Standing Up to POTS

Dr. Todd Maderis (@dr_todd) began his career in environmental medicine and specializes in helping patients find the root causes of illness. He and Dr Dempsey cover a wide range of topics comparing best approaches to helping the most complex patients. ThePOTScast.org

Dr. Todd Maderis began his career in environmental medicine and specializes in helping patients search for the root causes of illness. He and Dr Dempsey cover a wide range of topics comparing best approaches to helping the most complex patients. ThePOTScast.org

We hope that you will join us for the 12th Annual #SUTP 5K/2K this October! We love how this event brings together families to celebrate their loved one with #POTS while also raising money for POTS #research. Register at standinguptopots.org/annual-5k #SUTP5K

Caelum discusses tools such as transcutaneous vagal nerve stimulation and heart rate variability, sharing important research findings and his clinical experiences with these therapies in patients with POTS. Listen on your favorite platform or thePOTScast.org.

In a world obsessed with doing more, remember that for those of us with #POTS, rest isn't a luxury, it's a necessity. Your worth is not measured by milestones. You are allowed to rest without apology. #chronicillness #rest #dysautonomia

Come in person or join us virtually, but we hope that you join us for the 12th Annual #SUTP 5K/2K this October! We love how this event brings together families to celebrate their loved one with #POTS. Register at standinguptopots.org/annual-5k #SUTP5K

Kai has severe ME/CFS, and is using precious energy for this episode to help us understand what life is like with profound energy limitations. Listen on your favorite platform or at ThePOTScast.org

Today, I am grateful for chili infused sea salt and cooling vests and lying on the couch with friends and all the other little things that help me get through the day. What are you thankful for? #POTS #dysautonomia #chronicillness #POTS awareness

Registration is now open for the 12th Annual #SUTP 5K/2K, which will be held on Saturday, October 18. You can participate in person at Wittenberg University, or virtually at the time and place of your choosing. standinguptopots.org/annual-5k #SUTP5K

If you show up in the middle of my story, you miss the chapters of the person I used to be, the loss that I have endured, and the challenges that I have overcome. There’s so much more to my story. #POTS #motivationalmonday #chronicillness #livingwithPOTS

Due to a genetic condition, Clare is unfortunately highly experienced in losing consciousness. But that only increased her interest in attending law school. In this episode she discusses how she makes it all work. Listen on your favorite platform or at ThePOTScast.org

Even when it feels like no one else understands, you are not alone. There’s a whole community standing with you, who understand the invisible battle you fight. We're here when you need us. #POTS #dysautonomia #invisibleillness #motivationalmonday

Gaslighting is a real problem for many #POTS patients who are doing their best to exercise and decrease their symptoms. A negative encounter with a practitioner who assumes that lack of progress results from lack of effort is not helpful. doi.org/10.3390/jcm132… #SUTP

Dr. Jen Curtin is integrating HIPAA-compliant artificial intelligence and other technologies to improve patient care and offer innovative services. Don’t miss this episode for a view of the future of medical care! Listen on your favorite platform or at ThePOTScast.org

It's okay to grieve the life you pictured before #POTS. That other life deserves to be mourned. It’s how we honor what mattered. #dysautonomia #motivationalmonday #chronicillness

When #POTS symptoms flare, it's okay to decrease your exercise protocol until the flare passes. Instead, try core stability exercises that you can do on the floor. Pace yourself and try techniques that help you to relax as your recover. doi.org/10.3390/jcm132… #SUTP

Alici’a spends a LOT of time hugging garbage pails. She did not get support from her school or insurance company, as hoped, so she found other ways to reach her goals and pursue her dreams. ThePOTScast.org

Your journey matters more than you know. Sharing your experience might give someone the inspiration to keep going. Share this graphic with someone who inspires you. #POTS #chronicillness #invisibleillness #motivationalmonday

A very small percentage of people develop #POTS symptoms after #COVID vaccine. The symptoms usually appear in the first two weeks and include signs of orthostatic intolerance including dizziness and high heart rate. doi.org/10.1186/s12872… #SUTP #dysautonomia

This is an excellent discussion for those interested in the connections between MCAS, POTS, venous compression, pelvic venous disorder, and MALS. Dr. Cutchins and Dr. Tania Dempsey share their latest thinking on how to treat these complex patients. ThePOTScast.org