NF2 BioSolutions
@NF2BioSolutions
NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis
NF2 Related Schwannomatosis is a rare genetic disorder that causes tumors to grow on nerves throughout the body, especially the brain and spine. It can lead to: Hearing loss Vision problems Balance issues Pain, numbness, and more On May 22, we raise awareness and take action.
The Geoffrey Jefferson Brain Research Centre in Manchester has secured a £700,000 grant to accelerate NF2 research, funding studies into the mechanisms of brain tumours and inflammation pathways in vestibular schwannomas and related tumours. Article here: buff.ly/TPsAMlj
💙Join Us This Saturday for the Freedom Fundraiser 5K & Kids Dash! 💙 Come out and show your support for NF2 research at the Freedom Fundraiser 5K Run/Walk and Kids Dash THIS SATURDAY in Warren, PA! Register or donate here: buff.ly/PWGTPjA
🎥 Missed the live webinar? The recording is now available! Learn about a groundbreaking AAV9-based gene therapy approach to treat NF2, presented by leading researchers in the field. ▶️ Watch the full recording now: 🔗 buff.ly/RqYqfJc
NF2 Awareness Month Is Over, But the Fight Isn’t 💙 May is behind us, but for those living with NF2, the challenges don’t end on June 1st, and neither does our mission. 👉 Donate today: Using Facebook: buff.ly/0JDU0yl Using our webpage: buff.ly/3kAdqPO
🚨 Happening TODAY! Our AAV9-NF2 Gene Therapy webinar is just a few hours away — and there's still time to register! ✅ Can’t attend live? Register anyway, and we’ll send you the recording by email! 🔤 Live captioning will be available. 🔗 Register here: buff.ly/RqYqfJc
Want to know how your donations are used? Here is a breakdown of what your donation can accomplish for the Yale Antibodies Project. Donate: Facebook: buff.ly/hHykMNh Webpage: buff.ly/hHqZRrq PayPal: buff.ly/0KKEtlF Internationally: buff.ly/aIuNLl9
We’ve raised $63,000 to fund Dr. Zhou’s cutting-edge antibody therapy at Yale—but we’re not done yet! Donate today: Using Facebook: buff.ly/hHykMNh Using our webpage: buff.ly/hHqZRrq Using PayPal: buff.ly/0KKEtlF Internationally: buff.ly/aIuNLl9
Today, May 22nd, is NF2 Awareness Day, and we’re inviting YOU to help raise awareness. Wear blue, snap a photo, and share it on social media by tagging @nf2biosolutions. Let’s fill the timeline with faces of hope, strength, and solidarity for those living with NF2.
On May 22nd, we shine a light on a rare condition that affects thousands, but is still too often misunderstood. #NF2Awareness #EndNF2
Missed the Webinar? We were honored to host Dr. Bae-Hoon Kim, Ph.D., from PRG Science & Technology (Korea), in an insightful session on a new inhibitor drug trial for NF2 that is currently in progress. Watch the full recording now on YouTube: 🔗 buff.ly/QWipMPQ
Join us on May 29 at 3 PM ET for an in-depth look at this cutting-edge therapy, which aims to insert a healthy NF2 gene using AAV9 vectors to stop tumor growth. Register here: buff.ly/Xh95O89
Ahead of tomorrow's webinar featuring Dr. Bae-Hoon Kim, Ph.D., from PRG Science & Technology, who will share insights on a new inhibitor drug trial for NF2 currently underway in Korea, check out the published research article behind this exciting work: 🔗 buff.ly/Oj7Sh0s
