Annie Heffernan
@a_e_heffernan
MPH | Research Associate @BWHNeurosurgery | Low Grade Glioma Registry/OPTIMUM @gliomaregistry
The International Low Grade Glioma Registry (@gliomaregistry) is a partnership of researchers, clinicians, patients, and care partners working together to advance glioma research. Join our community to help make a difference! Learn more: gliomaregistry.org/eligibility


Do you struggle with “scanxiety” or experience emotional distress surrounding fear of tumor recurrence? Our friends at the @LiveNOWLab are inviting brain tumor patients and caregivers to participate in a psychotherapeutic intervention. Contact [email protected] if interested!


Help us spread the word! Our partners at the University of Colorado are testing a new virtual health education program for Hispanic and Latino people with LGG. Details below. Complete the pre-screening survey here: bit.ly/3YvRJYG Questions: [email protected]




We’re stronger together! Help us advance glioma research by joining our community of over 900 people with LGG today. Learn more about us and see if you are eligible: gliomaregistry.org/eligibilityb


If you have been diagnosed with a low grade and/or IDH-mutant glioma, join @gliomaregistry to help us try to better understand what genetic & environmental factors may be related to glioma risk. Join us in our battle against brain tumors. Learn more at gliomaregistry.org

If you have been diagnosed with a glioma, consider joining The International Low Grade Glioma Registry to help us understand why people develop these brain tumors and how best to treat them. Learn more about us and see if you are eligible: gliomaregistry.org/eligibilitya


Learn about disability programs that provide financial support for people with brain tumors with @gliomaregistry's webinar “Navigating Disability Benefits.” Watch the recording on our website or YouTube channel.🧠 gliomaregistry.org/disability youtube.com/@gliomaregistry

If you have been diagnosed with a glioma, consider joining @gliomaregistry. Signing up is easy and most steps can be completed online! Learn more about our research and see if you are eligible: gliomaregistry.org/eligibility


Approximately 90,000 people in the US are diagnosed with a primary brain tumor every year. Learn about brain tumor types, treatment options, and more at the link below.🧠 @gliomaregistry @SaludAmerica English: salud-america.org/7-things-you-s… Spanish: salud-america.org/7-cosas-que-de…

Help us in our mission to advance research on glioma brain tumors by joining The International Low Grade Glioma Registry (@gliomaregistry) today! Learn more and find out if you are eligible: gliomaregistry.org/eligibilityb

Interested in learning more about different types of low-grade gliomas? Check out “LGG Information” on the @gliomaregistry website to read about molecular classification of LGGs, symptoms, treatment strategies, and more! 🔗gliomaregistry.org

Help support people with glioma through cutting-edge research. Join @gliomaregistry today! Learn more and find out if you are eligible: gliomaregistry.org/eligibilitya

Do you struggle with cognitive changes after glioma surgery and treatment? Watch this @gliomaregistry webinar to learn about strategies and resources to help manage these changes when returning to work and daily life. Watch here: youtu.be/GJclq8s3JpU?si…

We’re stronger together! Help us advance glioma research by joining our community of over 900 people with LGG today! @gliomaregistry Learn more about us and see if you are eligible: gliomaregistry.org/eligibility

Have you read @gliomaregistry’s 2025 Spring Newsletter yet? Download it on our website (gliomaregistry.org), or email us at [email protected] to receive a copy!

If you have been diagnosed with a glioma, consider joining The International Low Grade Glioma Registry to help us understand why people develop these brain tumors and how best to treat them. Learn more about us and see if you are eligible here: gliomaregistry.org/eligibilityb

A recent study led by @gliomaregistry founder Dr. Elizabeth Claus identified a potential link between exposure to chemicals commonly found in firefighting and glioma risk. Read the full article here: acsjournals.onlinelibrary.wiley.com/doi/full/10.10…




The International Low Grade Glioma Registry (@gliomaregistry) is a partnership of researchers, clinicians, patients, and care partners working together to advance glioma research. Join our community to help make a difference! Learn more: gliomaregistry.org/eligibilitya

We are getting to the end of our #braintumorawarenessmonth survey on #idh for persons with #lowgradeglioma Help us to finish off with a big sample so we can report back to you
We need your help! @gliomaregistry is conducting a survey to assess knowledge and use of a new class of LGG treatment called IDH inhibitors. This survey is intended to be answered by individuals with LGG. If interested, please complete the survey here: yalesurvey.ca1.qualtrics.com/jfe/form/SV_6m…
Poor sleep, insomnia, and fatigue are common complaints among those with brain tumors. Watch @gliomaregistry's recent webinar with @AshleeLoughan to learn all about strategies to improve sleep and overall wellbeing after a glioma diagnosis. #BTAM 🔗gliomaregistry.org/sleep-webinar
