United Mitochondrial Disease Foundation

Jan received genetic testing through UMDF's No-Cost Genetic Testing program. Receiving her diagnosis was "an important step in moving forward." Our goal is to expand access to #genetictesting for those with suspected #mitochondrialdisease. Get started at umdf.org/genetictesting/

UMDF's No-Cost Genetic Testing is available again! All interested patients with suspected #mitochondrialdisease, should register in UMDF's mitoSHARE patient registry to get started! On Genetic Testing Action Day, let's bridge the gaps TOGETHER. Visit umdf.org/genetictesting

July 25 is the first-ever Genetic Testing Action Day! We’re proud to raise awareness about why early genetic testing matters and urge families facing to talk to their doctors about #genetictesting. Join the #StartGenetic movement. Visit StartGenetic.org

Help us bring #EnergyforLife to #mito communities in the following locations: Detroit, Indianapolis, Pittsburgh, and Seattle. Help build community and fundraise toward treatments for #mitochondrialdisease. Reach out: [email protected] Together, we #energizethefight

Calling all patients with Primary Mitochondrial Myopathy (PMM)! Please take 10-15 minutes to join our patient-populated registry, mitoSHARE. Be the first to join upcoming studies that might be a fit for you or a loved one with #mitochondrialdisease. Join umdf.org/mitoshare-regi…

Calling all potential SPONSORS to help us #ENERGIZETHEFIGHT for our community with #mitochondrialdisease! Support #EnergyforLife with a sponsorship. Join us! Email [email protected]

Closing SOON -- Act Now! We need YOUR help with a Rochester University study on symptoms in mitochondrial disease. This online study involves demographic questions and questions about #mito symptoms and should only take 20 minutes! Take the survey at redcap.link/MitoDsurvey

Want to use your social media powers FOR GOOD? Put your social accounts to work for the #mito community. CHOOSE UMDF for your next Facebook or Instagram fundraiser. It's an easy way to make a difference toward treatments and cures for #mitochondrialdisease!

UMDF's Ask the Mito Doc and Bench-to-Bedside webinars are currently on break, but we'll see you in September! For free and always availabe CME courses on #mitochondrialdisease, visit umdf.org/mito-u

Energy for Life is coming to 13 different locations in the coming months! Join us with your team in person or sign up virtually as we #EnergizetheFight for our community with #mitochondrialdisease. Taking every step, roll, and stroll for #mito TOGETHER: energyforlifewalk.org

On Disability Pride Month, we're sharing this epic Abbey Road-inspired mito photo! Each of the colors in the disability flag represents a different disability. How has #mitochondrialdisease impacted your life? Share your #mito #disabilitypride stories -- tag us in @umdf

ADVOCACY ACTION: Ask your members of Congress to urge for review of the FDA’s #raredisease therapy review process. Take action at umdf.org/advocacy #GiftOfProgress #HopeForBarth

RECAP: Clinical Research Pavilion at #MitoMed. Nearly 75 participants engaged in on-site studies, and 25 participated in the Biorepository with COMBINEDBrain. Thank you to the study coordinators for making it possible and to our #mito community for accelerating #research!

Follow UMDF on TikTok! Share your #mito stories, your adaptive challenges or dances, your POV -- and tag us @mito.tok_umdf or @energy.for.life_umdf

Let your voice be heard! Calling all in the #mito community -- individuals with #mitochondrialdisease, caregivers, and family. Please complete our new Patient Needs Assessment and help ensure UMDF services align with your needs. Click the link: umdf.org/patient-needs-…

To individuals and families in the POLG community -- we need you to join mitoSHARE! A natural history study is launching THIS YEAR for individuals with #mitochondrialdisease caused by POLG mutations. Be #researchready and join today: umdf.org/mitoshare-regi… #POLG #mito

Help us welcome to UMDF's Scientific & Medical Advisory Board (SMAB) the following clinicians and researchers: Deborah Murdock, PhD, Valentina Emmanuele, MD, PhD, and Rohit Sharma, MD, PhD. Learn more at umdf.org/about

Andrea and John Kieffer open up about their support of the @Viewpoint_Quaid public awareness spotlight on #mitochondrialdisease and UMDF, coming to public television channels starting this month. 🎬 Head to our landing page for the 6-minute feature: umdf.org/viewpoint-psa🔗

🎬🎥EXCITING ANNOUNCEMENT -- A @Viewpoint_Quaid piece highlighting #mitochondrialdisease and UMDF will be debuting on public television stations nationwide starting this month! A thank you to the Melissa Kieffer Family Impact Fund. Watch here: umdf.org/viewpoint-psa/

We're taking every step, roll, and stroll together toward treatments and cures for #mitochondrialdisease. Join us and #energizethefight: energyforlifewalk.org