Pediatric Epilepsy Surgery Alliance

Grateful for this new doc about hemispherectomy Life With Half A Brain! TY @kobre for trusting us w helping source the interviews w our founder @MonikaJonesJD @Lurieneurosurg's @sandi_lam @ClevelandClinic's W Bingaman and @NeurosurgUCSF's K Auguste. 🎥 bit.ly/4fliZP9

Medical trauma is real, and it’s something many parents and caregivers in our community carry silently.One of our most popular blog posts breaks down what medical trauma looks like and to help parents begin healing. epilepsysurgeryalliance.org/2025/05/01/cop…

We support research to help families understand outcomes after epilepsy surgery. Many of our published studies focus on hemispherectomy, reflecting our roots as The Brain Recovery Project. Explore our research and see how it's shaping the future of care. epilepsysurgeryalliance.org/about/research…

🔥 Hot off the press! Let's use this to help parents and caregivers understand that epilepsy surgery can save lives. bit.ly/4o6tv2h

What happens when a child has half their brain removed to stop seizures? It sounds unbelievable; but for some families, it’s the surgery that saves their child’s life. In Life With Half A Brain, meet real families living life after a hemispherectomy. ow.ly/Ajx550VUzR3

Summer is here - and there's no better time to fundraise for our community! It's easy with our fundraising tools. Take a look at all the things you can do to get involved. ow.ly/bZlk50WartO

Join us for an evening of purpose in Chicago on Friday, September 19th at 6:00 p.m. Together, we’ll raise critical funds to help more children access life-changing epilepsy surgery and support every step of the journey. GET YOUR TICKETS TODAY! ow.ly/kaKO50WaqFt

We know how overwhelming the transition to adulthood can feel after epilepsy surgery. That’s why we created a free course just for parents of children with neurological conditions, like you! It covers what matters most! ow.ly/MT2a50W35SU

We know some needs go beyond what we offer. That’s why we’ve partnered with Child Neurology Foundation and Unite Us to connect parents and caregivers with services that can help. ow.ly/fPoK50W366l

We are honored to receive a platinum seal from Candid + 4/4 stars from Charity Navigator. When you give to us, you can give with confidence! Donate at ow.ly/pO1C50WatQA

What employment opportunities are available for young adults who had epilepsy surgery in childhood? Our blog post about finding a job can help. ow.ly/m4yg50Wanyp

Join us for an unforgettable evening of purpose at the International Museum of Surgical Science. Together, we’ll raise critical funds to help more children access life-changing epilepsy surgery. GET YOUR TICKETS TODAY! #Chicago ow.ly/kaKO50WaqFt

As a caregiver-led organization, we know firsthand that raising a child with complex medical needs can get very expensive - and fast. Our latest guide helps parents find financial help now. ow.ly/We5v50Waow1

Many children with drug-resistant epilepsy also have learning, behavior, or attention challenges, but families are often left wondering what’s going on or how to get help. Our next Power Hour is all about neurodevelopmental disorders. Register here: ow.ly/pCJ450W7OR2

If a child is having inpatient monitoring or epilepsy surgery soon, parents want to know they should take to the hospital. We've crowd-sourced tips from fellow parents - read what they suggest and how parents can manage stress. ow.ly/gYAb50WatHz

Summer is just about here - and there's no better time to fundraise for our community! It's easy with our fundraising tools. Take a look at all the things you can do to get involved. ow.ly/bZlk50WartO

If you're thinking about epilepsy surgery for your child, it's important to understand that it can be life-saving. One of our most popular blog posts breaks down research about how surgery reduces the risk of death in children with refractory epilepsy. ow.ly/JkH050W9zpQ

Great interview with our board member @sandi_lam and how endoscopic hemispheric surgery gave a young child with refractory epilepsy true hope.

We don't talk enough about the services and supports that parents and caregivers need, even after successful epilepsy surgery. It's ok to ask for help. Here's how you do it. ow.ly/oNgx50WancB

Epilepsy surgery as a teen dramatically reduced Rosin's seizures. Where is Rosin now? She just finished her first year of medical school! Her blog post takes us through her epilepsy surgery journey, including the long delay to get there. ow.ly/gLZc50WatET

In 2024, our parent support navigators connected with 134 parents and provided key decision-making resources through 264 phone calls. PSNs are trained in evidence-based peer support practices. Connect your patients' parents with a PSN at bit.ly/3sVTq4D