UK MND Research Institute

🚨We’ve launched a new home for the @MNDRegister! The MND Register is the first comprehensive source of information about people with #MND/#ALS. We hope that by counting every person with MND, we can learn more about the disease. Learn more below🔗 mndregister.ac.uk

This week, we launched our brand new and redesigned website for the @MNDRegister.🗺️ But why is it so important? Find out how this vital resource is helping researchers understand who is affected by #MND/#ALS and why. 📖Read more below. ukmndri.org/2025/05/28/mnd…

🏆 Nominations are open for the 2025 Rob Burrow Early Career Researcher Prize! This award celebrates an outstanding UK-based early career researcher who has made a significant contribution to #MND/#ALS research. Apply here👇 🔗mndassociation.org/research/for-r…

🧠💤 Have MND/ALS? We need your voice. Sleep is more than a symptom, it reflects underlying disease processes, affects quality of life, and may offer clues for new treatments. Take part in a 15-min @kingsmnd survey to guide future care and research. 🔗 surveymonkey.com/r/D8SYJPQ

New research examined how disrupted sleep patterns may signal the early stages of #MND/#ALS or FTD, providing clues to earlier detection. Read more ⬇️ 🔗 ukmndri.org/2025/07/16/res… This post is part of our Research Snapshot series, powered by Readable Research at @sheffielduni.

A huge congratulations to our co-director @AmmarAlChalabi! We're thrilled he has been recognised for his vital work in #MND and focused approach to collaborative research.🎉

🚨 In case you missed it: King’s team featured on BBC Breakfast as part of the launch of the @longitude_prize a £7.5M challenge to harness AI & big data for discovering new treatments for ALS/MND. Huge potential for impact! 💡🧠💊 #MND #AI #DrugDiscovery

A £7M international challenge has been launched to speed up #ALS/#MND drug discovery. The @longitude_prize on ALS will harness #AI & global collaboration to identify new drug targets. Find out more👇 ukmndri.org/2025/06/25/lon…

Today is #MNDAwarenessDay, a moment to highlight the hidden realities of living with #MND. Our translational research projects aim to find treatments for MND through a national, coordinated approach. 👉 Discover more: ukmndri.org/2025/06/20/fro…

Read about our latest findings from the @MNDRegister showcased at the @ENCALS Meeting 2025.🌍 Findings ranged from a new #MND/#ALS incidence and prevalence analysis to clinical characteristics and outcomes. Read more here⬇️ ukmndri.org/2025/06/04/mnd…

We're thrilled about our new MND Register Website, but do you have questions on how it works and why it is so important?📃 Our friends at the @mndassoc sat down with Andrea Biondi, who is Project Manager of the MND Register to answer these questions. Watch below👇

Do you have questions about how the MND Register works? Why is it so important? And how can researchers use it? 🙋‍♂️ Andrea Bondi, project manager of the MND Register at the UK MND Research Institute (@UKMNDRI), has the answers! ☑️ #MND

We are pleased to announce that the @ucl Queen Square Motor Neuron Disease Centre Sixth Hybrid #ALS/#MND International Symposium in Partnership will be held on Friday 5/9/25. The theme is Translating Targets to Therapies. To register, click below⬇️ eventbrite.co.uk/e/ucl-queen-sq…

🔬RESEARCH SNAPSHOT📢 A recent study has uncovered that a breakdown in communication between structures in nerve cells can disrupt their ability to produce energy. This could potentially lead to new treatment targets for #MND/#ALS 🔎Read more👇 ukmndri.org/2025/05/20/res…

📢The @UK_mnd_CSG has issued a statement on the #MIROCALS trial results, recently published in @TheLancet. What do the findings mean for #MND/#ALS research? Read the complete statement here👇 ukmndri.org/2025/05/15/uk-…

📢 The @APPGonMND has issued a statement on challenges faced by people with SOD1 MND - 2% of the MND population - in accessing ground-breaking treatment, tofersen, through an Early Access Programme. Read more: mndassociation.org/media/latest-n…