Rachel Horne

@RachelHorne19

Journalist with MS, Honorary Research Fellow @QMUL, set up http://rachelhorneprize.com for Women's Research in MS, Co-Chair @DeNPRU-QM’s patient/ public engagement.

London, UK

Joined July 2020

4KFollowing

7KFollowers

Pinned

Rachel Horne@RachelHorne19 · Jul 10

My 10th #ocrevus infusion today Hoping in the few yrs, I will be offered a BTK inhibitor like #tolebrutinib - when/if licensed. For Prof Gavin Giovannoni the "drug results offer real hope for people with smouldering MS." An @mssocietyuk BTK explainer: mssociety.org.uk/research/lates…

RachelHorne19's tweet image. My 10th #ocrevus infusion today
Hoping in the few yrs, I will be offered a BTK inhibitor like #tolebrutinib - when/if licensed.
For Prof Gavin Giovannoni the "drug results offer real hope for people with smouldering MS."
An @mssocietyuk BTK explainer:
mssociety.org.uk/research/lates…

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Rachel Horne@RachelHorne19 · Jul 27

11th hour repreive... A British couple who feared being deported from Australia after one of them was diagnosed with MS have been granted permanent residency. “We are proud to announce we are Australia’s newest permanent residents!” they posted. Congratulations!

BBBC News (UK)@BBCNews · Jun 21

Couple win visa battle after MS deportation fear bbc.in/4eewNMC

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Rachel Horne@RachelHorne19 · Jul 19

A shoplifter with MS on many medications had 'no memory' of taking groceries, a court heard. The woman had money in her purse & couldn't explain her actions, which was out of character. Judge asked for medical report. Can see how this might happen... sundayworld.com/crime/courts/s…

RachelHorne19's tweet card. A shoplifter living with multiple sclerosis was on a “raft” of medication and had no memory of taking goods from a supermarket and pharmacy, a court heard.

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Rachel Horne@RachelHorne19 · Jul 17

A student has created a new comic to highlight MS's hidden's symptoms. @aberdeenuni PhD student Claire Robertson hopes it can make the info more accessible/engaging. Her father has MS. Interview/comic on @MSTrust: mstrust.org.uk/news/stories/m… @BBC story bbc.co.uk/news/articles/…

RachelHorne19's tweet image. A student has created a new comic to highlight MS's hidden's symptoms.
@aberdeenuni PhD student Claire Robertson hopes it can make the info more accessible/engaging.
Her father has MS.
Interview/comic on @MSTrust:
mstrust.org.uk/news/stories/m…
@BBC story
bbc.co.uk/news/articles/…

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Rachel Horne@RachelHorne19 · Jul 14

Having a close friend can help make ur MS easier to manage, a US study found. Those with a confidant reported less depression, fatigue, pain, sleep problems & better general health vs those about (19%) who didn't have one, said Lauren Strober @KesslerFdn. healthcentral.com/news/multiple-…

RachelHorne19's tweet card. Having a BFF to confide in leads to improved physical and mental health among women with multiple sclerosis.

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Rachel Horne@RachelHorne19 · Jul 11

Post Ocrevus infusion... Up at 5am this morning & raided the fridge in hopes of quelling hunger pains. Wish I could tell u I made sensible eating choices... Nah - ice cream, toast slathered with butter and jam & a bag of crisps. Blame steroids.

RachelHorne19's tweet image. Post Ocrevus infusion...
Up at 5am this morning &amp; raided the fridge in hopes of quelling hunger pains.
Wish I could tell u I made sensible eating choices...
Nah - ice cream, toast slathered with butter and jam &amp; a bag of crisps.
Blame steroids.

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Rachel Horne@RachelHorne19 · Jul 7

At 21, Amy Thomson was told she was far too young to young to have MS - despite tell-tale symptoms. Post-diagnosis, she set up MS Together to provide social/mental support for those 18-35 yrs with MS. Insta: @mstogetherofficial Her story... bbc.co.uk/news/articles/…

RachelHorne19's tweet card. Amy Thompson's multiple sclerosis concerns in her early 20s were initially dismissed by a doctor.

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Rachel Horne@RachelHorne19 · Jul 6

Ahead of World Brain Day on July 22nd... What is brain health? And for those of us with MS, what can we do to keep it healthy? Listen to @drbarrysinger's new MS Living Well Podcast with @lisadoggettmd & Dr Miravalle @RushMedical. bit.ly/3FyR2b0🍎apple.co/4jHbiow

BBarry Singer MD 🧠@drbarrysinger · Jun 10

New MS Living Well Podcast! Featuring lifestyle physician @lisadoggettmd living with #MS & Dr. Miravalle @RushMedical bit.ly/3FyR2b0🍎apple.co/4jHbiow @MustStopMS @MarkWebb_ @themsguide @Brandon_Beaber @TheGirlWithMS @RachelHorne19 @MSViewsandNews @DrJim4MS

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Rachel Horne@RachelHorne19 · Jul 4

Absolute joy of a show: Design & Disability @V_and_A Museum. A superb exhibition focusing on how disabled ppl have taken the world around them & adapted it for their needs (ie self-tightening shoes). Until 15 Feb Free ticket - disabled visitors/companion vam.ac.uk/exhibitions/de…

RachelHorne19's tweet image. Absolute joy of a show: Design &amp; Disability @V_and_A Museum.
A superb exhibition focusing on how disabled ppl have taken the world around them &amp; adapted it for their needs (ie self-tightening shoes).
Until 15 Feb
Free ticket - disabled visitors/companion
vam.ac.uk/exhibitions/de…

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Rachel Horne@RachelHorne19 · Jul 3

#ECTRIMS2025! Overcame my procrastination & finally booked a hotel in Barcelona for this year's meeting. I know it's exhausting. I know u barely see the sun for 3 days - but it's a wonderful chance to hear the best minds in the world talk about MS. Anyone else going?

RachelHorne19's tweet image. #ECTRIMS2025!
Overcame my procrastination &amp; finally booked a hotel in Barcelona for this year's meeting.
I know it's exhausting. I know u barely see the sun for 3 days - but it's a wonderful chance to hear the best minds in the world talk about MS.
Anyone else going?

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Rachel Horne@RachelHorne19 · Jun 25

A great summing up by @neurognanapavan in the MS-Blog of a review by neuro Patricia Coyle on the impact of sex on MS therapies. MS Blog: multiple-sclerosis-research.org/2025/06/your-g… Review:neurotherapeuticsjournal.org/article/S1878-… Thought this was interesting...

RachelHorne19's tweet image. A great summing up by @neurognanapavan in the MS-Blog of a review by neuro Patricia Coyle on the impact of sex on MS therapies.
MS Blog: multiple-sclerosis-research.org/2025/06/your-g…
Review:neurotherapeuticsjournal.org/article/S1878-…
Thought this was interesting...

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Rachel Horne@RachelHorne19 · Jun 18

Thrilled a record number of applications were rec'd for the #RHPrize for Women's Research in MS. The applications are now being marked by the eminent, all-star, intl judges - (thx u!) Then comes #ECTRIMS2025 presentation. 2024 @mtintore, me & @KerstinHellwig (winner) on stage.

RachelHorne19's tweet image. Thrilled a record number of applications were rec'd for the #RHPrize for Women's Research in MS.
The applications are now being marked by the eminent, all-star, intl judges - (thx u!)
Then comes #ECTRIMS2025 presentation.
2024 @mtintore, me &amp; @KerstinHellwig (winner) on stage.

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Rachel Horne@RachelHorne19 · Jun 10

Last call for applications for the RH Prize! The winner will be announced at #ECTRIMS2025 in Barcelona in September. Don't miss the chance to be recognized for your impact! Thx @ECTRIMS & @ACTRIMS #RachelHornePrize #MSResearch #WomenInScience

EECTRIMS@ECTRIMS · Jun 10

📢 Final Call for Applications! The 2025 Rachel Horne Prize for Women’s Research in MS closes TODAY! Submit your application today, 10 June, by 23.59 p.m. EST (Canada & USA) ➡️ bit.ly/3DaR47N

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Rachel Horne@RachelHorne19 · Jun 9

No I don't wake up with an anxiety attack as @MSNewsToday's Desiree Lama does - something she writes about in this moving column. But anxiety has been my companion since diagnosis. You? Do you experience MS-related anxiety? If so, how do you navigate it? buff.ly/y8uRiA0

RachelHorne19's tweet image. No I don't wake up with an anxiety attack as @MSNewsToday's Desiree Lama does - something she writes about in this moving column.
But anxiety has been my companion since diagnosis.
You?
Do you experience MS-related anxiety? If so, how do you navigate it?
buff.ly/y8uRiA0

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Rachel Horne@RachelHorne19 · Jun 8

Gentle reminder for those with MS... The Spring COVID-19 vaccination rollout ends 17 June 2025. COVID-19 can still be very dangerous - particularly for people with a weakened immune system. Research has shown no increased risk of MS relapse after having a COVID-19 vaccine.

RachelHorne19's tweet image. Gentle reminder for those with MS...
The Spring COVID-19 vaccination rollout ends 17 June 2025.
COVID-19 can still be very dangerous - particularly for people with a weakened immune system.
Research has shown no increased risk of MS relapse after having a COVID-19 vaccine.

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Rachel Horne@RachelHorne19 · Jun 6

The prevalence of MS in New Zealand has risen by 1/3 from 2006-2022, a University of Auckland study says. The biggest jump was in Māori & Pacific ppl. Also data showed those living in deprived areas were less likely to be diagnosed, said Dr Natalia Boven, multiplesclerosisnewstoday.com/news-posts/202…

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Rachel Horne@RachelHorne19 · Jun 3

📢Just 7 days to go before submissions close on June 10 for the #RHPrize for Women's Research in MS. Info: rachelhorneprize.com/2025-criteria-… Can't wait to present the trophy & $40,000 to one of the brilliant women of MS @ectrims - a key supporter - along with @IntNatlWiMS & @actrims.

RachelHorne19's tweet image. 📢Just 7 days to go before submissions close on June 10 for the #RHPrize for Women's Research in MS.
Info: rachelhorneprize.com/2025-criteria-…
Can't wait to present the trophy &amp; $40,000 to one of the brilliant women of MS @ectrims - a key supporter - along with @IntNatlWiMS &amp; @actrims.

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Rachel Horne@RachelHorne19 · Jun 2

Mother of 3 who lied about the severity of her MS has been ordered to repay £22k after Facebook posts exposed her. In 2020 she claimed Personal Independence Payment (PIP) saying she couldn't get out of a bath unassisted. Yet she was running 10k races. mirror.co.uk/news/uk-news/b…

RachelHorne19's tweet card. Benefits cheat Sara Morris has been ordered to repay thousands of pounds after exaggerating the extent of her MS and being exposed by her own Facebook posts

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Rachel Horne@RachelHorne19 · Jun 1

Following up on the @WorkFoundation & @mssocietyuk survey on MS/Employment... A chance to join them online - Tuesday June 3 14:00-15:00 to discuss. Worth remembering: 96% of ppl with MS said their MS impacts their ability to work

TThe Work Foundation@WorkFoundation · May 30

Join us on Tuesday 3 June from 14.00-15.00 for our online event. Our expert panel includes: @BRHarrison_, @AmanNavani_, @MolyneuxDr (@DisPolCentre / @LancasterManage), Jemma Redden (@ETalentfirst), Ross Barrett (@mssocietyuk). Sign up here: (9/9) eventbrite.co.uk/e/ms-and-emplo…

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Rachel Horne@RachelHorne19 · May 31

So good to see progressive MS & the world's first drug trial - the @mssocietyuk Octopus Trial - on @Channel4News. It features one of their first trial recruits, Brad who barely leaves the house these days. More info/how to sign up: ukmsregister.org/octopus channel4.com/news/progressi…

RachelHorne19's tweet card. The cruelty for Brad is there are almost no treatments for the more than 75,000 people in the UK affected by progressive MS.

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