PDSA ITP SUPPORT

@PDSA_ITP

Platelet Disorder Support Association ~ the premier source for information, treatments, and support for people with ITP (immune thrombocytopenia).

Brecksville, OH

Joined April 2011

50Following

2KFollowers

Pinned

PDSA ITP SUPPORT@PDSA_ITP · May 30

From babyproofing tips to managing daycare concerns, we’re talking all things safety for little ones with low platelets. Tune in for practical, reassuring guidance at pdsa.org/podcast or on Spotify. #ITPpodcast #BruisedButNotBroken #LivingWithITP #ITPinChildren #ITPinKids

PDSA_ITP's tweet image. From babyproofing tips to managing daycare concerns, we’re talking all things safety for little ones with low platelets. Tune in for practical, reassuring guidance at pdsa.org/podcast or on Spotify. #ITPpodcast #BruisedButNotBroken #LivingWithITP #ITPinChildren #ITPinKids

Pinned

PDSA ITP SUPPORT@PDSA_ITP · May 1

Join us as Dr. Michael Tarantino shares what teens and families need to know about managing ITP with confidence at pdsa.org/podcast or on Spotify. #ITP #ITPinTeens

PDSA_ITP's tweet image. Join us as Dr. Michael Tarantino shares what teens and families need to know about managing ITP with confidence at pdsa.org/podcast or on Spotify. #ITP #ITPinTeens

PDSA ITP SUPPORT@PDSA_ITP · Jul 1

Aging with ITP brings new challenges—but also new wisdom. In this episode, three longtime patients open up about what it really means to live well with a bleeding disorder later in life. Listen now at pdsa.org/podcast or on Sportify. #ITP #ITPpodcast #AgingWithITP

PDSA_ITP's tweet image. Aging with ITP brings new challenges—but also new wisdom. In this episode, three longtime patients open up about what it really means to live well with a bleeding disorder later in life. Listen now at pdsa.org/podcast or on Sportify. #ITP #ITPpodcast #AgingWithITP

PDSA ITP SUPPORT@PDSA_ITP · Jun 27

Philly, here we come! ONE MONTH till #ITPConference2025 and we have over 250 people registered! ✔️ Review the “Know Before You Go” ✔️ Pre-register for the Saturday night fun event bus tour ✔️ Bring your ITP questions Learn more at pdsa.org/conferences!

PDSA_ITP's tweet image. Philly, here we come! ONE MONTH till #ITPConference2025 and we have over 250 people registered!

✔️ Review the “Know Before You Go”
✔️ Pre-register for the Saturday night fun event bus tour
✔️ Bring your ITP questions

Learn more at pdsa.org/conferences!

PDSA ITP SUPPORT@PDSA_ITP · Jun 17

ITP doesn’t just affect platelets—it affects lives. What’s one thing you wish others truly understood about this condition? Share your insights! ✨ #RaiseITPAwareness #ITP

PDSA_ITP's tweet image. ITP doesn’t just affect platelets—it affects lives.

What’s one thing you wish others truly understood about this condition? Share your insights! ✨ #RaiseITPAwareness #ITP

PDSA ITP SUPPORT@PDSA_ITP · Jun 16

In this episode we break down what every woman with ITP should know. Whether you're planning, pregnant, or just curious, this is the insight you've been waiting for. Your ITP journey in pregnancy starts here. Listen now at pdsa.org/podcast or on Spotify.

PDSA_ITP's tweet image. In this episode we break down what every woman with ITP should know. Whether you're planning, pregnant, or just curious, this is the insight you've been waiting for. Your ITP journey in pregnancy starts here. Listen now at pdsa.org/podcast or on Spotify.

PDSA ITP SUPPORT@PDSA_ITP · Jun 15

To all the fathers in the ITP community 💙 Happy Father’s Day from PDSA! Whether you’re advocating, caregiving, or managing your own diagnosis, your strength uplifts us all. How do you like to celebrate Father's Day? #ITPDads #ITPwarrior #HappyFathersDay

PDSA_ITP's tweet image. To all the fathers in the ITP community 💙 Happy Father’s Day from PDSA! Whether you’re advocating, caregiving, or managing your own diagnosis, your strength uplifts us all.

How do you like to celebrate Father's Day?
#ITPDads #ITPwarrior #HappyFathersDay

PDSA ITP SUPPORT@PDSA_ITP · Jun 14

🎉 25 Years of Empowering the ITP Community! Join us in Philadelphia for the 25th Annual ITP Conference, July 25–27. Whether you're newly diagnosed, a long-time patient, caregiver, or healthcare professional—this event is for YOU. 🔗 Register now at pdsa.org/conferences

PDSA_ITP's tweet image. 🎉 25 Years of Empowering the ITP Community!
Join us in Philadelphia for the 25th Annual ITP Conference, July 25–27. Whether you're newly diagnosed, a long-time patient, caregiver, or healthcare professional—this event is for YOU.
🔗 Register now at pdsa.org/conferences

PDSA ITP SUPPORT@PDSA_ITP · May 15

What if you could make your ITP blood work easier, faster, and less painful? Learn how ultrasound and simple tips can make a big difference from this week's special guest. Episode 17 is live on Spotify and pdsa.org/podcasts. #ITP #ITPpodcast #BloodDraw #CBC

PDSA_ITP's tweet image. What if you could make your ITP blood work easier, faster, and less painful? Learn how ultrasound and simple tips can make a big difference from this week's special guest. Episode 17 is live on Spotify and pdsa.org/podcasts. #ITP #ITPpodcast #BloodDraw #CBC

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PDSA ITP SUPPORT@PDSA_ITP · May 6

On National Nurse's Day, we celebrate the incredible nurses who bring light to the lives of all patients. And a special thank you to the nurses who stand by ITP patients through every challenge. #HappyNursesDay #NationalNursesDay #itp #ITPwarriors #ITPCareHeros #ITPNurse

PDSA_ITP's tweet image. On National Nurse's Day, we celebrate the incredible nurses who bring light to the lives of all patients. And a special thank you to the nurses who stand by ITP patients through every challenge. #HappyNursesDay #NationalNursesDay #itp #ITPwarriors #ITPCareHeros #ITPNurse

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PDSA ITP SUPPORT@PDSA_ITP · Apr 16

New Arrivals at The Platelet Store! Check out awareness items, medical alert jewelry and more at pdsa.org/shop. Limited stock available so be sure to get them before their gone! #ITP #ThePlateletStore #ITPawareness #SportPurple4Platelets

PDSA_ITP's tweet image. New Arrivals at The Platelet Store!

Check out awareness items, medical alert jewelry and more at pdsa.org/shop. Limited stock available so be sure to get them before their gone! #ITP #ThePlateletStore #ITPawareness #SportPurple4Platelets

PDSA ITP SUPPORT@PDSA_ITP · Apr 16

“I’ve become that patient who goes in and says, ‘They don’t need to be that high. Let’s lower the dose.’” Tracey’s story is a powerful reminder that support, education, and self-advocacy can make all the difference. Tune in to Episode 14 at pdsa.org/podcast or on Spotify.

PDSA_ITP's tweet image. “I’ve become that patient who goes in and says, ‘They don’t need to be that high. Let’s lower the dose.’” Tracey’s story is a powerful reminder that support, education, and self-advocacy can make all the difference. Tune in to Episode 14 at pdsa.org/podcast or on Spotify.

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PDSA ITP SUPPORT@PDSA_ITP · Apr 15

During Health Equity Month, we're committed to making health education accessible to all. Explore our free, translated booklets on ITP covering treatments, commonly asked questions, health insurance, and assistance programs. Visit pdsa.org/booklets to download today.

PDSA_ITP's tweet image. During Health Equity Month, we're committed to making health education accessible to all. Explore our free, translated booklets on ITP covering treatments, commonly asked questions, health insurance, and assistance programs. Visit pdsa.org/booklets to download today.

PDSA ITP SUPPORT@PDSA_ITP · Mar 17

🌈Leprechauns have gold, but we have something better—our ITP community! What’s your favorite way to support others? Please share in the comments! 🍀💛 Looking to get involved? Visit our Support Resources at pdsa.org/patients-careg… #ITP #GoldenHeartsOfITP #LuckAndSupportForITP

PDSA_ITP's tweet image. 🌈Leprechauns have gold, but we have something better—our ITP community! What’s your favorite way to support others? Please share in the comments! 🍀💛

Looking to get involved? Visit our Support Resources at pdsa.org/patients-careg… #ITP #GoldenHeartsOfITP #LuckAndSupportForITP

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PDSA ITP SUPPORT@PDSA_ITP · Mar 15

"Things happen in life. Accidents happen. You never know when, and if you have nothing with you, you're going to have a lot more anxiety." - Barb Tune in to Episode 13 now at pdsa.org/podcast or listen on Spotify. #ITP #BleedingDisordersAwarenessMonth

PDSA_ITP's tweet image. "Things happen in life. Accidents happen. You never know when, and if you have nothing with you, you're going to have a lot more anxiety." - Barb

Tune in to Episode 13 now at pdsa.org/podcast or listen on Spotify. #ITP #BleedingDisordersAwarenessMonth

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PDSA ITP SUPPORT@PDSA_ITP · Mar 15

As we continue through March, we recognize the importance of Bleeding Disorders Awareness Month. In addition to #ITP, PDSA also offers information about when it's not ITP and other platelet disorders. Learn more at pdsa.org/inherited-thro….

PDSA_ITP's tweet image. As we continue through March, we recognize the importance of Bleeding Disorders Awareness Month.

In addition to #ITP, PDSA also offers information about when it's not ITP and other platelet disorders. Learn more at pdsa.org/inherited-thro….

PDSA ITP SUPPORT@PDSA_ITP · Mar 13

In 2009, ASH revised the ITP treatment guidelines, adopting the name "Immune Thrombocytopenia." This change was to better reflect the understanding of ITP as immune-mediated rather than idiopathic. Learn more about treating ITP at pdsa.org/treating-itp #ITPresources

PDSA_ITP's tweet image. In 2009, ASH revised the ITP treatment guidelines, adopting the name "Immune Thrombocytopenia." This change was to better reflect the understanding of ITP as immune-mediated rather than idiopathic. Learn more about treating ITP at pdsa.org/treating-itp #ITPresources

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PDSA ITP SUPPORT@PDSA_ITP · Mar 10

Immune Thrombocytopenia (ITP) is the most common autoimmune bleeding disorder, affecting around 60,000 people in the U.S., but physicians suspect it may be closer to 100,000 people. Help raise awareness by sharing your story at pdsa.org/share-your-itp… #AutoimmuneAwarenessMonth

PDSA_ITP's tweet image. Immune Thrombocytopenia (ITP) is the most common autoimmune bleeding disorder, affecting around 60,000 people in the U.S., but physicians suspect it may be closer to 100,000 people. Help raise awareness by sharing your story at pdsa.org/share-your-itp… #AutoimmuneAwarenessMonth

PDSA ITP SUPPORT@PDSA_ITP · Mar 9

Join us in July for the annual ITP Conference! Meet fellow patients and their families, learn from world renowned ITP experts, and more! PDSA members receive a special discount! Register at pdsa.org/conferences. #ITP #ITPresources #ITPconference #PatientResources #ITPcommunity

PDSA_ITP's tweet image. Join us in July for the annual ITP Conference! Meet fellow patients and their families, learn from world renowned ITP experts, and more! PDSA members receive a special discount! Register at pdsa.org/conferences. #ITP #ITPresources #ITPconference #PatientResources #ITPcommunity

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PDSA ITP SUPPORT@PDSA_ITP · Mar 8

Research shows that autoimmune conditions can share a genetic link. Dive into the details with the PDSA's resources on ITP and Genetics including hereditary vs non-hereditary, genetic testing, and much more at pdsa.org/genetics. #AutoimmuneAwarenessMonth #ITPandGenetics

PDSA_ITP's tweet image. Research shows that autoimmune conditions can share a genetic link. Dive into the details with the PDSA's resources on ITP and Genetics including hereditary vs non-hereditary, genetic testing, and much more at pdsa.org/genetics. #AutoimmuneAwarenessMonth #ITPandGenetics

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