TGCT Support

Last year, we submitted one abstract to #CTOS2024 and presented our #TGCT registry for the very first time. For #CTOS2025, we have submitted 2️⃣ abstracts and are hoping for the same success! 💪🏻 We thank our collaborators and their dedication to our community! #TgctStrong

Conferences like #ASCO25 matter because they connect our patient-driven data & insights with the researchers shaping the future of GIST. We’re there to advocate & amplify the patient voice in research & clinical trials. #GIST #TGCT #GCT @TGCTSupportorg @liposarcoma_sn

#TGCT can cause a spectrum of presentations from asymptomatic to life-altering pain, swelling, & limited mobility, TGCT often mimics more common conditions, leading many to face misdiagnoses and delays in care. #SymptomsDriveTreatment #sarcoma #TGCTAwareness #TGCTStrong #PVNS

Behind every #TGCT diagnosis is a whole person; someone whose pain, mobility, and daily life are deeply affected. This disease touches not just bodies, but identities, families, & communities. That’s why #SymptomsDriveTreatment. Awareness begins with understanding pts needs. 💛

We are almost halfway through July, #SarcomaAwarenessMonth ! Raising awareness for #TGCT and the facts #SymptomsDriveTreatment, not scans. There is nothing that drives the message home more than pts experience! When did you know it was time to treat?

Such a privilege for us to partner with @TGCTSupportorg @Liferaftgroup to raise awareness. Great to see pts from across the U.S. descend on @UCDavisHealth to learn the latest. Thank you Dr. Stern and Co! @UCDavisOrtho @ASCO @UCD_Cancer @AAOS1 @aoa1887 @OrthoToday @ORSsociety

What an honor for @UCDavisOrtho @UCD_Cancer @UCDavisHealth @UCDavisMed to receive this international honor. @TGCTSupportorg @Liferaftgroup is making such a difference in the global stage for pts suffering from this debilitating neoplasm. @ASCO @AAOS1 @aoa1887 @AACR @ORSsociety

Awarding Dr @RLRandallMD and Dr Janai Carr-Ascher with the #TGCT Center of Excellence award. We are grateful for their dedication to the community!

Great talks on #TGCT from Drs @RLRandallMD Carr-Ascher & Copenhaver + an amazing patient story with her case presentation 👏🏻👏🏻👏🏻 @UCDavisHealth @ucdavis

🙌🏻🙌🏻 we can’t wait for tomorrow! See everyone there!

In TGCT, pts are experts of their own experiences. We know that scans don’t determine when pts treat TGCT, #SymptomsDriveTreatment. When pts are involved in their care, care becomes more personal, effective, & empowering. 💬🩺 #TGCTStrong #PVNS #TGCTAwareness #sarcomaawareness

📣 Let’s talk about pain, the most common symptom reported by TGCT patients. It’s more than a number on a 1–10 scale. TGCT pain can impact activities of daily life, and enjoyment. This #SarcomaAwarenessMonth, let’s raise awareness for knowing when it’s time to treat #TGCT. 💛

On this July 4th Day, we reflect on what true freedom means: the freedom to access care, to be heard, to live without unnecessary pain, and to pursue a future of dignity and health. Today, we celebrate independence and the strength and resilience of our community!

We know that #SymptomsDriveTreatment in #TGCT, not scans. Patients often describe a turning point in their journey, when they knew it was impacting their quality of life and ability to perform daily activities. Tell us when you knew it was time to treat your TGCT.

July is Sarcoma Awareness Month — and we’re claiming space for #TGCT! TGCT is a connective tissue tumor that, like so many living with it, doesn’t quite fit neatly into a box. Join us in spreading awareness one story at a time! #TGCTStrong #sarcomaawareness

We can’t wait to hear back and see everyone for #CTOS2025

Wonderful seeing new surgical paradigms be created with more insight into TGCT severity. Check out the Leicester’s team poster on knee TGCT and surgical approaches! 👏🏻👏🏻👏🏻

Honoring Juneteenth—a powerful reminder of freedom, resilience, and progress. Today and every day, we celebrate diversity, uplift Black voices, and commit to building a future rooted in equity and inclusion for all. Progress depends on it. 🖤

We are nearly ONE month away and we can’t wait to see you there! 🗓, July 12th, 10-3pm PST, is our TDOL hosted by @UCDavisOrtho in Sacramento! Don’t miss this free patient event. Friends & family also welcomed! 🤗 To register, go to: eventbrite.com/e/tgct-day-of-…

Even #AI gets it, #TGCT hurts! After uploading real pt experiences, we let ChatGPT generate images. It is clear TGCT causes pain, swelling, and emotional stress from delays in diagnosis & relapsing symptoms & recurrence. The burden of TGCT is real!