Sickle Cell Society
@SickleCellUK
The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.
Konnor Ewudzi joined us on the iconic Supacell estate to share how sickle cell has impacted his family — with 8 relatives affected. “Testing is so key — and blood donation even more so.” Thank you, Konnor, for helping raise awareness. #WorldSickleCellDay #SickleCellAwareness
Huge thanks to the African Caribbean Business Alliance for hosting a fantastic quiz night on 16 July, raising over £6K for the Sickle Cell Society! Our CEO John James was honoured to attend. Your support helps us make a real difference. #SickleCell #ACBA #Fundraising
Parliamentary Update.On 22 July, Kate Osamor MP raised a question on funding for sickle cell research & workforce. The Minister reaffirmed NIHR welcomes funding bids for all health areas incl Sickle Cell.Contains Parliamentary info licensed under the Open Parliament Licence v3.0
We're supporting a paid opportunity for people with lived experience of sickle cell or thalassaemia to join a working group to improve school support. Sessions run online from Sept 2025 to Jan 2026. Deadline to register is 8 August. Sign up: buff.ly/TrHQC6p
Join Team Sickle Cell at Tough Mudder 2025 💪 Choose a 5K or 15K obstacle course at one of 14 events and raise awareness for those living with sickle cell. Medal, T-shirt, headband, drink & parking included. 🔗 Sign up: buff.ly/5ZbwE6g #ToughMudder #SickleCell
A month on from #WorldSickleCellDay, we’re reflecting on some incredible events: from Royal London & Central Middlesex to Sheffield with SYSCO. Thank you to all who helped raise awareness. #SickleCellAwareness #ACTNOW #SickleCellSociety
As we gear up for more races, we're celebrating our amazing London Marathon runners from April! 🏁 Thank you for your strength, support, and dedication to the Sickle Cell Society. London 2026 spaces pending… stay tuned! #SickleCell #TeamSickleCell #LondonMarathon
📢 Join us as a Community Support Worker Lead in North East London for the Sickle Cell Society's Home from Hospital project. Apply by 4 August 2025. 🔗 More info & application: buff.ly/ezpj7Cm #SickleCell #NowHiring #NEL #SupportWorker #CommunityHealth #SickleCellSociety
🧘🏾Join us for a FREE North East London Wellness Event for sickle cell patients! 🗓️ July 11 | 🕕 6–7:30PM 📍 Stratford Hub, E15 2LS 💆🏾Focus: Sleep Better w/ Aromatherapy 🔗 More info & eligibility buff.ly/bjSefxE Please read before registering 💛#SickleCell #NELondon
The UK can lead in rare disease innovation—with long-term investment and a united approach. ⏳ Our CEO John James contributed to @lifearc & @GeneticAll_UK’s new report on how we can #ChangeTheRareFuture. Read more: buff.ly/VriNUhP
🏃🏿Huge shoutout to Tyler, who ran the Finsbury Park Half Marathon on 15 June 2025 and raised £650 for the Sickle Cell Society! ✊🏿🩸 Want to keep supporting or read his story? 🔗 buff.ly/vGQ0GcJ #SickleCell #Fundraising #ThankYouTyler #SupportSickleCell
🩸 Make Work Fair for People with Sickle Cell. Meet Benji, sharing why the new Early Day Motion matters. Too many face unfair treatment at work. ✅ Recognise sickle cell as a disability ✅ Train employers ✅ Improve support 📝 Write to your MP: buff.ly/eo3lX6m #SickleCell
📢 We’re hiring a Lead Mentor & Community Projects Coordinator in North East London. Work with families, NHS support groups & mentoring teams to improve care for those with sickle cell. In partnership with Barts Health NHS Trust.🔗 Apply: sicklecellsociety.org #SickleCell #NEL
📣 Calling all 12–24 y/o sickle cell patients in NE London (+ parents)! Join us Sat 19 July for a fun, interactive day of workshops, learning & co-production 🧠🎮 Help shape transition care!🔗 Sign up: bit.ly/levelup-day #SickleCell #LevelUp #YouthVoice #NHSVoice
🗣️ Living with sickle cell? Aged 10–24 in Sheffield, Manchester or Liverpool? Join our peer mentoring programme and connect with someone who truly gets it 💬🩸 No shame. No judgment. Just support.🔗 Email us at : [email protected] for more information #SickleCell
🗣️ Your voice matters in hospital care. Our NW & South Yorkshire mentors are empowering young people with sickle cell to speak up, stay safe & push for better treatment 🏥🩸 Let’s advocate for change where it’s needed most. #SickleCell #SpeakUpStaySafe #NHSVoices #YouthVoice
World Sickle Cell Day may be over, but the work continues. Our North West & South Yorkshire mentoring teams are busting myths and sharing the facts 💭 Myth or Truth? Let’s fact check! #SickleCellAwareness #MythVsFact #TellItLoud #SickleCellSociety #BloodMatters
On #WindrushDay, we honour the legacy of the Windrush Generation 🇯🇲🇬🇧 For many with sickle cell, the day holds deep meaning — a reminder of both heritage and the ongoing fight against stigma, inequality & poor care. 🩸 Let’s keep amplifying these voices. #SickleCell
On June 20, our CEO John James joined emancipated run crew at the Jamaican High Commission to receive £5,910.37 for the Sickle Cell Society. Massive thanks for your years of support — your impact is real! 🙌🏾🩸#SickleCell #RunForACause #ERC #BlackRunners #HealthEquity #ThankYou
🩸 This #WorldSickleCellDay we’re highlighting the importance of screening. The NHS offers antenatal & newborn screening for sickle cell via a simple blood test. Early testing = informed choices & better care. @givebloodlove #SickleCellAwareness #KnowYourStatus
