Together for Short Lives
@Tog4ShortLives
National charity for children's palliative care. Making a lifetime of difference to seriously ill children and their families.
A massive thank you to Francesca & Darren, who took on an incredible 24-hour cycling challenge, ‘Spin for the Stars’, raising an incredible £4,000 for Together for Short Lives. 👉 Read more - hdh.org.uk/spin-for-the-s…
Want to be at Leicester Square for the world premiere of the new #DowntonAbbey movie on 3 Sept? 🎥✨ Enter our raffle to win one of two pairs of tickets and help families caring for seriously ill children. Winner drawn on 11 August. Tickets £10: bit.ly/4144Mlp

Families with disabled children or children with special educational needs should not have to fight to get the ordinary things that other families take for granted. That’s why we’re supporting the Fight for Ordinary campaign. Find out more: bit.ly/4f0j7F6

We welcome news that people in England diagnosed with long-term health conditions will receive extra help and support from expert charities under a new Government service called #DiagnosisConnect. Read more: bit.ly/44GmSfK.

Thank you to @Siobhain_Mc for standing up for seriously ill children in today’s debate on children’s health. As Siobhain said, children’s palliative care is a postcode lottery. We need urgent action to ensure a sustainable future for children's palliative care.
There are many opportunities to improve children’s palliative care from the UK government’s new 10 Year Health Plan for England, but also many questions. Read our reaction here 👉🏼 bit.ly/44zQD0h
While we welcome the changes introduced to the Welfare Reform Bill, we're deeply concerned about its impact on families caring for seriously ill children, many of whom could see their benefits frozen. We urge MPs to seek further clarity and protections. bit.ly/4ezjLtl

🚨 Our new report reveals huge variation in local NHS spending on children’s hospice care. This postcode lottery must end. The UK Government must hold ICBs and councils to account for how they commission children’s palliative care. Read more 👉 bit.ly/4l2lYj6

For thousands of seriously ill children, children's hospices are a lifeline. But unless vital NHS funding is maintained beyond 2025/26, essential services will be at risk. Urgent action is needed to confirm this funding and increase it. Read more 👉 bit.ly/4l2lYj6

Seriously ill children may be denied end-of-life care without further funding for hospices, a charity has warned. Together for Short Lives said hospices are being forced to rely on donations and funds raised from charity shops to prop up services as it called on ministers to…
For children like Archie, children’s hospices are a lifeline. But 89% in England say they’ll spend more than they bring in this year – just to stay open. Without more Government funding, essential services could be lost. Read our new report: bit.ly/3TaMlHq
🚨 New from @hospiceuk: Too many seriously ill children in rural areas face extra barriers to palliative care—just because of where they live. We need urgent action to ensure support is there, when and where it’s needed. bit.ly/4l3vPp8
Thank you to @DCPcampaign for organising this vital opportunity to highlight the barriers seriously ill children face in accessing joined-up education, health & social care. We look forward to working with Government to build a system that works for families.
The first objective of any reform to the SEND system is to improve outcomes for children who have been let down for far too long. We're listening and we're acting. We will build a support-first system where every child can achieve and thrive.
As #ChildrensHospiceWeek comes to a close, we’re thinking about what our care is really about: ensuring the best possible quality of life, and making every moment count for children and families. Here are some moments that reflect just that. 💫
EHCPs are vital for many seriously ill children to access education. But following several reports, we’re concerned new government plans could limit them. That’s why we’re proud to support Hannah and @DCPCampaign’s fight to save EHCPs. 👉 bit.ly/PMEHCP
Her Royal Highness The Princess of Wales @KensingtonRoyal has written a personal and heartfelt message to mark #ChildrensHospiceWeek. In it she says, thanks to our children’s hospices, families will never face the future alone: bit.ly/3TxEkwk @tyhafan @EACH_hospices
