic brainstrust Trustee Jack Jarvis is embarking on the Atlantic Dash on June 16. Jack, and team will be rowing 24 hrs a day, to try and break the current fastest crossing time of 46 days. Support their charitable mission here buff.ly/19LMUi4

Read Elo's moving self penned piece on her reasons for running the Paris Marathon for her best friend Yas who was diagnosed with a brain tumour. Thank you Elo! buff.ly/OkH4W9u


If you have been alarmed by recent media coverage around the contraceptive Depo Provera and enhanced Meningioma risk, then read the facts in braintrust's latest Know How guide, available here; buff.ly/wZrVCcG #DepoProvera


Best of luck to Kate and Rebecca as they get ready to smash their previous swim times in the Great North Swim this Saturday! We can’t thank them enough for raising an incredible £1669 (and counting) for brainstrust. buff.ly/w45Za1B


