Vertex Save Us

Dear Vertex-You are truly vile. How dare u raise prices on a life saving drug that none of us can afford? WHO has an extra $30,000 per month?!?! Signed-a CF WARRIOR

Nothing surprises us when it comes to the greed & inhumane behaviour of @VertexPharma. Children are dying w/o access to #Trikafta due to the unaffordable price. Vertex’s response - to INCREASE the price. That says everything about their utter disregard for CF patients 🤬

Amazing news from #Turkey today - CF patients aged 6+ will have access to #Trikafta. ❤️ BUT… Why did it take 6 years whilst @VertexPharma blocked efforts to access affordable alternatives? How many young lives were lost? 😞 And 000’s globally are still waiting 😡 #CFCantWait

It’s hard to believe what happened at #ECFC2025... @VertexPharma SHUT US OUT - three CF mums - from their "community meeting" for wanting to ask critical questions about #Trikafta access. But we didn't stop there… Read full blog to find out more ⬇️ righttobreathe.net/post/exposing-…

A huge thank you to everyone that came & showed their support by placing a rose at the @VertexPharma stand at the European CF Conference in memory of CF children that have died without access to #Trikafta 💔 The global CF family standing together is an incredible thing ❤️🌎💊👊

🚨 BREAKING: today #cysticfibrosis mums stage a powerful intervention at @VertexPharma’s stand. Gayle 🇬🇧, Urtė 🇱🇹 & Ajsela 🇦🇱 laid a wreath for children who died waiting for #Trikafta. Backed by clinicians, we demand @VertexPharma act now, access for all! #ECFC2025

@VertexPharma hiding from the truth! #Cysticfibrosis

Thank you @VertexSaveUs for your tenacity, your courage, and your righteous indignation. Until everyone who needs CF drugs has access to those drugs, the story of cystic fibrosis remains one of sorrow.

.@vertexpharma only want the 'CF community' from higher income countries that have access to their extortionately priced modulator therapy #Trikafta They don't want to answer questions from @VertexSaveUs in a public meeting The reality: Tens of thousands don't have access

So shameful. @vertex why won’t you meet with parents? This happened at @nacfc too

Our representatives were blocked from entering a ‘CF community’ meeting at the European CF Conference in Milan by @VertexPharma. Inexcusable & indefensible. #Trikafta4All #RightToBreathe

We are here at #ECFC2025 to speak out on behalf of thousands of CF families around the world that cannot access #Trikafta. 🫁💊🌎 @VertexPharma should be ashamed. #GlobalCFFamily #Trikafta4All #RightToBreathe

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💊 5 May: we were @WHO in #Geneva to support an application for the triple combination CF drug to be added to the ‘Essential Medicines List’. ✍️ Supportive statements were signed by 35 national & international CF associations & 50+ human rights activists. 🌎#RightToBreathe

Advocates from @VertexSaveUs & @JustTreatment making a 3 minute statement today to the @who expert committee asking to have CF modulator therapies ivacaftor, tezacaftor & elexacaftor added to the global Essential Medicines List Incredible work👏 @DMoKreis @cf_ireland @cfcarer

Today we urged the @WHO Expert Committee to add CF triple therapy to the Essential Medicines List. Inclusion on the EML would help: 💰 Create leverage for fairer pricing 🔐 Unlock generic production 🌎 Guide policy decisions in countries currently left behind #Trikafta4All

You mean, of course, your goal of treating all people who can pay, or have coverage that can pay, the bloated prices you are charging for these cystic fibrosis drugs. Right, @vertexpharma?

1,000 emails in 4 days have been sent to the @VertexPharma CEO, Reshma Kewalramani. 1,000 people who think that every CF patient should have access to #Trikafta. 1,000 people that think she can & must do better. They cannot be ignored. actionnetwork.org/letters/tell-v…