NOAH
@NOAHAlbinism
NOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place of acceptance.
Have you heard the news? No need to wait until later in the month to connect with fellow PWAs 55+! Aging with Albinism is now meeting 2x per month, and our next meeting is next Tuesday, August 5th 🥳 New to the group? There's still time to sign up: albinism.org/NOAH-Connectio…

The NOAH iPad Assistance Program was founded in 2015 to provide PWAs, who do not have access, the opportunity to receive an iPad. We are pleased to share that iPad assistance applications are now open for summer 2025! Learn more & apply by August 22nd: albinism.org/ipad

Do you know a parent of a young or newly-diagnosed child w/ albinism? Encourage them to join Megan Pitt, LMHC on 8/11 at 8pm ET to connect with fellow parents, & learn about adapting to the new role of a parent of a child with albinism. Register by 8/9: albinism.org/workshops

Hey, NOAH Parents! Whether you're counting down the days before the kids to head back to school, or wishing summer would never end, we've got just the thing for you! Join Ashley Maynard & fellow parents on 8/27 to discuss all things back to school. albinism.org/NOAH-Connectio…

FYI: NFB Free White Cane Program Did you know that the National Federation of the Blind will provide a free white cane for blind and visually impaired individuals living in the US or Puerto Rico? Learn more: nfb.org/programs-servi…

Our friends at the Global Albinism Alliance supported the publication of a systematic review of the literature on skin cancers in PWAs, published in the International Journal of Dermatology. The study highlighted the need for more research in this area. facebook.com/photo/?fbid=10…

Calling All Physicians & Medical Students with Albinism! We can't wait to see YOU for our next session of Doctors with Albinism. Mark your calendar to join this global community of doctors with albinism on Sunday, August 3rd at 9am ET // 6am PT. albinism.org/NOAH-Connectio…

LGBTQ+ PWAs & allies - we hope you'll join us on Monday, August 11th for our next NOAH Connections session just for you! New to the group? We can't wait to meet you! Sign up today: albinism.org/NOAH-Connectio…

Do you know a kid with albinism (8-12yrs) who loves to read? Tell them about our Kids' Book Club! Teen PWAs Caroline & Luna will be hosting the next Kids' Book Club discussion about "Out of my Mind" by Sharon M. Draper on 8/19 at 8pm ET! Sign up today: albinism.org/NOAH-Connectio…

FYI: JVIB invites submissions The Journal of Visual Impairment & Blindness (JVIB) invites submissions for a 2027 Special Issue on Intersectionality in the Lives of Individuals With Visual Impairments. Learn more: afb.org/news-publicati…

"I met you for a weekend, but I felt like I knew you forever...You allowed me to embrace the albinism community that I proudly call “family,” and to seek purpose in life." - Adult Weekend '13 participant Adults PWAs - join our "family" this fall in Reno: albinism.org/adult-weekend

We know life gets busy so don't forget to mark your calendar for another great Adult Connections session. Join us TOMORROW starting at 9:00 PM ET// 6:00 PM PT. New to the group? There's still time to sign up: albinism.org/NOAH-Connectio…

No need to google your pediatric ophthalmology questions - get them answered by professionals! Join Dr. Tomas Porter, O.D., F.A.A.O. and a panel of pediatric ophthalmologists on Wednesday, 8/13 at 9pm ET // 6pm PT for our next session of Seeing Beyond. albinism.org/NOAH-Connectio…

Young adult PWAs - taking any time to relax this summer? Well, be sure to take a much needed break and join us TOMORROW for chill and relaxing chat starting at 9:00 PM ET// 6:00 PM PT. New to the group? We'd love to meet you tomorrow! Sign up now: albinism.org/NOAH-Connectio…

Adult PWAs - we can't wait to see YOU in Reno this fall! We'll kick off Adult Weekend with group dinner at the Purple Parrot (included in your registration fee). What could be better than great food with even better company? Learn more & register today: albinism.org/adult-weekend

Parents with albinism - join Marleena Barber and friends on Tuesday, 8/5 at 9pm ET // 6pm PT for Fun in the Sun. We'll discuss our favorite topic, sunscreen, and how we take care of ourselves while outdoors with our kids. Sign up today! albinism.org/NOAH-Connectio…

Breaking News! We are excited to share that our Aging with Albinism calls will now be held 2x per month. That means there are twice as many chances for PWAs 55+ to connect and chat! 🥳 Mark your calendar to join us on 8/5 & 8/19 at 5pm ET // 2pm PT. albinism.org/NOAH-Connectio…

Hey, Canadian parents - how long has it been since you've hung out with adults? Do you need a break from the kids? Catch up with the rest of the world and join us for Canadian Parent Connections on Tuesday 8/12 starting at 9pm ET // 6pm PT! Sign up today: albinism.org/NOAH-Connectio…

🚀 Space Camp 2025! 🚀 NOAH is pleased to offer one $500 tuition scholarship for a student with albinism in our community to attend SCIVIS 2025. To apply, complete the Space Camp Scholarship Application Packet in full and return to NOAH by August 10th. albinism.org/space-camp

Friday Favorites! Summer is here and we all know how important sun protection is for PWAs, especially in the warm and bright weather. Do you have a go-to umbrella to stay in the shade during beach trips or picnics? Share your favorites in the comments! ⬇️
